Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Week Later..symptons?


VydorScope

Recommended Posts

VydorScope Proficient

OKay... as you may recall from the thread "I am begining to doubt" I have ben gluten-free for 2 months, not getting muhc better, still anemic, etc. My son was postivly diagnosed (see sig), and I have alot of unresloved symptons that fit celiac disease. Decided to eat some chololate cake as a test (cant afford Entorlab, and insurance wont pay for blood work, etc). After eating the cake, I felt realy bad. Cramps, multiple toliet trips, etc. Took most of the day to clear the bluk of the symptons, and part of the next. Evently I got over it... and went back to my normal level of misery...

Yesterday and the day before thoguh I felt extermly tried, headaches, etc, all the symptons of when I run out of iron in my system.. and now that I know that to look for... I also notice that today, almost a week after the cake, my stools were black and tary.

Does all this sound normal? Should I be concerned at all? I am not schedualed for another check up for several months...


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



KaitiUSA Enthusiast

I have reactions that last for 2 weeks. You could be having a reaction from it now yes. I would say monitor it though. Have you had this kind of reaction before or is this the first time?

Also,this is in relation to your anemia...have you had your thyroid checked? Thyroid disorders can be in connection with the thyroid which are both in connection with celiac.

VydorScope Proficient
I have reactions that last for 2 weeks. You could be having a reaction from it now yes. I would say monitor it though. Have you had this kind of reaction before or is this the first time?

Can not say either way... never been gluten free before, and never realy paid attn till recently.

Thyroid disorders can be in connection with the thyroid which are both in connection with celiac.

Wow Thyroid disorders are connected to the thyroid?? I never knew! :D

Sorry, but had to poke a little fun.

As for having it check, I have to dig up the tests.. but I azm pretty sure that was tested for last year via a blood test.

KaitiUSA Enthusiast

Haha oops can you tell I've had a long day. I was multitasking and made a error :lol: Don't blame you for poking a little fun in there I would have done the same thing...you know what I meant:

Thyroid disorders can be in connection with Anemia which are both in connection with celiac

I would say you are having a reaction though. If you do in fact have celiac and have went all those years undiagnosed then I wouldn't expect your symptoms to go away so soon. If you have seen even a tiny bit of improvement I would think at the least there is a negative reaction to gluten in your body so I would totally stick with the diet and and see if things improve in the upcoming months.

Carriefaith Enthusiast

I think the norm for reactions is 2 weeks. I know it is for me anyway, and Kaiti too ;) If they last longer than 2 weeks, I would go to the doctor and see if something else is wrong. Hope you are better soon :)

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - lizzie42 posted a topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      0

      Son's legs shaking

    2. - trents replied to Paulaannefthimiou's topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Bob red mill gluten free oats

    3. - trents replied to jenniber's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      10

      Disaccharide deficient, confusing biopsy results, no blood test

    4. - Paulaannefthimiou posted a topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Bob red mill gluten free oats

    5. - jenniber replied to jenniber's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      10

      Disaccharide deficient, confusing biopsy results, no blood test

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      132,850
    • Most Online (within 30 mins)
      7,748

    Cindy Shreve
    Newest Member
    Cindy Shreve
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • lizzie42
      My 5yo was diagnosed with celiac last year by being tested after his sister was diagnosed. We are very strict on the gluten-free diet, but unsure what his reactions are as he was diagnosed without many symptoms other than low ferritin.  He had a school party where his teacher made gluten-free gingerbread men. I almost said no because she made it in her kitchen but I thought it would be ok.  Next day and for a few after his behavior is awful. Hitting, rude, disrespectful. Mainly he kept saying his legs were shaking. Is this a gluten exposure symptom that anyone else gets? Also the bad behavior? 
    • trents
      Not necessarily. The "Gluten Free" label means not more than 20ppm of gluten in the product which is often not enough for super sensitive celiacs. You would need to be looking for "Certified Gluten Free" (GFCO endorsed) which means no more than 10ppm of gluten. Having said that, "Gluten Free" doesn't mean that there will necessarily be more gluten than "Certified Gluten" in any given batch run. It just means there could be. 
    • trents
      I think it is wise to seek a second opinion from a GI doc and to go on a gluten free diet in the meantime. The GI doc may look at all the evidence, including the biopsy report, and conclude you don't need anything else to reach a dx of celiac disease and so, there would be no need for a gluten challenge. But if the GI doc does want to do more testing, you can worry about the gluten challenge at that time. But between now and the time of the appointment, if your symptoms improve on a gluten free diet, that is more evidence. Just keep in mind that if a gluten challenge is called for, the bare minimum challenge length is two weeks of the daily consumption of at least 10g of gluten, which is about the amount found in 4-6 slices of wheat bread. But, I would count on giving it four weeks to be sure.
    • Paulaannefthimiou
      Are Bobresmill gluten free oats ok for sensitive celiacs?
    • jenniber
      thank you both for the insights. i agree, im going to back off on dairy and try sucraid. thanks for the tip about protein powder, i will look for whey protein powder/drinks!   i don’t understand why my doctor refused to order it either. so i’ve decided i’m not going to her again, and i’m going to get a second opinion with a GI recommended to me by someone with celiac. unfortunately my first appointment isn’t until February 17th. do you think i should go gluten free now or wait until after i meet with the new doctor? i’m torn about what i should do, i dont know if she is going to want to repeat the endoscopy, and i know ill have to be eating gluten to have a positive biopsy. i could always do the gluten challenge on the other hand if she does want to repeat the biopsy.    thanks again, i appreciate the support here. i’ve learned a lot from these boards. i dont know anyone in real life with celiac.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.