Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

New W/fibromyalgia, Wheat, Dairy And Of Course Celiac

Noche22

By Noche22
in Introduce Yourself / Share Stuff

Recommended Posts

Noche22 Rookie
Noche22
Posted

Hello,

I am new to this to this forum. Only 5 days ago I found out I have celiac. Was told to Immediately stop wheat, gluten and dairy. My meeting with the doctor is on thud coming Wednesday, so I have been very anxious. I suffer from many things, one being fibromyalgia. Learning celiac has been confusing so far. Hard to know where to begin.

So far I have stopped eating gluten, wheat and dairy. I am suffering migraine for the 3rd day now. Is that normal? I was told I had severe gluten allergy, so not sure if my body is going through shock.

Can't wait to read through the forum.

Christa

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


mushroom Proficient
mushroom
Posted

Hi Christa, and welcome to the board.

Yes, the diagnosis can be a bit of a shock at first, but when you realize it is a key to a whole new, healthier life, it begins to take perspective. Does it require work?? Yes it does, but it is probably the most rewarding work you will ever do in our life. It will change your life, for the better, and it is well worth the effort.

The migraines you are experiencing right now are probably due to gluten withdrawal. Gluten is like an opioid and takes a week or two to get out of your system. so do not be alarmed. Most people go through some kind of withdrawal from gluten.

Fibromyalgia-type symptoms are very common with celiac and will usually resolve with a gluten free diet, so be patient and they will probably go away.

I hope your appointment on Wednesday will clarify some things for you. Any questions you you have left feel free to bring to us. In the meantime, read as much as you can on this board - it is a mine of information on how to start the diet, degluten your kitchen, weed out all the hidden gluten in your life... you will find it invaluable. Read, read, read, and ask about anything that is not clear.

Welcome to a healthier way of living for you, and don't be a stranger. Let us know how you are doing and what problems you are having and I am sure someone here will be able to offer some helpful advice. It is really not as bad as it seems at first, and once you get your mind around it and find out how much better you can feel, it is a no-brainer. :)

GFinDC Veteran
GFinDC
Posted

It is good to start with a whole foods diet. Learning to cook is pretty important if you are going to be gluten-free. Making you own food will help you identify ingredients that cause problems too. Basically avoid anything in boxes for awhile, or pre-made meals. Once you have the hang of eating gluten-free and cooking your own food, you can experiment with trying processed foods (gluten-free). Some people have problems with dairy and soy so it might be good to do a trial elimination of them to see if you feel better. Eating simple whole foods at home is a good way to start.

Noche22 Rookie
Noche22
Posted
  • Author

Haha, I see all my spelling errors, sorry. Typing on the iPad (auto spellcheck)

Thank you for your response. This site seems to be where I need to be. I am glad my migraines are a side effect of withdrawals. Today again, it is still here :(. Would it be wise to separate my foods from my children and husband? Also, should I get my children tested? They are 4, 5 and 13.

mushroom Proficient
mushroom
Posted

Yes, and yes.

Cross-contamination is the major way we are glutened accidentally, whether at home or in a restaurant. You should have a separate (preferably top) shelf for your foods in the pantry and refrigerator, and you should have a dedicated counter space for food preparation that gluten does not touch. Your 4 and 5 year old are going to take a bit of training in how to keep mommy safe. You will need to have your own specically marked jars of peanut butter and spreads, anything that a knife can go into and drop crumbs in. You will need your own toaster as that is a major source of cross-contamination. You will need a separate skillet and colander for yourself, and if you use wood or plastic utensils you will not be able to share those either, all this because it is impossible to get the gluten out/off them. Everyone in the house, but especially you, will have to wash their hands a lot more frequently, to stop the spread of gluten on handles, doorknobs. It is often helpful to prepare your food on a paper towel on the counter to prevent contamination. You will have to insist your husband brush his teeth before kissing :o and beware of kissing gluteny baby cheeks too! It is a big adjustment to make.

Because celiac disease is genetically based, yes, your children should be tested for it, and even if negative now they should be retested periodically and watched for symptoms.

Noche22 Rookie
Noche22
Posted
  • Author

Wow, I would not have thought of those things. Thank you! I am finding myself overwhelmed. Wednesday cannot come soon enough for me so I can talk to my doctor and find out exactly what is going on. There was a couple things that came up abnormal on my tests and we are going over a new diet and such. Also, how to deal with with the fibromyalgia(have had it since about 19 years old....34 now)

I can't thank you enough for giving me tips and helping me!

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,546
    • Most Online (within 30 mins)
      7,748
    KimberlyAnne76
    Newest Member
    KimberlyAnne76
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Beverage
      Diagnosed celiac for 1-2 months ago and everything makes me bloated.

      By Beverage · Posted

      I had a very rough month after diagnosis. No exaggeration, lost so much inflammatory weight, I looked like a bag of bones, underneath i had been literally starving to death. I did start feeling noticeably better after a month of very strict control of my kitchen and home. What are you eating for breakfast and lunch? I ignored my doc and ate oats, yes they were gluten free, but some brands are at the higher end of gluten free. Lots of celics can eat Bob's Red Mill gluten-free oats, but not me. I can now eat them, but they have to be grown and processed according to the "purity protocol" methods. I mail order them, Montana Gluten-Free brand. A food and symptoms and activities log can be helpful in tracking down issues. You might be totally aware, but I have to mention about the risk of airborne gluten. As the doc that diagnosed me warned . . Remember eyes, ears, nose, and mouth all lead to your stomach and intestines.  Are you getting any cross contamination? Airborne gluten? Any pets eating gluten (they eat it, lick themselves, you pet them...)? Any house remodeling? We live in an older home, always fixing something. I've gotten glutened from the dust from cutting into plaster walls, possibly also plywood (glues). The suggestions by many here on vitamin supplements also really helped me. I had some lingering allergies and asthma, which are now 99% gone. I was taking Albuterol inhaler every hour just to breathe, but thiamine in form of benfotiamine kicked that down to 1-2 times a day within a few days of starting it. Also, since cutting out inflammatory seed oils (canola, sunflower, grapeseed, etc) and cooking with real olive oil, avocado oil, ghee, and coconut oil, I have noticed even greater improvement overall and haven't used the inhaler in months! It takes time to weed out everything in your life that contains gluten, and it takes awhile to heal and rebuild your health. At first it's mentally exhausting, overwhelming, even obsessive, but it gets better and second nature.
    • Jsingh
      Protein or fat?

      By Jsingh · Posted

      Hi,  I care for my seven year old daughter with Celiac. After watching her for months, I have figured out that she has problem with two kinds of fats- animal fat and cooking oils. It basically makes her intestine sore enough that she feels spasms when she is upset. It only happens on days when she has eaten more fat than her usual every day diet. (Her usual diet has chia seeds, flaxseeds, and avocado/ pumpkin seeds for fat and an occasional chicken breast.) I stopped using cooking oils last year, and when I reintroduced eggs and dairy, both of which I had held off for a few months thinking it was an issue of the protein like some Celiac patients habe mentioned to be the case, she has reacted in the same fashion as she does with excess fats. So now I wonder if her reaction to dairy and eggs is not really because of protein but fat.   I don't really have a question, just wondering if anyone finds this familiar and if it gets better with time.  Thank you. 
    • Chanda Richard
      High Cost of Gluten-Free Foods

      By Chanda Richard · Posted

      Hello, My name is Chanda and you are not the only one that gose through the same things. I have found that what's easiest for me is finding a few meals each week that last. I have such severe reactions to gluten that it shuts my entire body down. I struggle everyday with i can't eat enough it feels like, when I eat more I lose more weight. Make sure that you look at medication, vitamins and shampoo and conditioner also. They have different things that are less expensive at Walmart. 
    • petitojou
      Frequent nausea after gluten-free diet

      By petitojou · Posted

      Thank you so much! I saw some tips around the forum to make a food diary and now that I know that the community also struggles with corn, egg and soy, the puzzle pieces came together! Just yesterday I tried eating eggs and yes, he’s guilty and charged. Those there are my 3 combo nausea troublemakers. I’m going to adjust my diet ☺️ Also thank you for the information about MCAS! I’m from South America and little it’s talked about it in here. It’s honestly such a game changer now for treatment and recovery. I know I’m free from SIBO and Candida since I’ve been tested for it, but I’m still going to make a endoscopy to test for H. Pylori and Eosinophilic esophagitis (EoE). Thank you again!! Have a blessed weekend 🤍
    • knitty kitty
      Unusual bright yellow but odourless discharge

      By knitty kitty · Posted

      Yes, I, too, have osteoporosis from years of malabsorption, too.  Thiamine and magnesium are what keep the calcium in place in the bones.  If one is low in magnesium, boron, selenium, zinc, copper, and other trace minerals, ones bone heath can suffer.  We need more than just calcium and Vitamin D for strong bones.  Riboflavin B 2, Folate B 9 and Pyridoxine B 6 also contribute to bone formation and strength.   Have you had your thyroid checked?  The thyroid is important to bone health as well.  The thyroid uses lots of thiamine, so a poorly functioning thyroid will affect bone heath.  
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.