Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

My Negative Lab Results


campbell7

Recommended Posts

campbell7 Newbie

Hello,

My doctor said he would do a celiac panel, but I see he did not do some of the tests, however here are my results,

TTG ANTIBODY, IGA <3 Ref range, <5 U/ml

<5-8 equivocal

< 8 positive

IMMUNOGLOBULIN A 237 Ref range 81-463.

I was in a almost gluten free diet for 2.5 months before this. I tried to eat more gluten for almost 2 weeks and it was a torture.

I'm also waiting for my daughter's results, I will post them as well.

Could anyone tell me what this numbers mean :)

Thanks in advance.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



cassP Contributor

Hello,

My doctor said he would do a celiac panel, but I see he did not do some of the tests, however here are my results,

TTG ANTIBODY, IGA <3 Ref range, <5 U/ml

<5-8 equivocal

< 8 positive

IMMUNOGLOBULIN A 237 Ref range 81-463.

I was in a almost gluten free diet for 2.5 months before this. I tried to eat more gluten for almost 2 weeks and it was a torture.

I'm also waiting for my daughter's results, I will post them as well.

Could anyone tell me what this numbers mean :)

Thanks in advance.

that's all he did???? thats not enough- and its possible that 2 week challenge may not have been enough for u..

it looks like your TTG Iga is Negative... and your Iga serum is within range-> which means your immune system is working well... and that any Iga test u get should be accurate.

but u did not have any Antigliadin antibodies tests.. or Endomysial Antibody... its not a very complete panel.. really is not definitive on whether u may have Celiac, or NonCeliac Gluten Intolerance.. or nothing..

ravenwoodglass Mentor

Hello,

I was in a almost gluten free diet for 2.5 months before this. I tried to eat more gluten for almost 2 weeks and it was a torture.

Even though your partial test was negative your gluten challenge has been positive. You have a choice, either continue on the gluten challenge for a couple more months and get a complete panel done or go by your positive challenge and go gluten free.

campbell7 Newbie

that's all he did???? thats not enough- and its possible that 2 week challenge may not have been enough for u..it looks like your TTG Iga is Negative... and your Iga serum is within range-> which means your immune system is working well... and that any Iga test u get should be accurate.but u did not have any Antigliadin antibodies tests.. or Endomysial Antibody... its not a very complete panel.. really is not definitive on whether u may have Celiac, or NonCeliac Gluten Intolerance.. or nothing..

Even though your partial test was negative your gluten challenge has been positive. You have a choice, either continue on the gluten challenge for a couple more months and get a complete panel done or go by your positive challenge and go gluten free.

Thanks cass and ravewoodglass for replying, I'm unsure of what to do next. My doctor lisents and I think he is trying to help me (he addressed my thyriod issue overlooked by other doctors) perhaps he didn't know all the test required.

Anyway he's going to check my vitamin levels(d, ferretin, b and k) since I've had issues with female spotting aparentely for no reason (OK pap, no infection) and I will mention the other tests, he also referred me to a GI already.

Is there perhaps a relation between bleeding and gluten intolerance???

Also I got my daughter's lab result and it was neg. I will pick them up tomorrow and see what tests they did.

I will post them tomorrow

cassP Contributor

Thanks cass and ravewoodglass for replying, I'm unsure of what to do next. My doctor lisents and I think he is trying to help me (he addressed my thyriod issue overlooked by other doctors) perhaps he didn't know all the test required.

Anyway he's going to check my vitamin levels(d, ferretin, b and k) since I've had issues with female spotting aparentely for no reason (OK pap, no infection) and I will mention the other tests, he also referred me to a GI already.

Is there perhaps a relation between bleeding and gluten intolerance???

Also I got my daughter's lab result and it was neg. I will pick them up tomorrow and see what tests they did.

I will post them tomorrow

there CAN be a link.... for me- gluten never affected my cycles- except maybe make them worse. but i was pretty regular even with my hypothyroid.

but ya- there have been many studies linking gluten to female problems including PCOS, Endometriosis, Fibroids, etc...

but also- Thyroid disorders are very likely to affect your cycles and your fertility.. big time.

good luck with it all!

so, are you dx with thyroid issues yet??? gluten is one of several agitators to the thyroid... even if you never get a definitive answer on your digestive tract- you may need to avoid gluten for your thyroid. im also avoiding gluten & soy for my thyroid disorders

campbell7 Newbie

Cass, yes I have Hashimoto's, dx last June after a miscarriage. I'm on 120 mg of Armour. My OB is the one helping me on this.

I had ovary pain ever since, but stopped when I reached my optimal dosis of Armour, and I know the link between Hashi's and ovaries, but this time since my cycles are normal, the spotting it's kind of odd and has been there for 1.5 months now, everything normal as per last week, ob recomended progesterone pills for 3 mo. the last 15 days of my cycle, but I will use the cream instad.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - ShariW commented on Scott Adams's article in Frequently Asked Questions About Celiac Disease
      4

      What are Celiac Disease Symptoms?

    2. - klmgarland replied to klmgarland's topic in Dermatitis Herpetiformis
      2

      Help I’m cross contaminating myself,

    3. - Scott Adams replied to klmgarland's topic in Dermatitis Herpetiformis
      2

      Help I’m cross contaminating myself,

    4. - Scott Adams replied to Jmartes71's topic in Coping with Celiac Disease
      1

      My only proof

    5. - Scott Adams replied to Colleen H's topic in Related Issues & Disorders
      1

      Methylprednisone treatment for inflammation?


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,908
    • Most Online (within 30 mins)
      7,748

    ebrown
    Newest Member
    ebrown
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Who's Online (See full list)

  • Upcoming Events

  • Posts

    • klmgarland
      Thank you so very much Scott.  Just having someone understand my situation is so very helpful.  If I have one more family member ask me how my little itchy skin thing is going and can't you just take a pill and it will go away and just a little bit of gluten can't hurt you!!!! I think I will scream!!
    • Scott Adams
      It is difficult to do the detective work of tracking down hidden sources of cross-contamination. The scenarios you described—the kiss, the dish towel, the toaster, the grandbaby's fingers—are all classic ways those with dermatitis herpetiformis might get glutened, and it's a brutal learning curve that the medical world rarely prepares you for. It is difficult to have to deal with such hyper-vigilance. The fact that you have made your entire home environment, from makeup to cleaners, gluten-free is a big achievement, but it's clear the external world and shared spaces remain a minefield. Considering Dapsone is a logical and often necessary step for many with DH to break the cycle of itching and allow the skin to heal while you continue your detective work; it is a powerful tool to give you back your quality of life and sleep. You are not failing; you are fighting an incredibly steep battle. For a more specific direction, connecting with a dedicated celiac support group (online or locally) can be invaluable, as members exchange the most current, real-world tips for avoiding cross-contamination that you simply won't find in a pamphlet. You have already done the hardest part by getting a correct diagnosis. Now, the community can help you navigate the rest. If you have DH you will likely also want to avoid iodine, which is common in seafoods and dairy products, as it can exacerbate symptoms in some people. This article may also be helpful as it offers various ways to relieve the itch:  
    • Scott Adams
      It's very frustrating to be dismissed by medical professionals, especially when you are the one living with the reality of your condition every day. Having to be your own advocate and "fight" for a doctor who will listen is an exhausting burden that no one should have to carry. While that 1998 brochure is a crucial piece of your personal history, it's infuriating that the medical system often requires more contemporary, formal documentation to take a condition seriously. It's a common and deeply unfair situation for those who were diagnosed decades ago, before current record-keeping and testing were standard. You are not alone in this struggle.
    • Scott Adams
      Methylprednisolone is sometimes prescribed for significant inflammation of the stomach and intestines, particularly for conditions like Crohn's disease, certain types of severe colitis, or autoimmune-related gastrointestinal inflammation. As a corticosteroid, it works by powerfully and quickly suppressing the immune system's inflammatory response. For many people, it can be very effective at reducing inflammation and providing rapid relief from symptoms like pain, diarrhea, and bleeding, often serving as a short-term "rescue" treatment to bring a severe flare under control. However, experiences can vary, and its effectiveness depends heavily on the specific cause of the inflammation. It's also important to be aware that while it can work well, it comes with potential side effects, especially with longer-term use, so it's typically used for the shortest duration possible under close medical supervision. It's always best to discuss the potential benefits and risks specific to your situation with your gastroenterologist.
    • Scott Adams
      Based on what you've described, it is absolutely possible you are dealing with non-celiac gluten sensitivity (NCGS).  Approximately 10x more people have non-celiac gluten sensitivity than have celiac disease, but there isn’t yet a test for NCGS. If your symptoms go away on a gluten-free diet it would likely signal NCGS.   Your situation is a classic presentation: a negative celiac panel but a clear, recurring pattern of symptoms triggered by gluten. The symptoms you listed—particularly the extreme fatigue, bloating, neurological-psychiatric symptoms like depression and anxiety, and even the skin manifestations like facial flushing—are all well-documented in research on NCGS. It's important to know that you are not alone in experiencing this specific combination of physical and emotional reactions. The only way to know for sure is to commit to a strict, 100% gluten-free diet under the guidance of a doctor or dietitian for a period of several weeks to see if your symptoms significantly improve. It is also crucial to rule out other potential causes, so discussing these symptoms with a gastroenterologist is a very important next step.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.