Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Some Questions I Have?


Canuck86

Recommended Posts

Canuck86 Newbie

I'm new here and looking for advice on whether or not my symptoms sound like Celiac or a gluten intolerance.

To start with I've had stomach issues my entire life. I've always had cramps, bloating, gas and gas cramps that were intermittent. I never went to the doctors to find the cause of it so I just lived with it. I've always had anxiety and would get terrible stomach aches when ever I was nervous. I've always been skinny and no matter how much I eat I've never been able to gain weight.

Starting in June things seemed to get worse. Five times since June I'll be eating and I'll have to run to the bathroom because I'll get cramps and diarrhea. The last time it happened I was eating Spaghetti. Since June I've had these symptoms which haven't gone away;

- Gas (almost every night, which doesn't always get released)

- Bloating (don't know if it's really considered bloating but gas just seems to move around in my stomach/intestines and doesn't get released)

- Gurgling Stomach/Intestines

- Pain on left side

- Ribbon stools (intermittent)

- Twitching on left side (ribbon stools follow when this happens)

- Diarrhea (intermittent)

- Hair Loss

- Weight Loss (I'm down from 135 lbs to about 118 lbs since June for no reason)

My doctor wanted to test me for Celiac but I told him I had done a gluten free diet for 2 months and it didn't help. At the time I was still eating gluten but wasn't aware of it (theres gluten in more things then I realized). I stopped eating gluten 2 days ago the gas hasn't been as bad. I have a doctors appointment on March 2 so I was wondering if I should ask to be tested? and if I do, will I still have to eat gluten until I'm tested?

One last question, if I get tested and my tests come back positive and I go on a gluten free diet, how long until the gas, gurgling, diarrhea and ribbon stools go away?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Meatballman Rookie

I think you should get tested.I had many of the symptoms you have and was diagnosed Celiac.As far as the gas,bloating,and gurgling go I am six months gluten free it is better but not completely gone.Everyone heals at different rates I am still waiting.Follow your DR. advice and get tested.Good luck.

Looking for answers Contributor

If you want accurate testing, you'll need to continue eating gluten until you get the tests done.

Canuck86 Newbie

Thanks for the help, I'm definitely going to ask to be tested. So is hair loss, ribbon stools, occasional abdominal twitching and left sided abdominal pain associated with celiac? I was reading a few sites and didn't see those symptoms listed. The main symptoms listed weren't very helpful, they really only listed gas, bloating and diarrhea as common GI symptoms.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,748
    • Most Online (within 30 mins)
      7,748

    Hollee
    Newest Member
    Hollee
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Gigi2025
      Hi Theresa,  A few of my friends have your same story. You may be right about barley, etc.  18 years ago at a football game while clapping, suddenly my 4th finger was in agony.  It looked like a vein had burst. It was blue for a couple hours, then disappeared.  Finally realized it happened every time when drinking beer.  It's occurred several times over the years when opening a jar, lifting something that was a bit heavy, holding on to tight to something.  Immediate icing stops the pain and discoloration.  Now avoiding wheat in the US, it rarely happens.  Thanks for the reminder.  Will have Entero Labs run another test. Unfortunately they've relocated to Switzerland/Greece.
    • Russ H
      The EMA test is an old and less sensitive test for anti-tTG2 antibodies. It relies on a technician using a microscope to check for fluorescence of a labelled substrate (typically monkey oesophagus or human umbilicus), giving a simple positive/negative result. It is similar to running a standard anti-tTG2 test but with a high cut-off, making it more specific but less sensitive. Transient rises in tTG2 can be caused by e.g. viral infections and inflammation. Very high levels of anti-tTG2 (>x10 standard range) are almost certainly coeliac disease but moderately raised levels can have several causes apart from coeliac disease. Other food allergies can cause villi blunting but that is much rarer than coeliac disease or other non-coeliac causes. Not All That Flattens Villi Is Celiac Disease: A Review of Enteropathies
    • Theresa2407
      Maybe you have a low  intolerance to Wheat.   Rye, Barley and Malt are the gluten in Celiac disease.  It has always been stated Wheat and Gluten, not just a Wheat intolerance.  Barley will keep me in bed for (2) weeks.  Gut, Migrains, Brain fog, Diahrea.  It is miserable.  And when I was a toddler the doctor would give me a malt medicine because I always had Anemia and did not grow.  Boy was he off.  But at that time the US didn't know anyone about Celiac.  This was the 1940s and 50s.  I had my first episode at 9 months and did not get a diagnosis until I was 50.  My immune system was so shot before being diagnoised, so now I live with the consequences of it. I was so upset when Manufacturers didn't want to label their products so they added barley to the product.  It was mostly the cereal industry.  3 of my favorite cereals were excluded because of this. Malt gives me a bad Gut reaction.
    • Gigi2025
      Thanks much Scott.  Well said, and heeded.   I don't have Celiac, which is fortunate.
    • Scott Adams
      Do you have the results of your endoscopy? Did you do a celiac disease blood panel before that?  Here is more info about how to do a gluten challenge for a celiac disease blood panel, or for an endoscopy: and this recent study recommends 4-6 slices of wheat bread per day:    
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.