Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Is It All In My Head?


julie041092

Recommended Posts

julie041092 Newbie

Hi guys,

So I'm in college right now, and even though Ive met time after time with the food supervisors here, there has not been much improvement on my options in the dining hall. I've basically been sick constantly since Ive been here, and all Ive been eating is greens with lemon juice and olive oil, plain grilled chicken breast, and fruit. Ive been more careful than ever,but my symptoms arent going away! My roomate thought that maybe it's all a psychological thing, which I think it could be. Since I've been glutinized so many times before, I think I have this mentality that EVERYTHING will have gluten in it, and its a lost cause. If I try to be more optimistic and not worry so much about it, maybe my system will get back to normal... its just not fun having constant diarrhea when sharing a bathroom with everyone in my residence hall. =[ Is it possible that its just all in my head, and Im just convincing myself that everything has gluten in it? (Btw.. I have been gluten-free for only about 5 months so is this a common thing for newbies?) I appreciate ANY responses!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



ravenwoodglass Mentor

Are you allowed to have a fridge and microwave in your room? If you are that might be the best way to go. I doubt this is in your head and you are likely getting CC'd at the dining hall or some other way. Have you checked all supplements and meds you take? Are you avoiding dairy? We often need to until we have healed. I hope this resolves soon for you as it can't be easy to keep your grades up while you are still so ill.

Cypressmyst Explorer

Its not in your head. People just don't take this stuff seriously. It is absolutely maddening! If you can not extract yourself from the situation then keep working on the food, see if you can get a meeting with the Chancellor to see if he/she would be willing to get the ball rolling for you. You are a pioneer and what you do now will pave the way for all the rest of the people with gluten issues who will surely come after you.

:hugs:

It is awful to be sooooo good and get CC'd anyway! Little else makes me so angry. Ruffles naturals potato chips got me a few days back and my gut still hasn't fully recovered. -_-

Anyway, we are here for support anytime you need it!

Skylark Collaborator

Ugh. That doesn't sound any fun. It's not likely in your head, but gluten may not be the whole story. A condition called fructose malabsorption can cause D. It's sort of like lactose intolerance but caused by fructose. If you're eating a lot of fruit, that might set it off.

This might help you figure out if that's going on.

Open Original Shared Link

Della88 Newbie

Here is the problem with cafeteria's.

You do not know what is cooked with or in what.

Meaning if you are overly sensitive then lets say they cook chicken in the same pan they cooked chicken fingers in or on the same grill and they touched and you eat the chicken.. Boom your going to react to the gluten.

It sounds like your system is really sensitive. And I know this sucks but put your food down, go see the Dean or head of the school and explain your case.

There could be small traces of gluten in dressings, sauces, additives and on grills, pans, fryers.

For Example. MacDonalds always claimed their fries were gluten and in fact they actually are, with that said though.. What they forgot to indulge is that they also cook their fries in the same greece or oil as they cook their chicken fingers.... and the bread on the chicken fingers has gluten in it.

So the gluten goes into the oil on the fries and you get sick..

Its that easy.

Stick to lettuce, greens, fruit. Try to find a few things in the gluten free section you can also nibble on like, gluten free cereal, granola snacks, crackers, these type of things you can keep in your room and if you can invest in a mini fridge you can get gluten free salad dressing, some lettuce, vegies and fruits to help tie you over.

Sorry thats the best help I can give.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,556
    • Most Online (within 30 mins)
      7,748

    Rachel Wilson
    Newest Member
    Rachel Wilson
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Scott Adams
      Your post demonstrates the profound frustration and isolation that so many in the Celiac community feel, and I want to thank you for channeling that experience into advocacy. The medical gaslighting you endured for decades is an unacceptable and, sadly, a common story, and the fact that you now have to "school" your own GI specialist speaks volumes about the critical lack of consistent and updated education. Your idea to make Celiac Disease a reportable condition to public health authorities is a compelling and strategic one. This single action would force the system to formally acknowledge the prevalence and seriousness of the disease, creating a concrete dataset that could drive better research funding, shape medical school curricula, and validate the patient experience in a way that individual stories alone often cannot. It is an uphill battle, but contacting representatives, as you have done with Adam Gray, is exactly how change begins. By framing it as a public health necessity—a matter of patient safety and protection from misdiagnosis and neglect—you are building a powerful case. Your voice and your perseverance, forged through thirty years of struggle, are exactly what this community needs to ensure that no one else has to fight so hard just to be believed and properly cared for.
    • Scott Adams
      I had no idea there is a "Louisville" in Colorado!😉 I thought it was a typo because I always think of the Kentucky city--but good luck!
    • Scott Adams
      Navigating medication safety with Celiac disease can be incredibly stressful, especially when dealing with asthma and severe allergies on top of it. While I don't have personal experience with the HealthA2Z brand of cetirizine, your caution is absolutely warranted. The inactive ingredients in pills, known as excipients, are often where gluten can be hidden, and since the FDA does not require gluten-free labeling for prescription or over-the-counter drugs, the manufacturer's word is essential. The fact that you cannot get a clear answer from Allegiant Health is a significant red flag; a company that is confident its product is gluten-free will typically have a customer service protocol to answer that exact question. In situations like this, the safest course of action is to consider this product "guilty until proven innocent" and avoid it. A better alternative would be to ask your pharmacist or doctor to help you identify a major national brand of cetirizine (like Zyrtec) whose manufacturer has a verified, publicly stated gluten-free policy for that specific medication. It's not worth the risk to your health when reliable, verifiable options are almost certainly available to you. You can search this site for USA prescriptions medications, but will need to know the manufacturer/maker if there is more than one, especially if you use a generic version of the medication: To see the ingredients you will need to click on the correct version of the medication and maker in the results, then scroll down to "Ingredients and Appearance" and click it, and then look at "Inactive Ingredients," as any gluten ingredients would likely appear there, rather than in the Active Ingredients area. https://dailymed.nlm.nih.gov/dailymed/   
    • Scott Adams
      What you're describing is indeed familiar to many in the Celiac community, especially in the early stages of healing. When the intestinal villi are damaged from Celiac disease, they struggle to properly digest and absorb fats, a condition known as bile acid malabsorption. This can cause exactly the kind of cramping and spasms you're seeing, as undigested fats can irritate the sensitive gut lining. It is highly plausible that her reactions to dairy and eggs are linked to their higher fat content rather than the proteins, especially since she tolerates lean chicken breast. The great news is that for many, this does improve with time. As her gut continues to heal on a strict gluten-free diet, her ability to produce the necessary enzymes and bile to break down fats should gradually return, allowing her to slowly tolerate a wider variety of foods. It's a slow process of healing, but your careful approach of focusing on low-fat, nutrient-dense foods like seeds and avocado is providing her system the best possible environment to recover. Many people with celiac disease, especially those who are in the 0-2 year range of their recovery, have additional food intolerance issues which could be temporary. To figure this out you may need to keep a food diary and do an elimination diet over a few months. Some common food intolerance issues are dairy/casein, eggs, corn, oats, and soy. The good news is that after your gut heals (for most people who are 100% gluten-free this will take several months to two years) you may be able to slowly add some these items back into your diet after the damaged villi heal. This article may be helpful: Thank you for sharing your story—it's a valuable insight for other parents navigating similar challenges.
    • Beverage
      I had a very rough month after diagnosis. No exaggeration, lost so much inflammatory weight, I looked like a bag of bones, underneath i had been literally starving to death. I did start feeling noticeably better after a month of very strict control of my kitchen and home. What are you eating for breakfast and lunch? I ignored my doc and ate oats, yes they were gluten free, but some brands are at the higher end of gluten free. Lots of celics can eat Bob's Red Mill gluten-free oats, but not me. I can now eat them, but they have to be grown and processed according to the "purity protocol" methods. I mail order them, Montana Gluten-Free brand. A food and symptoms and activities log can be helpful in tracking down issues. You might be totally aware, but I have to mention about the risk of airborne gluten. As the doc that diagnosed me warned . . Remember eyes, ears, nose, and mouth all lead to your stomach and intestines.  Are you getting any cross contamination? Airborne gluten? Any pets eating gluten (they eat it, lick themselves, you pet them...)? Any house remodeling? We live in an older home, always fixing something. I've gotten glutened from the dust from cutting into plaster walls, possibly also plywood (glues). The suggestions by many here on vitamin supplements also really helped me. I had some lingering allergies and asthma, which are now 99% gone. I was taking Albuterol inhaler every hour just to breathe, but thiamine in form of benfotiamine kicked that down to 1-2 times a day within a few days of starting it. Also, since cutting out inflammatory seed oils (canola, sunflower, grapeseed, etc) and cooking with real olive oil, avocado oil, ghee, and coconut oil, I have noticed even greater improvement overall and haven't used the inhaler in months! It takes time to weed out everything in your life that contains gluten, and it takes awhile to heal and rebuild your health. At first it's mentally exhausting, overwhelming, even obsessive, but it gets better and second nature.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.