Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Gluten Intolerance Question


UIDancer

Recommended Posts

UIDancer Apprentice

I was tested for Celiac a few months ago and after my results came back negative, my GI doc said I must be gluten intolerant since my symptoms went away once I went gluten-free. So after being gluten-free for about 3 months, I decided to test the waters to see how badly I react since I have no clue of the severity of my intolerance. Well... I went all out! I had bread, pasta, AND bread pudding. Needless to say I was ridiculously full but guess what! No symptoms. Now I know this was not all in my head, so does anyone know what's going on? Is it possible that consuming gluten day after day will cause a reaction but having it every once in a while is okay? I'm going back to see the doc in a couple weeks but was wondering if anyone had some insight.

Thanks!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Carriefaith Enthusiast

Which tests did you have done for celiac?

If all of your symptoms went away after going gluten free than I would guess that you are sensitive to gluten or wheat. You may find that you develop symtoms after being on gluten for awile. I would definatley discuss this with your doctor.

KaitiUSA Enthusiast

Which tests did you have done? Some tests are better then others. If you saw an improvement then chances are at the minimum that you have an intolerance to gluten.

LKelly8 Rookie

I'm a believer in gluten intolerance/gluten sensitivty/celiac all being one illness - what's now referred to by doctors as celiac is actually just the end stage of the disease, GI and GS are the early stages. JMHO. That being said. . .

Celiac is an autoimmune disorder and they're notorious for being sneaky and changable - they can jump back and forth between "active" phases and "inactive" or "silent" phases. Don't be fooled though, just as much damage can occur during the silent phase.

KaitiUSA Enthusiast

Yes, the difference between gluten intolerance and celiac though is gluten intolerance should not cause the damage that celiacs have.

However, you are correct in the fact that with celiac there can be no symptoms at all and still have damage.

UIDancer Apprentice

I should know, but unfortunately I have no idea which tests were done. I'll find out when I go back. No one else in my family (that I know of) has Celiac. That being said, is it still possible for me to develop Celiac later in life if I'm Gluten Intolerant now? If it's possible, will remaining gluten-free decrease my chances for developing it?

Thanks!

Carriefaith Enthusiast

If you have the gene for celiac than it would be very possible to develop celiac disease in the future if you are only sensitive to it now. I also didn't think anyone in my family had celiac, but some family members got tested (because of me) and my grandmother ended up getting postive results. I guess she never got super sick with it like I did and thus never got tested for it before.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



KaitiUSA Enthusiast
I should know, but unfortunately I have no idea which tests were done. I'll find out when I go back. No one else in my family (that I know of) has Celiac. That being said, is it still possible for me to develop Celiac later in life if I'm Gluten Intolerant now? If it's possible, will remaining gluten-free decrease my chances for developing it?

Thanks!

Maybe people from your family did have it but never found out. It is a very commonly missed disease. If you have a celiac gene then yes you can have celiac activated. If you are gluten intolerant now, it can turn into celiac later...however there are other factors that can make the celiac activate such as stress, bacterial and viral infections, surgery, childbirth, environment, etc

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Scott Adams replied to MauraBue's topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Have Tru Joy Sweets Choco Chews been discontinued??

    2. - Scott Adams replied to chrish42's topic in Doctors
      5

      Doctors and Celiac.com

    3. - trents replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      5

      how much gluten do I need to eat before blood tests?

    4. - MauraBue posted a topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Have Tru Joy Sweets Choco Chews been discontinued??

    5. - catnapt replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      5

      how much gluten do I need to eat before blood tests?

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,261
    • Most Online (within 30 mins)
      7,748

    Joanne Ham
    Newest Member
    Joanne Ham
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • Scott Adams
      Some of the Cocomels are gluten and dairy-free: https://cocomels.com/collections/shop-page
    • Scott Adams
      Thank you for the kind words! I keep thinking that things in the medical community are improving, but a shocking number of people still post here who have already discovered gluten is their issue, and their doctors ordered a blood test and/or endoscopy for celiac disease, yet never mentioned that the protocol for such screening requires them to be eating gluten daily for weeks beforehand. Many have already gone gluten-free during their pre-screening period, thus their test results end up false negative, leaving them confused and sometimes untreated. It is sad that so few doctors attended your workshops, but it doesn't surprise me. It seems like the protocols for any type of screening should just pop up on their computer screens whenever any type of medical test is ordered, not just for celiac disease--such basic technological solutions could actually educate those in the medical community over time.
    • trents
      The rate of damage to the villous lining of the SB and the corresponding loss of nutrient absorbing efficiency varies tremendously from celiac to celiac. Yes, probably is dose dependent if, by dose dependent you mean the amount of exposure to gluten. But damage rates and level of sensitivity also seem to depend on the genetic profile. Those with both genes HLA-DQ2 and HLA-DQ8 seem to be more sensitive to minor amounts of gluten exposure than those with just one of those genes and those with only DQ2 seem to be more sensitive than those with only DQ8. But there are probably many factors that influence the damage rate to the villi as well as intensity of reaction to exposure. There is still a lot we don't know. One of the gray areas is in regard to those who are "silent" celiacs, i.e. those who seem to be asymptomatic or whose symptoms are so minor that they don't garner attention. When they get a small exposure (such as happens in cross contamination) and have no symptoms does that equate to no inflammation? We don't necessarily know. The "sensitive" celiac knows without a doubt, however, when they get exposure from cross contamination and the helps them know better what food products to avoid.
    • MauraBue
      Help!  My 5 year old daughter just stopped eating dairy and gluten due to her EoE and Celiac.  Her favorite candy in the world is tootsie rolls.  I did some research, and it sounds like these are the only options for finding something similar, but I can't find them anywhere to actually purchase.  Have they been discontinued??  Does anyone have another recommendation for a gluten-free/DF tootsie roll option?
    • catnapt
      I wonder how long it usually takes and if it is dose dependent as well... or if some ppl have a more pronounced reaction to gluten than others   thanks again for all the great info    
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.