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Gluten Free And Still Loose Bowels

Nicole88

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Nicole88 Newbie
Nicole88
Posted

My daughter is 8 and has Spina Bifida we recently went Gluten free maybe about 3 weeks now she has had the blood work done and it came back Negative for Celiac and other gastro disease. i started her on the gluten free after talking with my ex in laws and discovering that many of them in the family have Celiac so i looked into it and found it is a genetic i thought all of the symptoms seem to be pointing to it as well. At first the loose bowels stop then a week in she slipped up at school and had a hoagie and some cake and the next two days after that she had green stool. i spoke to a good friend who was Celiac and said that is common when they eat something with gluten in it. then it cleared up and she slipped up again at school on 2/14/11 and had donuts. then the loose bowel again not green this time just pasty and loose.i sat my daughter down and told her how serious this is and that she can not have these things sent in a note to school stating she is not to have gluten products. now sunday it did it again now she hasnt had any slip since that monday so why the loose bowel again. is it possible she is not Celiac and something else. i am getting so frustrated and i feel so bad for her that this is not stopping. does it take long for the loose bowel to clear?

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kareng Grand Master
kareng
Posted

I still get this if I don't get enough fiber to firm things up! :ph34r:

Nicole88 Newbie
Nicole88
Posted
  • Author

I still get this if I don't get enough fiber to firm things up! :ph34r:

hmmm i wonder if i am giving her enough fiber. I always think fiber equals more bathroom trips but i guess it could go both ways. i wonder what i can give her to be sure she is getting enough fiber in her diet. and i wonder how much is enough?

kareng Grand Master
kareng
Posted

hmmm i wonder if i am giving her enough fiber. I always think fiber equals more bathroom trips but i guess it could go both ways. i wonder what i can give her to be sure she is getting enough fiber in her diet. and i wonder how much is enough?

This is something I am trying to figure out. I like the Bobs Red Mill Mighty tasty cereal (a hot cereal).

It may take a while for her to heal and get things evened out, too.

MacieMay Explorer
MacieMay
Posted

I felt like that when we first went gluten-free. I did notice a good change in BM pretty quickly but we still had the occasional loose stool and I couldn't figure it out. I've now blamed it on me, I was accidently giving her gluten. One time was in lipton onion soup mix and then some other mix seasonings. I didn't realize that natural flavoring can have gluten, by law if there is wheat in it then it has to be listed but not malt or barley. It takes a long time to get the diet down. I wish I had a smartphone, I would download that app that tells you whether or not something is gluten-free.

I hope this helps!!

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    • trents
      Small Bowel Resection 12 inches

      By trents · Posted

      You might consider asking for a referral to a RD (Registered Dietician) to help with food choices and planning a diet. Even apart from any gluten issues, you will likely find there are some foods you need to avoid because of the shorter bowel but you may also find that your system may make adjustments over time and that symptoms may improve.
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      Small Bowel Resection 12 inches

      By Ello · Posted

      I wish Dr’s would have these discussions with their patients. So frustrating but will continue to do research. Absolutely love this website. I will post any updates on my testing and results.  Thank you
    • trents
      Small Bowel Resection 12 inches

      By trents · Posted

      Losing 12" of your small bowel is going to present challenges for you in nutritional uptake because you are losing a significant amount of nutritional absorption surface area. You will need to focus on consuming foods that are nutritionally dense and also probably look at some good supplements. If indeed you are having issues with gluten you will need to educate yourself as to how gluten is hidden in the food supply. There's more to it than just avoiding the major sources of gluten like bread and pasta. It is hidden in so many things you would never expect to find it in like canned tomato soup and soy sauce just to name a few. It can be in pills and medications.  Also, your "yellow diarrhea, constipation and bloating" though these are classic signs of a gluten disorder, could also be related to the post surgical shorter length of your small bowel causing incomplete processing/digestion of food.
    • Ello
      Small Bowel Resection 12 inches

      By Ello · Posted

      Yes this information helps. I will continue to be pro active with this issues I am having. More testing to be done. Thank you so much for your response. 
    • trents
      Small Bowel Resection 12 inches

      By trents · Posted

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