Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Is This Possible?

Lunabell

Recommended Posts

Lunabell Apprentice
Lunabell
Posted

My youngest has all but been diagnosed with celiac. Her blood tests were positive and her observed reactions are pretty apparent. Just waiting to do the endo/biopsy for the doctor's official seal.

We are gluten free in our home. I told the doctor that I was going to go ahead and switch her over because continuing to feed her gluten when it causes her such pain was child abuse, in my opinion. She agreed and didn't think she would heal fully by December 29th.

I was completely gluten free for about 3 days since I didn't eat anything from outside the house. Last night I had a couple of beers. I woke up in the middle of the nights totally bloated and in a lot of pain. I called it a "corn-lite" experience because it reminded of what it felt like when I would eat corn when I was pregnant with my middle daughter. I still don't eat corn to this day because of how awful I felt.

I am going to get my blood work done in January,since I do have a history of IBS-y like issues. I just don't have time before the holidays. I have been trying to keep gluten in my diet so that the testing will be accurate. I just don't bring it into the house,

If someone has celiac, is it possible to have a more extreme reaction after being gluten free for only 3 days?

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


cassP Contributor
cassP
Posted

yes! absolutely! my reactions are way more alert and severe than before going gluten free!

shopgirl Contributor
shopgirl
Posted

Yep. I screwed up four days into gluten-free and got a wicked stomachache when I messed up. I'd never had stomach/abdominal pain pre-diagnosis either.

T.H. Community Regular
T.H.
Posted

If someone has celiac, is it possible to have a more extreme reaction after being gluten free for only 3 days?

Yup. I had NO gut pain before I was diagnosed, and after 2 days of being gluten free, I had gluten free chips that we since found out have more gluten cc than I could handle, and I was very sick.

I don't know if it's as common as those who start having issues with gluten after a few weeks on the gluten free diet, but it definitely happens.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      132,002
    • Most Online (within 30 mins)
      7,748
    JoEllen Ball
    Newest Member
    JoEllen Ball
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Aretaeus Cappadocia
      Dedicated gluten-free Restaurants in East Bay (near San Francisco):

      By Aretaeus Cappadocia · Posted

      I strongly recommend 2 dedicated gluten free (gluten-free) restaurants in my area (East Bay of San Francisco Bay Area) (2025) -- Life is Sweet Bakery and Café in Danville. I've been a few times with friends and tried multiple entrees and salads. All very good and worth having again. I've also tried a number of their bakery goods. All extremely good (not just "good for gluten-free"). https://lifeissweetbakeryandcafe.com/ -- Kitara Kitchen in Albany (they have additional locations). I've been once and had the "Buritto Bowl". Six individual items plus a sauce. Outstanding. Not just "for gluten-free", but outstanding in its own right. Vibrant flavors, great textures. I can't wait to go back. https://www.kitava.com/location/kitava-albany/  
    • Martha Mitchell
      Celiac getting dentures

      By Martha Mitchell · Posted

      I'm 67 and have been celiac for 17yrs. I had cataract surgery and they put a gluten lens in my eye. Through a lot of research, I found out about MMA acrylic...it contains gluten. It took 6 months for me to find a DR that would remove it and replace it with a gluten-free lens . I have lost some vision in that eye because of it . I also go to a prosthodontist instead of a regular dentist because they are specialized. He has made me a night guard and a few retainers with no issues... where my regular dentist didn't care. I have really bad reactions to gluten and I'm extremely sensitive, even to CC. I have done so much research on gluten-free issues because of these Drs that just don't care. Gluten is in almost everything shampoo, lotion, food, spices, acrylic, medication even communion wafers! All of my Drs know and believe me I remind them often.... welcome to my world!
    • trents
      Chances of being coeliac

      By trents · Posted

      If this applies geographically, in the U.K., physicians will often declare a diagnosis of celiac disease based on the TTG-IGA antibody blood test alone if the score is 10x normal or greater, which your score is. There is very little chance the endoscopy/biopsy will contradict the antibody blood test. 
    • JoJo0611
      Chances of being coeliac

      By JoJo0611 · Posted

      TTG IgA reference range 0.0 to 14.9 KU/L
    • trents
      Chances of being coeliac

      By trents · Posted

      What was the reference range for that test? Each lab uses different reference ranges so a raw score like that makes it difficult to comment on. But it looks like a rather large number.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.