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Any One Else?

ruddabega

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ruddabega Apprentice
ruddabega
Posted

I have just discovered this cool message board thing and I was wondering if there were any Celiacs out there with similar medical problems as me.

I have:

a VSD (ventricular septal defect) and had open heart surgery at age 11

right elbow congenitally dislocated (5 operations to fix)

a benign tumor in my right tibia

hypothyroidism... or so we think. my thyroid blood levels are always okay, but I develop a goiter

continual sinusitis

Just checking to see if there are any others! :rolleyes:

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KaitiUSA Enthusiast
KaitiUSA
Posted

I have Graves Disease(hyperthyroid) in addition to celiac.

judy05 Apprentice
judy05
Posted

Ruddabega,

I too have thyroid problems. It started with a goiter which grew a lot, caused me to have tachycardia (very scary) and mucho anxiety. I had some nuclear tests which revealed a fast growing nodule. They decided to take the left thyroid out because the tissue was destroying itself( autoimmune). Thank God the nodule was benign!

That seemed to trigger the Celiac symptoms, although some I've had all my life. You name it, I've had it! It took many years and many doctors to find out the problem, but the Dr who first diagnosed Celiac Sprue has completely changed his mind because the gene test for Celiac was neg. He now insists that I am getting a "placebo effect" from staying gluten-free/DF diet. Go figure?? Tomorrow will be my last contact with him, I don't need him anymore!

I also have had years of sinus and allergy problems that seem to clear up after going D/F.

Hope some of this helps!

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      My 5yo was diagnosed with celiac last year by being tested after his sister was diagnosed. We are very strict on the gluten-free diet, but unsure what his reactions are as he was diagnosed without many symptoms other than low ferritin.  He had a school party where his teacher made gluten-free gingerbread men. I almost said no because she made it in her kitchen but I thought it would be ok.  Next day and for a few after his behavior is awful. Hitting, rude, disrespectful. Mainly he kept saying his legs were shaking. Is this a gluten exposure symptom that anyone else gets? Also the bad behavior? 
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