Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Whats Next After Cutting Out Gluten?


Rachel W

Recommended Posts

Rachel W Apprentice

So i have been gluten free for a year and feeling much better(finallllly).. But i still have some issues, not near as bad as eating gluten and sleeping on the bathroom floor for 2 days, <_< but cramps, upset sour stomach and gas that would clear a room full of firemen LOL :blink:

My brother is lactose intol, so i am going to start there, and i also eat alot of corn, so i was thinking about cutting that out too..I dont eat alot of processed food either.. So my question to those of u with dairy and corn allergies..What do u eat??

Thanks for the help :):D


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Skylark Collaborator

Gas is probably lactose, raffinose (the sugar in legumes and cabbage family plants), or fructose malabsorption. You might try some Lactaid milk and there's a gluten-free version of Beano called Bean-Zyme. Fructose malabsorption is a little tricker with the diet, but there is some info here. Open Original Shared Link

jny1179 Newbie

I would start with one thing at a time. You are good with the gluten, I suggest dairy next. And I wouldn't just cut out lactose dairy, I'd cut out all cows (& goats) dairy at least for a few months and see how you feel. After that, start adding back in hard cheese and pure yogurt that are lactose free and see how you feel. Many gluten-free items are also dairy free but be sure to check everything. Also dairy hides in a lot of things the same way that gluten does so be careful. A great website to check out is godairyfree.org

There are many great dairy free substitute products out there, including coconut milk products, almond milk, rice milk and so on.

Rachel W Apprentice

Thanks !!! :D I appreciate it ! I believe i will try dairy first, i love almond milk anyways ! Another question is , when u have problem with lactose too, and say u eat something with milk in it ( just say a piece of choc candy)..will the effects be like if i ate gluten :ph34r: ?? I know it prob just depends on how bad ur body reacts and everypne is different..just wondering

Skylark Collaborator

Thanks !!! :D I appreciate it ! I believe i will try dairy first, i love almond milk anyways ! Another question is , when u have problem with lactose too, and say u eat something with milk in it ( just say a piece of choc candy)..will the effects be like if i ate gluten :ph34r: ?? I know it prob just depends on how bad ur body reacts and everypne is different..just wondering

Lactose intolerance is dose dependent. A little like milk in a piece of chocolate candy will be OK for most folks with lactose intolerance. A big glass of milk will pretty much always cause trouble. The amount you can tolerate is different for everyone and the only way to find out is to experiment a little. Lactose will not silently damage you like gluten does; the effects are simply the obvious ones of cramping and gas.

FooGirlsMom Rookie

Ditto Skylark. I am off dairy but if I don't eat too much of it, I can eat gluten-free chocolate.

I started with dairy and then realized while it cleared some symptoms it didn't clear all. I then discovered I was really reacting to soy. BADLY. I can't even eat soybean oil like in Best Foods Mayo. It makes me feel nauseous within minutes & then I have painful joints for 24 hours. Corn was 3rd and seems to be the last offender for the time being. It causes the least amount of symptoms.

Good luck

FooGirlsMom

T.H. Community Regular

will the effects be like if i ate gluten :ph34r: ?? I know it prob just depends on how bad ur body reacts and everypne is different..just wondering

I think it depends on what symptoms you have. My father has all the gut symptoms that could be dairy OR gluten. He doesn't notice anything else.

If you've got a DH rash, neurological symptoms, joint pain, brain fog and the like, I would think that this would be more gluten specific. Although there are some intolerances/allergies that do seem to cause joint pain and brain fog, too, so it's a possibility.

In the future, if you do decide to avoid corn? I would suggest checking out some of the websites put up by people with corn allergies. We avoided corn, and I was getting it all the time until I did that. I was STUNNED by where I was finding it. Like my salt - seriously, who knew?

Good luck! Hopefully the dairy will do the trick. :-)


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Rachel W Apprentice

Well I havent had any dairy since I first posted this, and i have had a big drop in my err, "issues".. So i think dairy was the problem ! Of course i have also ate strict no additive no nothin food in the past few days as well, so i feel better from that too i am sure ~ Have a date with the hubby this weekend ! So hopefully that goes well, we will be eating at Outback, which is usually safe :rolleyes:

Thank you soo so much for your help

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - SamAlvi replied to SamAlvi's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      7

      High TTG-IgG and Normal TTG-IgA

    2. - knitty kitty replied to lizzie42's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      6

      Son's legs shaking

    3. - lizzie42 replied to lizzie42's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      6

      Son's legs shaking

    4. - knitty kitty replied to lizzie42's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      6

      Son's legs shaking

    5. - lizzie42 replied to lizzie42's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      6

      Son's legs shaking

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      132,871
    • Most Online (within 30 mins)
      7,748

    Koyanna
    Newest Member
    Koyanna
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Who's Online (See full list)

    • There are no registered users currently online
  • Upcoming Events

  • Posts

    • SamAlvi
      Thanks again for the detailed explanation. Just to clarify, I actually did have my initial tests done while I was still consuming gluten. I stopped eating gluten only after those tests were completed, and it has now been about 70 days since I went gluten-free. I understand the limitations around diagnosing NCGS and the importance of antibody testing and biopsy for celiac disease. Unfortunately, where I live, access to comprehensive testing (including total IgA and endoscopy with biopsy) is limited, which makes things more complicated. Your explanation about small-bowel damage, nutrient absorption, and iron-deficiency anemia still aligns closely with my history, and it’s been very helpful in understanding what may be going on. I don't wanna get Endoscopy and I can't start eating Gluten again because it's hurt really with severe diarrhea.  I appreciate you taking the time to share such detailed and informative guidance. Thank you so much for this detailed and thoughtful response. I really appreciate you pointing out the relationship between anemia and antibody patterns, and how the high DGP IgG still supports celiac disease in my case. A gluten challenge isn’t something I feel safe attempting due to how severe my reactions were, so your suggestion about genetic testing makes a lot of sense. I’ll look into whether HLA testing is available where I live and discuss it with my doctor. I also appreciate you mentioning gastrointestinal beriberi and thiamine deficiency. This isn’t something any of my doctors have discussed with me, and given my symptoms and nutritional history, it’s definitely worth raising with them. I’ll also ask about correcting deficiencies more comprehensively, including B vitamins alongside iron. Thanks again for sharing your knowledge and taking the time to help. I’ll update the forum as I make progress.
    • knitty kitty
      Blood tests for thiamine are unreliable.  The nutrients from your food get absorbed into the bloodstream and travel around the body.  So, a steak dinner can falsely raise thiamine blood levels in the following days.  Besides, thiamine is utilized inside cells where stores of thiamine are impossible to measure. A better test to ask for is the Erythrocyte Transketolace Activity test.  But even that test has been questioned as to accuracy.  It is expensive and takes time to do.   Because of the discrepancies with thiamine tests and urgency with correcting thiamine deficiency, the World Health Organization recommends giving thiamine for several weeks and looking for health improvement.  Thiamine is water soluble, safe and nontoxic even in high doses.   Many doctors are not given sufficient education in nutrition and deficiency symptoms, and may not be familiar with how often they occur in Celiac disease.  B12 and Vitamin D can be stored for as long as a year in the liver, so not having deficiencies in these two vitamins is not a good indicator of the status of the other seven water soluble B vitamins.  It is possible to have deficiency symptoms BEFORE there's changes in the blood levels.   Ask your doctor about Benfotiamine, a form of thiamine that is better absorbed than Thiamine Mononitrate.  Thiamine Mononitrate is used in many vitamins because it is shelf-stable, a form of thiamine that won't break down sitting around on a store shelf.  This form is difficult for the body to turn into a usable form.  Only thirty percent is absorbed in the intestine, and less is actually used.   Thiamine interacts with all of the other B vitamins, so they should all be supplemented together.  Magnesium is needed to make life sustaining enzymes with thiamine, so a magnesium supplement should be added if magnesium levels are low.   Thiamine is water soluble, safe and nontoxic even in high doses.  There's no harm in trying.
    • lizzie42
      Neither of them were anemic 6 months after the Celiac diagnosis. His other vitamin levels (d, B12) were never low. My daughters levels were normal after the first 6 months. Is the thiamine test just called thiamine? 
    • knitty kitty
      Yes, I do think they need a Thiamine supplement at least. Especially since they eat red meat only occasionally. Most fruits and vegetables are not good sources of Thiamine.  Legumes (beans) do contain thiamine.  Fruits and veggies do have some of the other B vitamins, but thiamine B 1 and  Cobalamine B12 are mostly found in meats.  Meat, especially organ meats like liver, are the best sources of Thiamine, B12, and the six other B vitamins and important minerals like iron.   Thiamine has antibacterial and antiviral properties.  Thiamine is important to our immune systems.  We need more thiamine when we're physically ill or injured, when we're under stress emotionally, and when we exercise, especially outside in hot weather.  We need thiamine and other B vitamins like Niacin B 3 to keep our gastrointestinal tract healthy.  We can't store thiamine for very long.  We can get low in thiamine within three days.  Symptoms can appear suddenly when a high carbohydrate diet is consumed.  (Rice and beans are high in carbohydrates.)  A twenty percent increase in dietary thiamine causes an eighty percent increase in brain function, so symptoms can wax and wane depending on what one eats.  The earliest symptoms like fatigue and anxiety are easily contributed to other things or life events and dismissed.   Correcting nutritional deficiencies needs to be done quickly, especially in children, so their growth isn't stunted.  Nutritional deficiencies can affect intelligence.  Vitamin D deficiency can cause short stature and poor bone formation.   Is your son taking anything for the anemia?  Is the anemia caused by B12 or iron deficiency?  
    • lizzie42
      Thank you! That's helpful. My kids eat very little processed food. Tons of fruit, vegetables, cheese, eggs and occasional red meat. We do a lot of rice and bean bowls, stir fry, etc.  Do you think with all the fruits and vegetables they need a vitamin supplement? I feel like their diet is pretty healthy and balanced with very limited processed food. The only processed food they eat regularly is a bowl of Cheerios here and there.  Could shaking legs be a symptom of just a one-time gluten exposure? I guess there's no way to know for sure if they're getting absolutely zero exposure because they do go to school a couple times a week. We do homeschool but my son does a shared school 2x a week and my daughter does a morning Pre-K 3 x a week.  At home our entire house is strictly gluten free and it is extremely rare for us to eat out. If we eat at someone else's house I usually just bring their food. When we have play dates we bring all the snacks, etc. I try to be really careful since they're still growing. They also, of course, catch kids viruses all the time so I  want to make sure I know whether they're just sick or they've had gluten. It can be pretty confusing when they're pretty young to even be explaining their symptoms! 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.