Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Gluten-withdrawal?


Jonesy

Recommended Posts

Jonesy Apprentice

:blink:

I've been gluten free for only 2 weeks. My intestines are feeling so much more comfortable and I'm grateful to have found the answer to my weight loss and inability to gain it back. My villi were totally flat. I am 77 years old, and Dr. would not even venture a guess how long I've had this, or what triggered it.

I went gluten-free 2 days after the diagnosis, to the best of my knowledge. I had excellent help from a member of the local Celiac Support group, who spent 2 hours with me going over literature, making recommendations and teaching me the basics. Since then I purchased the CSA Gluten-Free Product Listing and the Guide through the Medicine cabinet. I also have Danna Korns book Wheat-free, Gluten-free.

My problem is that ever since avoiding gluten I have felt very very tired. I get sleepy and weary. I've had to slow my activities down, and have trouble getting my daily duties accomplished. I'm wondering if this is a common reaction.

I seem to feel full enough after the evening regular meals, which have always been free of gluten, because DH is a plain meat and potatoes man. We always add a healthy portion of veggies to that. I've had to make changes in the breakfast and lunch foods, and that's been a trial because I was eating cereals, toast and flour tortillas. refried spaghetti and other food laden with gluten.

I think I am getting enough protein and a good balance of protein, fat and carbohydrates because I've been on a heart healthy diet since a heart attack 6 years ago.

I'd like to hear what other reactions people have had to the absence of gluten. My Dr. assured me that on the gluten-free diet I would gain weight and have more energy. So I am mystified why I'm having less energy instead of more. There must be a reason - and of course, there is the chance that it's totally unrelated to the gluten-free diet.

Thanks for any comments.

Maryellen


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



KaitiUSA Enthusiast

You can have gluten withdrawal symptoms. It is quite an adjustment for your body to go through and it takes a little time to get used to that. Also, it may take a while for symptoms to go away so definitely don't think it will be a quick fix because you don't want to set yourself up to be disappointed.

When I first went gluten free I was really tired and I was moody alot I guess because of the lack of gluten and that my body thought it needed gluten.

Guest nini

I most definitely had gluten withdrawal symptoms... it was almost like my body was addicted to it even though it was truly poison to me. I had 34 years of damage to undo, so although I am much better 2 years into it, I still have symptoms. Even with my best efforts I still manage to get glutened on occasion. You just do the best you can

ianm Apprentice

I had some withdrawal symptoms but they did go away.

steve-o Apprentice

I had some major withdrawal problems too. It put whole new meaning to the phrase "carbohydrate addict". For me, the withdrawal lasted about 3 to 4 weeks.

I was also really tired all the time, but I found that I felt much better after I started to take a good multivitamin. Getting some exercise also helped quite a bit...it's hard to get started with exercise when you feel so lousy, but you'll feel much better for it.

Also, make sure you're eating enough. It's easy to take in too few calories on a gluten-free diet.

Good luck!

ianm Apprentice

Exercise is a big help. It was real hard for me to get going with it in the beginning but I now experience fatigue if I don't exercise.

Jonesy Apprentice

Thanks to all who responded. :D

This is a great support site - everyone is so helpful.

It helps a lot to know that others have felt withdrawal from gluten in the same way and that makes me feel better already. :)

My best to all of you.

Regards

Maryellen


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,163
    • Most Online (within 30 mins)
      7,748

    Estee
    Newest Member
    Estee
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • DAR girl
      Looking for help sourcing gluten-free products that do not contain potato or corn derived ingredients. I have other autoimmune conditions (Psoriatic Arthritis and Sjogrens) so I’m looking for prepared foods as I have fatigue and cannot devote a lot of time to baking my own treats. 
    • Scott Adams
      I am so sorry you're going through this. It's completely understandable to feel frustrated, stressed, and disregarded after such a long and difficult health journey. It's exhausting to constantly advocate for yourself, especially when you're dealing with so many symptoms and positive diagnoses like SIBO, while still feeling unwell. The fact that you have been diligently following the diet without relief is a clear sign that something else is going on, and your doctors should be investigating other causes or complications, not dismissing your very real suffering. 
    • Oldturdle
      It is just so sad that health care in the United States has come to this.  Health insurance should be available to everyone, not just the healthy or the rich.  My heart goes out to you.  I would not hesitate to have the test and pay for it myself.  My big concern would be how you could keep the results truly private.  I am sure that ultimately, you could not.  A.I. is getting more and more pervasive, and all data is available somewhere.  I don't know if you could give a fake name, or pay for your test with cash.  I certainly would not disclose any positive results on a private insurance application.  As I understand it, for an official diagnosis, an MD needs to review your labs and make the call.  If you end up in the ER, or some other situation, just request a gluten free diet, and say it is because you feel better when you don't eat gluten.      Hang in there, though.  Medicare is not that far away for you, and it will remove a lot of stress from your health care concerns.  You will even be able to "come out of the closet" about being Celiac!
    • plumbago
      Yes, I've posted a few times about two companies: Request a Test and Ulta Labs. Also, pretty much we can all request any test we want (with the possible exception of the N protein Covid test and I'm sure a couple of others) with Lab Corp (or Pixel by Lab Corp) and Quest. I much prefer Lab Corp for their professionalism, ease of service and having it together administratively, at least in DC. And just so you know, Request a Test uses Lab Corp and Quest anyway, while Ulta Labs uses only Quest. Ulta Labs is cheaper than Request a Test, but I am tired of dealing with Quest, so I don't use them so much.
    • Scott Adams
      PS - I think you meant this site, but I don't believe it has been updated in years: http://glutenfreedrugs.com/ so it is best to use: You can search this site for prescriptions medications, but will need to know the manufacturer/maker if there is more than one, especially if you use a generic version of the medication: To see the ingredients you will need to click on the correct version of the medication and maker in the results, then scroll down to "Ingredients and Appearance" and click it, and then look at "Inactive Ingredients," as any gluten ingredients would likely appear there, rather than in the Active Ingredients area. https://dailymed.nlm.nih.gov/dailymed/   
×
×
  • Create New...