Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Colon Spasms


DOCKLEARFAN

Recommended Posts

DOCKLEARFAN Apprentice

Well all of you have given me some courage, so thanks for encouraging me to write this.

I have put off going back to college, I have given up better jobs for one reason. MY COLON SPASMS! and trust me it's not a cute little rumble, its LOUD...but more importantly it comes from my COLON and its hugely embarrasing!! I honestly hate being in a quiet room.

Well, that is my problem...

Here is what I have done, and what I plan to do. PLEASE feel free to suggest ANYTHING that will help me out.

1) Currently I take hyoscamine for the colon spasms, and trust me they have helped ALOT. (But still in the morning if I eat BEFORE taking the pills its back to the Fourth of July in my colon!) Oh, and I still have to re check if hyoscamine is GLUTEN FREE.

2) I have FORCED myself to take some college courses for the fall. (I successfully took 2 night classes which I completed last week, which gave me some confidence.) But this fall I have two classes for the MORNING which is the worst part of the day for my spasms!! ARGGHHHH!!

3) I also have just re visited a doctor and got perscribed some Celexa (obviously Im stressed about things, and hopefully that will help out.

I'm thinking of looking into OTHER medications that might help my spasms...and I was also thinking that maybe I should introduce some FIBER into my diet...I feel that when my Colon spasms its makes lOUDER noises because its EMPTY! Also, I was thinking of using some of those simethicone pills like Gas X or Phazyme? So maybe someone has any suggestions or advice on this "game plan" of mine? It would be great to hear!!

As you can tell I feel really embarrased about posting this type of post....I just honestly feel that I have dealt with SOOOOO many OTHER medical problems in my life that I just lack the strength to deal with this one.

Thanks


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Canadian Karen Community Regular

If you are going to use Gax-X, make sure you DO NOT USE the chewables.... they contain gluten. I found this out the hard way!!!!

Karen

DOCKLEARFAN Apprentice
If you are going to use Gax-X, make sure you DO NOT USE the chewables.... they contain gluten. I found this out the hard way!!!!

Karen

Thanks!

I just wanted to add that my Dr told me I have IBS as well. (I left that off of my original post)

skbird Contributor

I used to take hyosciamine. It sort of helped me, but not greatly. I am now taking a generic version of Librax and it seems to help more than hyosciamine did. It contains a med that makes your gut relax as well as a sedative - doesn't quite put you to sleep but helps if you are anxious about how you are feeling. GasX used to be my mainstay - I always had the worst gas pressure (not always rumbling but definitely feeling bad because of it). Now when I have gas I know I've eaten a bad thing, just have to determine which one. I keep finding GasX pills (and generics) stashed away in all my old purses and wallets. It's a reminder to me of how far I've come.

Stephanie

Carriefaith Enthusiast

How long have you been gluten free? Also are you dairy free? (sorry if you have already said) I've learned that a lot of gas in the large intestine comes from food that cannot be digested in the small intestine. That's probably why gas is a common symtom of celiac disease becasue the intestine cannot absorb certain foods due to damage in the small intestine. Maybe your intestines hasn't healed yet and a lot of undigested food is passing through or maybe you have another food intolerance. Dairy, soy, eggs and corn are also quite common. IBS medication like Modulon may help too since they reduce spasms in the intestine. I have also been diagnosed with IBS and was on Modulon for a few months. I stopped taking it becasue it stopped working (one of the drawbacks of the medication apparently) However, I don't really need it anymore anyway. Modulon is gluten-free.

Here is a good website on the causes of gas that may help you: Open Original Shared Link

DOCKLEARFAN Apprentice
I used to take hyosciamine. It sort of helped me, but not greatly. I am now taking a generic version of Librax and it seems to help more than hyosciamine did. It contains a med that makes your gut relax as well as a sedative - doesn't quite put you to sleep but helps if you are anxious about how you are feeling. GasX used to be my mainstay - I always had the worst gas pressure (not always rumbling but definitely feeling bad because of it). Now when I have gas I know I've eaten a bad thing, just have to determine which one. I keep finding GasX pills (and generics) stashed away in all my old purses and wallets. It's a reminder to me of how far I've come.

Stephanie

Could you tell me the name of the generic Librax? I remember years ago taking Dicyclomine as well...

I really appreciate your advice!!

DOCKLEARFAN Apprentice
How long have you been gluten free? Also are you dairy free? (sorry if you have already said) I've learned that a lot of gas in the large intestine comes from food that cannot be digested in the small intestine. That's probably why gas is a common symtom of celiac disease becasue the intestine cannot absorb certain foods due to damage in the small intestine. Maybe your intestines hasn't healed yet and a lot of undigested food is passing through or maybe you have another food intolerance. Dairy, soy, eggs and corn are also quite common. IBS medication like Modulon may help too since they reduce spasms in the intestine. I have also been diagnosed with IBS and was on Modulon for a few months. I stopped taking it becasue it stopped working (one of the drawbacks of the medication apparently) However, I don't really need it anymore anyway. Modulon is gluten-free.

Here is a good website on the causes of gas that may help you: Open Original Shared Link

I had symptoms since about 1988, but went undiagnosed til 1993 or so. Way back then I got tested for Dairy intolerance and it was negative, I dont think I was ever tested for soy or corn...actually back then I did go to a allergist and they did that multiple test where they stick tons of needles in your forearm and test for a bunch of stuff. All I remember was it all came back negative.

Should I have all those tests again?? Or maybe I should just eliminate soy, and corn for awhile and see how I feel? Personally I always thought that I had to live with the LOUD Colon rumbles because I assumed Celiac/IBS destroyed my villi and that was the price I had to pay. I have been diligent at getting colonoscopys and barium enemas and that other test where you drink that magnetic drink and they take a picture of your entire digestive process. And all that has checked out perfect. But my priority now is to reduce/eliminate the gas inside my Colon. So now I should investigate Modulon and that other "spasm" medication that was mentioned in the last post on this thread...

I hope im making a little sense here...Its very late and Im very tired.

but again to alll of you....thanks for your help/advice and please dont hold back on anything..

Im all ears!!

Good night for now... :D


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



judy05 Apprentice

I also have IBS as well as gluten intolerance. My GI doc gave me a good recommendation, increase fiber. I take at least 2 Citrucel tabs or more daily. It helps both diarrhea and constipation. It has helped me immensely. The tabs are gluten-free. He said patients with IBS have more gas than the regular population. There are good books out by Heather Von Vorous who has a lot of helpful tips about IBS, she also has a web site. I always start my meals with soluble fiber, such as a banana. If you get a good start in the morning then your day will go well. If you have any questions please let me know.

If you learn to eat and live on her simple tips I think you will feel better in a few weeks. You don't have to suffer.

Carriefaith Enthusiast
Should I have all those tests again?? Or maybe I should just eliminate soy, and corn for awhile and see how I feel?

I believe that the skin prick tests only test for allergies and not intolerances, so they wouldn't pick up intolerances to other foods. I actually had them done myself before I was diagnosed to find out what was wrong with me. The test said I had problems with wheat and yeast but not barley and rye, but obviously I do since I am celiac! That's why I think they just test for allergies. So I guess I also have a wheat allergy...

Many people also develop allergies or intolerances so it may be worth to do over again. Or maybe ask your doctor if other food intolerances may be causing your problems.

skbird Contributor

Generic for Librax is this:

5 mg chlordiazepoxide hydrochloride and 2.5 mg clidinium bromide

Your doctor must write that on the rx paper. My doctor had written my script for Librax and I asked at a few pharmacies and they said there was no generic - Librax was recently reformulated. But they said if I asked him to re-write it like above, they would fill the generic version. My pharmacist then gave me the insert for the generic drug so I could confirm it is gluten-free.

Be careful because there is a sedative in it and that can be addictive (Librium). I don't take them everyday unless it's pretty bad - I haven't taken them for more than three days in a row yet.

Stephanie

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - trents replied to SilkieFairy's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      IBS-D vs Celiac

    2. - trents replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      7

      how much gluten do I need to eat before blood tests?

    3. - SilkieFairy posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      IBS-D vs Celiac

    4. - catnapt posted a topic in Related Issues & Disorders
      0

      anyone here diagnosed with a PARAthyroid disorder? (NOT the thyroid) the calcium controlling glands

    5. - catnapt replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      7

      how much gluten do I need to eat before blood tests?

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,322
    • Most Online (within 30 mins)
      7,748

    James Minton
    Newest Member
    James Minton
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • trents
      Welcome to the celiac.com community, @SilkieFairy! You could also have NCGS (Non Celiac Gluten Sensitivity) as opposed to celiac disease. They share many of the same symptoms, especially the GI ones. There is no test for NCGS. Celiac disease must first be ruled out.
    • trents
      Under the circumstances, your decision to have the testing done on day 14 sounds very reasonable. But I think by now you know for certain that you either have celiac disease or NCGS and either way you absolutely need to eliminate gluten from your diet. I don't think you have to have an official diagnosis of celiac disease to leverage gluten free service in hospitals or institutional care and I'm guessing your physician would be willing to grant you a diagnosis of gluten sensitivity (NCGS) even if your celiac testing comes up negative. Also, you need to be aware that oats (even gluten free oats) is a common cross reactor in the celiac community. Oat protein (avenin) is similar to gluten. You might want to look at some other gluten free hot  breakfast cereal alternatives.
    • SilkieFairy
      After the birth of my daughter nearly 6 years ago, my stools changed. They became thin if they happened to be solid (which was rare) but most of the time it was Bristol #6 (very loose and 6-8x a day). I was on various medications and put it down to that. A few years later I went on this strict "fruit and meat" diet where I just ate meat, fruit, and squash vegetables. I noticed my stools were suddenly formed, if a bit narrow. I knew then that the diarrhea was probably food related not medication related. I tried following the fodmap diet but honestly it was just too complicated, I just lived with pooping 8x a day and wondering how I'd ever get and keep a job once my children were in school.  This past December I got my yearly bloodwork and my triglycerides were high. I looked into Dr. William Davis (wheat belly author) and he recommended going off wheat and other grains. This is the first time in my life I was reading labels to make sure there was no wheat. Within 2 weeks, not only were my stools formed and firm but I was only pooping twice a day, beautiful formed Bristol #4.  Dr. Davis allows some legumes, so I went ahead and added red lentils and beans. Nervous that the diarrhea would come back if I had IBS-D. Not only did it not come back, it just made my stools even bigger and beautiful. Still formed just with a lot more width and bulk. I've also been eating a lot of plant food like tofu, mushrooms, bell peppers, hummus etc which I thought was the cause of my diarrhea before and still, my stools are formed. In January I ran a genetics test because I knew you had to have the genes for celiac. The report came back with  DQ 2.2 plus other markers that I guess are necessary in order for it to be possible to have celiac. Apparently DQ 2.2 is the "rarer" kind but based on my report it's genetically possible for me to have celiac.  I know the next step is to bring gluten back so I can get testing but I am just not wanting to do that. After suffering with diarrhea for years I can't bring myself to do it right now. So that is where I am!   
    • catnapt
      learned I had a high PTH level in 2022 suspected to be due to low vit D  got my vit D level up a bit but still have high PTH   I am 70 yrs old (today in fact) I am looking for someone who also has hyperparathyroidism that might be caused by malabsorption    
    • catnapt
      I am on day 13 of eating gluten  and have decided to have the celiac panel done tomorrow instead of Wed. (and instead of extending it a few more weeks) because I am SO incredibly sick. I have almost no appetite and am not able to consume the required daily intake of calcium to try to keep up with the loss of calcium from the high parathyroid hormone and/or the renal calcium leak.    I have spent the past 15 years working hard to improve my health. I lost 50lbs, got off handfuls of medications, lowered my cholesterol to enviable levels, and in spite of having end stage osteoarthritis in both knees, with a good diet and keeping active I have NO pain in those joints- til now.  Almost all of my joints hurt now I feel like someone has repeatedly punched me all over my torso- even my ribs hurt- I have nausea, gas, bloating, headache, mood swings, irritability, horrid flatulence (afraid to leave the house or be in any enclosed spaces with other people- the smell would knock them off their feet) I was so sure that I wanted a firm diagnosis but now- I'm asking myself is THIS worth it? esp over the past 2 yrs I have been feeling better and better the more I adjusted my diet to exclude highly refined grains and processed foods. I didn't purposely avoid gluten, but it just happened that not eating gluten has made me feel better.   I don't know what I would have to gain by getting a definitive diagnosis. I think possibly the only advantage to a DX would be that I could insist on gluten-free foods in settings where I am unable to have access to foods of my choice (hospital, rehab, nursing home)  and maybe having a medical reason to see a dietician?   please let me know if it's reasonable to just go back to the way I was eating.  Actually I do plan to buy certified gluten-free oats as that is the only grain I consume (and really like) so there will be some minor tweaks I hope and pray that I heal quickly from any possible damage that may have been done from 13 days of eating gluten.    
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.