Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Additional Complications Years After Coeliac Disease Diagnosis


moodle

Recommended Posts

moodle Newbie

Hi all,

I'm new to this forum but have found this discussion fascinating. I'm in the UK so I hope you don't mind me gatecrashing your site

A bit about my own history: I was diagnosed with coeliac disease aged 15 months in 1970 - As a baby I was quite sickly but as I grew older things settled down. I follow a strict gluten free diet.

About six months ago I developed Uveitis suddenly in my right eye and discovered I am HLA B27 positive. I noticed somebody had asked whether anybody else has coeliac disease and blood group O Rh Negative, I am (but am unsure of any connection)

Other things that have happened of late, coinciding with onset of the uveitis are, severe joint pain, particularly lower spine, knees and right ankle and new bowel problems, namely mucous and blood (which has thankfully settled down now).

The first instance of uveitis lasted three months and was treated with dilating drops and prednisolone corticosteroid drops every few hours. A month ago the uveitis returned in my left eye, but has settled down much faster. I have now been referred to a rheumatologist, who I see in March as they suspect anklosing sponylitis?

I wanted to ask whether anybody else had a similar experience to the above and if so what helped them. Also I wondered where I might find further information regarding a low starch diet?

I also wondered whether there is a scientifically proven link between HLA B27 and Coeliac Disease

Many thanks in advance for your help

Moodle

  • 1 month later...

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



bolddog Newbie

Crikey Moodle, you really are having a time of it.

I'm O RH- too but am lucky in that repeated episodes of left eye uveitis ceased when I went gluten free. Isnt it brutal, savage and total agony ? I have seen it described in an ophthalmology journal as a "perfect pain".

As for AS, Im fortunate that I have no firsthand experience - and hope it turns out you dont either.

but have a look at

Open Original Shared Link

Ive been avoiding rice, potatoes etc but using beans, lentils and the like ( i.e. a low GI diet ). Looks like this is also a low starch diet.

Content on Kickas.org does suggest that HLAB27 is uncommon and that a significant number of people with AS are HLAB27. BUT that does not mean that everyone with HLAB27 has AS !

lots of ((((((doggy breath hugs))))))

Bolddog

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,201
    • Most Online (within 30 mins)
      7,748

    Judy Wysocki
    Newest Member
    Judy Wysocki
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Xravith
      I'm very confused... My blood test came out negative, I checked all antibodies. I suppose my Total IgA levels are normal (132 mg/dl), so the test should be reliable. Still, I'm not relieved as I can't tolerate even a single biscuit. I need to talk to my doctor about whether a duodenal biopsy is necessary. But it is really possible to have intestinal damage despite having a seronegative results? I have really strong symptoms, and I don't want to keep skipping university lectures or being bedridden at home.
    • Scott Adams
      They may want to also eliminate other possible causes for your symptoms/issues and are doing additional tests.  Here is info about blood tests for celiac disease--if positive an endoscopy where biopsies of your intestinal villi are taken to confirm is the typical follow up.    
    • Scott Adams
      In the Europe the new protocol for making a celiac disease diagnosis in children is if their tTg-IgA (tissue transglutaminase IgA) levels are 10 times or above the positive level for celiac disease--and you are above that level. According to the latest research, if the blood test results are at certain high levels that range between 5-10 times the reference range for a positive celiac disease diagnosis, it may not be necessary to confirm the results using an endoscopy/biopsy: Blood Test Alone Can Diagnose Celiac Disease in Most Children and Adults TGA-IgA at or Above Five Times Normal Limit in Kids Indicates Celiac Disease in Nearly All Cases No More Biopsies to Diagnose Celiac Disease in Children! May I ask why you've had so many past tTg-IgA tests done, and many of them seem to have been done 3 times during short time intervals?    
    • trents
      @JettaGirl, "Coeliac" is the British spelling of "celiac". Same disease. 
    • JettaGirl
      This may sound ridiculous but is this supposed to say Celiacs? I looked up Coeliacs because you never know, there’s a lot of diseases related to a disease that they come up with similar names for. It’s probably meant to say Celiacs but I just wanted to confirm.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.