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Confused If Im Celiac Or Not

Constipatedcyclist

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Constipatedcyclist Newbie
Constipatedcyclist
Posted

For three years or more i have been having health issues and im trying to figure out what they are from.

The only thing that has helped me get better so far is diet.

I was really bad when all this started and have been alot better with a gluten free diet but i cant say im back to myself. And infact recently things have taken a turn for the worse again.

Current symptoms:

Poor energy, fatigued.

Very high anxiety.

Insomnia.

loss of padding in hands and on my heels?? hurts sometimes when i walk.

cramping muscles. Especially hands and upper stomach but all of stomach aswell.

muscle twitches

Loss of sensation. not completely but like my skin all over is abit numb, mostly hands and my stomach and back.

Im easily startled, seem like my body is overreacting to stress.

Just before xmas this year i had a bakery that i know contain gluten and within an hour i felt like a knot in my stomach around my belly button. Ever since things have taken a turn for the worse. I could also feel like i had tiny wounds that stung alittle in my colon and i got brainfogged after every meal when i had this wound feeling? Its now dissapeared and so has the brainfog. I was also eating gluten during xmas by misstake, a very small amount but it was there none the less.

So its been approx 1 month of beeing completely gluten free again but if anything im getting worse.

I also have lost some sensativity in my genitals aswell.

The only thing i have come to conclude is that im not sure if i can eat myself to perfect health but maybe my diet is still containing gluten i dunno. But i do know i can eat myself to 100% poor health within a couple of days.

I have done 2 biopsies where nothing was found they could not find any inflamation (i was thinking chrons earlier) and they could not find any damage to villi. Both biopses were taken when i had been of gluten for more than 6 months and was feeling better so that could perhaps scew the results? I do not dare to take the gluten challenge and redo the biopsy.

Could all of these symptoms be from Celiac or is there more to it?

I have had some hormones issues previously and vitamin d shortage but thats all they could find and has since popped back into range. Hormones by themselves after beeing of gluten and vitD after popping some pills.

Any ideas as to what further testing could be done? What minerals and vitamin should one check for?

Thanks for your respone!

Bj

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nora-n Rookie
nora-n
Posted

Of course the tests will be negative after several months off gluten. Even two-three weeks off gluten can cause negative biopsies.

mushroom Proficient
mushroom
Posted

You should check iron/ferritin, potassium, magnesium, calcium, zinc; Vit. B12, folate, A, E and K at the very least.

Constipatedcyclist Newbie
Constipatedcyclist
Posted
  • Author

You should check iron/ferritin, potassium, magnesium, calcium, zinc; Vit. B12, folate, A, E and K at the very least.

Thanks for replies. I did not know just a few weeks can make the biopsy negative. If i would have known i would never have gone through these horrible colonoscopies. I felt really drained after those laxatives and i wasent all that fond of the tube down my throat either :)

So thats the short list of tests to take is there a longer one? At this point im just done doing a few labs here and there i wanna do it all at once and make sure theres nothing left out.

Thank you, appreciated!

ravenwoodglass Mentor
ravenwoodglass
Posted

You might also want to get a celiac panel run. It is possible you are getting cross contamination somewhere and that may let you know if your still making antibodies. You may have an additonal intolerance. Soy and dairy being the most common. You may want to eliminate them and see if that makes a difference. Are you eating mostly whole unprocessed foods? If your eating a lot of processed gluten-free foods there may be something in them that you are not tolerating. You especially want to avoid codex wheat starch if that is something commonly used where you are.

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