Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Probiotics--Really Have Helped Me, Anyone Else?


msharp

Recommended Posts

msharp Newbie

I have celiac disease, and I have also always had a bad reaction to dairy. I have been completely gluten free for over a year now, and was dairy free for the last 4 months or so.

Symptoms I get with dairy--is sinus pressure, headache, postnasal drip (hayfever like) as well as cognitive dysfuntion i.e I feel fuzzy headed and a little depressed. Reaction to gluten is similar but worse.

So...I went for the first time to a homeopath out of curiosity and a little desperation because I was having such a hard time avoiding diary especially, and was still feeling cruddy all the time.

He put me on at least three different types of probiotics--and amazingly it has really helped. Within a couple of weeks, a found that I tolerated dairy completely again. And I feel so much better/normal. I also think I'm much less senstive to gluten (i.e with cross contamination). I haven't felt any glutenized symptoms at all really. I haven't been so brave as to really go back on wheat or anything. But I did get silly one night and at a piece of pizza. I had a nasty night of vomiting...but the next day I didn't have the usual hangover. (I normally feel totally "black" the next day. So even that, really was actually an improvement. At least on my neuro system.

Anyone else tried this? Or experienced this?

Maybe it will help you.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



jlee2 Rookie

Probiotics have helped me a lot. I feel a lot better when I take them regularly. I am currently taking them as a preventative in anticipation of the antibiotics they are going to put me on after my wisdom teeth surgery this weekend.

I am glad you are feeling better -- however I would not reccomend re introducing gluten of any amount back into your diet. If you have been diagnosed true celiac and not just gluten intolerant consuming gluten regularly could cause life long damage and further issues.

WheatChef Apprentice

Decent probiotics do a good job of actually decreasing the permeability of your intestinal lining. This is why probiotics are imperative for celiacs to take, wheat increases the permeability letting through all sorts of nasty stuff (like even more gluten) but these probiotics can help cut down somewhat on that. It's also been shown before that celiacs on average have absolute piss-poor gut bacteria populations compared to someone who's not affected by gluten. Since those little bacteria are an integral part of how your body absorbs nutrients they should be considered one of the most important "vitamins" you take.

willabec Contributor

Decent probiotics do a good job of actually decreasing the permeability of your intestinal lining. This is why probiotics are imperative for celiacs to take, wheat increases the permeability letting through all sorts of nasty stuff (like even more gluten) but these probiotics can help cut down somewhat on that. It's also been shown before that celiacs on average have absolute piss-poor gut bacteria populations compared to someone who's not affected by gluten. Since those little bacteria are an integral part of how your body absorbs nutrients they should be considered one of the most important "vitamins" you take.

what probiotics do you all take? just curious....i was taking digestive advantage(lactose formula) for about 1.5 months....then just switched to align the other day. i know alot of them are trial and error if they even do work.....

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - trents replied to Atl222's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      6

      Increased intraepithelial lymphocytes after 10 yrs gluten-free

    2. - cristiana replied to Atl222's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      6

      Increased intraepithelial lymphocytes after 10 yrs gluten-free

    3. 0

      Celiac Friendly Sports Camps - Academy Camps - Virtual Open House

    4. - lizzie42 posted a topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      0

      Low iron and vitamin d

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,220
    • Most Online (within 30 mins)
      7,748

    kimchi1
    Newest Member
    kimchi1
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • cristiana
    • trents
      Cristiana, that sounds like a great approach and I will be looking forward to the results. I am in the same boat as you. I don't experience overt symptoms with minor, cross contamination level exposures so I sometimes will indulge in those "processed on equipment that also processes wheat . . ." or items that don't specifically claim to be gluten free but do not list gluten containing grains in their ingredient list. But I always wonder if I am still experiencing sub acute inflammatory reactions. I haven't had any celiac antibody blood work done since my diagnosis almost 25 years ago so I don't really have any data to go by.   
    • cristiana
      I've been reflecting on this further. The lowest TTG I've ever managed was 4.5 (normal lab reading under 10).  Since then it has gone up to 10.   I am not happy with that.  I can only explain this by the fact that I am eating out more these days and that's where I'm being 'glutened', but such small amounts that I only occasionally react. I know some of it is also to do with eating products labelled 'may contain gluten' by mistake - which in the UK means it probably does! It stands to reason that as I am a coeliac any trace of gluten will cause a response in the gut.  My villi are healed and look healthy, but those lymphocytes are present because of the occasional trace amounts of gluten sneaking into my diet.   I am going to try not to eat out now until my next blood test in the autumn and read labels properly to avoid the may contain gluten products, and will then report back to see if it has helped!
    • lizzie42
      Hi, I posted before about my son's legs shaking after gluten. I did end up starting him on vit b and happily he actually started sleeping better and longer.  Back to my 4 year old. She had gone back to meltdowns, early wakes, and exhaustion. We tested everything again and her ferritin was lowish again (16) and vit d was low. After a couple weeks on supplements she is cheerful, sleeping better and looks better. The red rimmed eyes and dark circles are much better.   AND her Ttg was a 3!!!!!! So, we are crushing the gluten-free diet which is great. But WHY are her iron and vit d low if she's not getting any gluten????  She's on 30mg of iron per day and also a multivitamin and vit d supplement (per her dr). That helped her feel better quickly. But will she need supplements her whole life?? Or is there some other reason she's not absorbing iron? We eat very healthy with minimal processed food. Beef maybe 1x per week but plenty of other protein including eggs daily.  She also says her tummy hurts every single morning. That was before the iron (do not likely a side effect). Is that common with celiac? 
    • Scott Adams
      Celiac disease is the most likely cause, but here are articles about the other possible causes:    
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.