Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Biopsy Questions!


Booseebean

Recommended Posts

Booseebean Newbie

My doctor called me today saying that they need to schedule me for a biopsy to check for the damage that celiac may have done. They said its not manditory but strongly encourages it. Has anyone had one? What do they do? Does it hurt? Are you awake or asleep? About how long does the whole process take? Any risks involved? Can someone be there in the room with me when they do it? I HATE it when they have to have blood taken every appointment so am very fearful of how I'm gonna handle it if I have to have one. Any pro's or con's if I decide to or not to have one?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



divamomma Enthusiast

My daughter had biopsy/scope last week. The whole process took about 10 minutes. She was given IV sedation and fell asleep very quickly. They put a camera down the throat and look for damage. They also will take samples of the tissue to look for damage. Sometimes the damage can be seen by the scope itself but often it is only visible under microscope. She was a bit tired when she woke up but could eat and drink. She also had a bit of a sore throat for a few hours after. Most doctors will not confirm celiac without a biopsy.

shopgirl Contributor

It doesn't hurt a bit. They give you cold medication like drugs that make you sleepy

okieinalaska Apprentice

I have my endoscopy (and colonoscopy) tomorrow so I will let you know how it goes! : )

plantime Contributor

They gave me some Benadryl, sprayed some nasty stuff down my throat, then whatever drug they put in my IV put me to sleep. I don't remember anything about the rest of the day except riding in a wheelchair in the elevator, and waking up in my recliner at home. I felt no pain or discomfort, other than that nasty spray.

shopgirl Contributor

The spray numbs your throat. My doctor was going to skip it with me but I have such a ridiculous gag reflex — yawning sets it off — that I asked for it. It tastes a little like rotten bananas and goes away quickly.

But I realize now that I was so out of it, I wasn't about to be gagging on the tube anyway. :)

Sunshine411 Newbie

I have been on a gluten-free diet & have gotten a blood test. I still have to wait a week for the results though... The doctor said something about if this one thing is high enough I won't need a biopsydone but I can't remember what it was called does anybody know? I was wondering though can they put you to sleep before you get the iv done because I already get freaked out just with needles any thoughts? Sorry if my spelling is bad. I would appreciate some replies. Thank you! :)


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



okieinalaska Apprentice

Had mine yesterday and the actual procedure was a breeze! It was the prep that was the worst part.

They do not put you to sleep before the iv, that's how they give you the stuff that puts you to sleep.

They did put me to sleep before they numbed my throat and did everything else though.

Honestly except for being sleepy afterwards I felt great and didn't remember anything. I felt so good I actually wondered if they had done anything to me, LOL.

LDJofDenver Apprentice

It doesn't hurt, and barely felt putting in the IV and whammo, you're out. You most likely won't even know it's been done! You'll be on your way out before you think they even started.

My primary care doc said I didn't need an endoscopy because my blood work was positive for celiac.

However, my GI doc strongly disagreed. She said there are many reasons celiacs should have the endoscopy -- not just to confirm what blood tests indicate.

We (celiacs) often have had years of stomach upset, vomiting, reflux, etc. and during endoscopy they also examine the esophagus for damage or changes from stomach acid, and look for damage in the stomach, test for h-pylori, and look for certain markers, etc.

It's like getting the whole picture of your disease. Personally, I think it's a very worthwhile procedure to have done.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Scott Adams replied to nanny marley's topic in Related Issues & Disorders
      5

      Manitol and mri

    2. - nanny marley replied to nanny marley's topic in Related Issues & Disorders
      5

      Manitol and mri

    3. - nanny marley replied to nanny marley's topic in Related Issues & Disorders
      5

      Manitol and mri

    4. - Scott Adams replied to RDLiberty's topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Toothpaste question.

    5. - Scott Adams replied to Theresa2407's topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Probiotics


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,790
    • Most Online (within 30 mins)
      7,748

    Lori Jean
    Newest Member
    Lori Jean
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Scott Adams
      It looks like "mannite" is another name for "mannitol": https://en.wikipedia.org/wiki/Mannitol You are correct that it can trigger IBS-like symptoms, as we recently did an article on this: I'm not sure if there is a way around this, as it is likely needed for the test. Perhaps contact your doctor to see if there might be an alternative?
    • nanny marley
      Oral drink: You will be given a solution of mannitol mixed with water to drink over a period of about 30-60 minutes this is what it says it is ,?
    • nanny marley
      Brilliant thankyou for the information I will contact them tomorrow, I was just concerned because I'm already in a bowel flare too , and I didn't want to take anything that would cause me more issues , especially with the way sweeteners make be feel I've had a really bad throat from this type of stuff before , and it upsets my digestive system too and I have a wedding in a week 😳
    • Scott Adams
      There is no scientific evidence to suggest that hydrated silica or its relative, silicon dioxide, triggers a celiac-specific immune response or causes intestinal damage in individuals with the condition. The concern you likely encountered online is a common misconception. Here’s the key distinction: the protein in gluten (gliadin) is what causes the autoimmune reaction in celiac disease. Hydrated silica and silicon dioxide are minerals, chemically inert compounds of silicon and oxygen, and are completely unrelated to gluten proteins. They are widely used as abrasives in toothpaste and anti-caking agents in food powders because they are stable and non-reactive. While any individual can have a unique sensitivity to any substance, there is no mechanism by which these silica compounds would mimic gluten or exacerbate celiac disease. Your diligence in using a certified gluten-free toothpaste is the correct and most important step, as it eliminates the risk of cross-contamination with wheat-derived ingredients like starch. Based on current scientific understanding, the hydrated silica in your toothpaste is not an issue for your celiac management.
    • Scott Adams
      There is no single "best" probiotic brand universally recommended for celiac disease. The goal of a probiotic in this context is to help support the gut microbiome, which can be disrupted by the damage caused by gluten exposure. The most important factor is not the brand name, but ensuring the product is certified gluten-free, as some probiotics use wheat-derived starches or are produced in facilities that handle gluten, posing a cross-contamination risk. Furthermore, the specific strains of bacteria can matter; some research suggests strains like Lactobacillus and Bifidobacterium may be beneficial, but individual responses vary greatly. Because the supplement industry is not tightly regulated, choosing a reputable brand that undergoes third-party testing for purity and potency is key. 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.