Relief

[AmyE]

I have dealt with migraines, acne and gi issues for 8 years now and I'm 33. After many neuro visits, dr visits, meds that made me nutty and a stint with a chiropractor--I solved my own problem am went gluten-free---I didn't know life could be so good!!I have a negative blood panel but I had been gluten-free for a week prir. I am now concerned about my 8/5 year old boys--they are the size of a child 3 years younger than they are, my oldest started having seizures with nothing showing up in his 2 eeg's. I am dealing with getting a

panel done but butting heads with their pediatrician--their dad and I are divorced and I fear he won't be as strident about a gluten-free diet since doesn't deal with any issues that I do---just wanted to introduce myself.

[mushroom]

Hi Amy, and welcome to the board.

Yes, many of us do self-diagnose because no one will do it for us. If gluten free makes you feel better it matters not what the tests say - they are notoriously inaccurate.

I would be concerned about my boys, too, if I were you. Failure to thrive is a common celiac symptom, and my baby brother developed a seizure disorder which was very nonspecific too, and neurological symptoms are a common manifestation of celiac. Keep insisting to your pediatrician that they be tested. It is hard when parents don/t agree/cooperate on the diet and I'm afraid I don't have any advice for you on how to handle your ex's time spent with them. Perhaps when he sees them grow (which I am pretty sure they will if you remove the gluten) he will see how much it is to their benefit to keep them gluten free. Anyway, one step at a time - get the tests first.