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One Article For Hubby

snifter

By snifter
in Coping with Celiac Disease

Recommended Posts

snifter Apprentice
snifter
Posted

Ok I need your help. If you had ONE article to show your husband what would you recommend?

Something like- so your wife has just been diagnosed with celiac ( and possibly your child later)

Maybe something with a little funny, not to much medical terminology, but maybe stressing the importance of all of this!!! Maybe talking about a gluten free kitchen, no he does not have to eat gluten free but he doesn't seem to understand contamination.

My hubby doesn't seem to think this is that big a deal.

I need sort of a jump start to help with all the changes coming his way!!

What would you suggest?

Thank you

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ladymiss Rookie
ladymiss
Posted

Ok I need your help. If you had ONE article to show your husband what would you recommend?

Something like- so your wife has just been diagnosed with celiac ( and possibly your child later)

Maybe something with a little funny, not to much medical terminology, but maybe stressing the importance of all of this!!! Maybe talking about a gluten free kitchen, no he does not have to eat gluten free but he doesn't seem to understand contamination.

My hubby doesn't seem to think this is that big a deal.

I need sort of a jump start to help with all the changes coming his way!!

What would you suggest?

Thank you

the celiac disease foundation has created printable brochures. they are brief and informative. go to this link, Open Original Shared Link and look on the right side under the heading "additional information". hope this helps. good luck!

notme Experienced
notme
Posted

How about 'gluten-free for dummies'? we all had alot of questions so i just left it *around*

edited to say: oops. that is not an article. it's a book (sorry)(it was very helpful, though!) good luck!

Jill0711 Rookie
Jill0711
Posted

I'm in the same situation so I don't have any advice. I just wanted to let you know that you are not alone. Although I will say that my husband is finally starting to understand the CC issue since he glutened me last night and saw the misery I was in...not that I am suggesting that you gluten yourself :P Educating my hubby was just a benefit from the pain :)

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    • knitty kitty
      High DGP-A with normal IGA

      By knitty kitty · Posted

      So you're saying that you think you should have severe intestinal damage since you've had the symptoms so long?   DGP IgG antibodies are produced in response to a partial gluten molecule.  This is different than what tissue transglutaminase antibodies are  produced in response to.   TTg IgA antibodies are produced in the intestines in response to gluten.  The tTg IgA antibodies attack our own cells because a structural component in our cell membranes resembles a part of gluten.  There's a correlation between the level of intestinal damage with the level of tTg antibodies produced.  You are not producing a high number of tTg IgA antibodies, so your level of tissue damage in your intestines is not very bad.  Be thankful.   There may be reasons why you are not producing a high quantity of tTg IgA antibodies.  Consuming ten grams or more of gluten a day for two weeks to two months before blood tests are done is required to get sufficient antibody production and damage to the intestines.  Some undiagnosed people tend to subconsciously avoid lots of gluten.  Cookies and cakes do not contain as much gluten as artisan breads and thick chewy pizza crust.  Anemia, diabetes and thiamine deficiency can affect IgA antibody production as well.   Do you carry genes for Celiac?  They frequently go along with EDS.
    • rei.b
      High DGP-A with normal IGA

      By rei.b · Posted

      I was tested for celiac at the same time, so I wasn't taking naltrexone yet. I say that, because I don't. The endoscopy showed some mild inflammation but was inconclusive as to celiac disease. They took several biopsies and that's all that was shown. I was not given a Marsh score.
    • knitty kitty
      High DGP-A with normal IGA

      By knitty kitty · Posted

      Food and environmental allergies involve IgE antibodies.  IgE antibodies provoke histamine release from mast cells.   Celiac disease is not always visible to the naked eye during endoscopy.  Much of the damage is microscopic and patchy or out of reach of the scope.  Did they take any biopsies of your small intestine for a pathologist to examine?  Were you given a Marsh score? Why do you say you "don't have intestinal damage to correlate with lifelong undiagnosed celiac disease"?   Just curious.  
    • rei.b
      High DGP-A with normal IGA

      By rei.b · Posted

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    • trents
      Finding gluten free ingredients

      By trents · Posted

      Welcome to the forum, @Kara S! Warrior bread is a grain free bread product. Google it. There are commercial mixes available, I believe, Youtube videos and many recipes. 
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