Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Advice For My Sisters


eatlovehope

Recommended Posts

eatlovehope Rookie

Before Christmas I had a positive TTG IGA blood test & now have a endo booked in next week to confirm. I don't know how long I have had this maybe years, my main symptoms have been bloating & conspitation & probably a lot more I will realise once I go gluten free next week.

I have 2 sisters who both have been tested and both had negative blood tests, which I was shocked with. If anyone was to have Celiac in our family I would say both of them would because of the more extremely symptoms they have.

Sister 1 basically always has gas & has to go to the toilet pretty much after she has eaten. She has a large stomach & always looks bloated (does carry a bit of weight though). However she is 8 weeks pregnant & seems to be happy with the neg blood test result & happy to leave at that.

Sister 2 has extreme diarrhoea & stomach cramps after eating. Sometimes 3 times a day. Seems to be triggered more after having lactose. SHe too has the bloated stomach. She has 3 kids, 2 of them have distorted stomach.

The Dr's we have been dealing with in Australia are extremely reluctant to do a endo unless their has been a positive blood test. So sister 2 is going to trial a gluten free diet to see if her symptoms improve. How long would you suggest that she do a trial for?

Funny enough my mum just recently has been having diarrhorea 3 times a day too but I think that me going gluten free is like a diet fab I want to take. Have tried to express the seriousness of it all but she seems disinterested.

Would love to hear your thoughts?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



mushroom Proficient

If sister No.1 is pregnant, the hormones of pregnancy could have affected her results (see the discussion had here:)

This obviously would not apply to sister No.2. I think her decision to try the diet is a good one.

For mom, I think it is probably a case of wait and see. If you were to all try the diet and benefit from it, then she might think about it too.

luvs2eat Collaborator

My sister, who's had lifelong excezma and many food allergies, tested negative (she had to INSIST on being given the blood test), but admits that her gut and her overall wellbeing is SO much better when she simply cuts out obvious gluten (bread, etc). She's not willing to fully embrace a gluten-free lifestyle... she lives in France, where they make the best bread on earth. I can't say as I blame her!

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - cristiana replied to KathyR37's topic in Coping with Celiac Disease
      4

      New here

    2. - trents replied to KathyR37's topic in Coping with Celiac Disease
      4

      New here

    3. - Theresa2407 replied to Theresa2407's topic in Gluten-Free Foods, Products, Shopping & Medications
      2

      Probiotics

    4. - KathyR37 replied to KathyR37's topic in Coping with Celiac Disease
      4

      New here

    5. - Scott Adams replied to KathyR37's topic in Coping with Celiac Disease
      4

      New here


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,814
    • Most Online (within 30 mins)
      7,748

    ColbyBowlin
    Newest Member
    ColbyBowlin
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • cristiana
      Hi @KathyR37 and a very warm welcome here.  I am so very sorry that you are going through all of this. I just wanted to check, have you ever been tested for any other gastrointestinal conditions? Cristiana  
    • trents
      @KathyR37, I would suspect that in addition to gluten intolerance, you have other food intolerances/sensitivities. This is very common in the celiac community. The most common offenders are oats, dairy, soy, corn and eggs with dairy and oats being the big two. Have you considered this? Have you tried keeping a food diary to detect patterns?
    • Theresa2407
      thank you for your advice.   I have always taken them and I use Stonehedge because they are in a glass bottle, but don't have to be refrigerated.  I also like they are 3rd party tested and state gluten free. But you never know if something better has come alone over the years.
    • KathyR37
      Thank you for your response. I have already learned about the info you sent but i appreciate your effort. I am the only one in my family cursed by this disease. I have to cook for them too. I make sure that my utensils are free of gluten and clean after using them for other food. I use non-porous pots and pans and  gloves when cooking for them. One huge problem I have is a gag reflex out of this world and if something doesn't taste good it is not going down. Most commercially made breads and such taste like old cardboard.Pastas are about the same. I did find one flour that I like and use it regularly, but it is so expensive! All gluten free food is way more expensive. I only eat twice a day because I cannot afford to buy all that. We live on a very low income so my food purchases are quite limited.
    • Scott Adams
      What you've described—the severe weight loss, the cycle of medications making things worse, and the profound fear of eating before leaving the house—is a heavy burden to carry for 15 years. It is absolutely not your fault. While everyone's journey with celiac is different, the struggles with the learning curve, social isolation, and dietary grief are feelings many in the community know all too well. Your question about whether you should just eat what you want and manage the symptoms is a heartbreaking one, born from years of frustration. It's crucial to know that the diarrhea is a sign of ongoing damage to your small intestine from gluten, and simply managing the symptom with Imodium doesn't stop that internal harm or the risk of other complications. The fact that you are still getting sick within an hour of eating, even while trying to be gluten-free, is a huge red flag that something isn't right. This could be due to cross-contamination in your kitchen (e.g., using a shared toaster, colander, or condiment jars), hidden gluten in foods, or the possibility of another concurrent condition like refractory celiac disease. Don't give up!  This article has some detailed information on how to be 100% gluten-free, so it may be helpful (be sure to also read the comments section.):    
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.