Question For Ravenwoodglass Re: Gluten Sensitivity Gene Test Aug 2007

[MsCurious]

Hey Raven,

What test is this specifically? Gluten Sensitivity Gene Test Aug 2007

I saw that on your sig and wondered... Thank ya!

[cassP]

  On 2/26/2011 at 12:56 AM, MsCurious said:

Hey Raven,

What test is this specifically? Gluten Sensitivity Gene Test Aug 2007

I saw that on your sig and wondered... Thank ya!

hey- im only ASSUMING from her signature that she may have used Enterolab.com ?? but please dont quote me, and hopefully she responds.

i used Enterolab

[ravenwoodglass]

I used Enterolab. That was back when they were allowed to ship to NY state, they aren't now. I didn't have it done as part of my diagnosis. I had it done 5 years after because my blood and biopsy positive daughter, who had great success with the diet, decided to get retested in college. She was tested at a very well respected hospital where she went to school and was told her diagnosis was false and that she couldn't be celiac because she doesn't have DQ2 or DQ8. That prompted me to test. That was when I found that I don't have those genes either although I have a firm celiac diagnosis. I did a great deal of research and discovered my genes are considered RA associated here but are celiac associated in other countries. Interestingly many RA patients have also been diagnosed with 'IBS' and some like myself have seen their RA go into remission with the diet. Thus my urging of folks not to accept the 'you can't be celiac because you don't have those two genes'.

[MsCurious]

  On 2/26/2011 at 11:28 AM, ravenwoodglass said:

I used Enterolab. That was back when they were allowed to ship to NY state, they aren't now. I didn't have it done as part of my diagnosis. I had it done 5 years after because my blood and biopsy positive daughter, who had great success with the diet, decided to get retested in college. She was tested at a very well respected hospital where she went to school and was told her diagnosis was false and that she couldn't be celiac because she doesn't have DQ2 or DQ8. That prompted me to test. That was when I found that I don't have those genes either although I have a firm celiac diagnosis. I did a great deal of research and discovered my genes are considered RA associated here but are celiac associated in other countries. Interestingly many RA patients have also been diagnosed with 'IBS' and some like myself have seen their RA go into remission with the diet. Thus my urging of folks not to accept the 'you can't be celiac because you don't have those two genes'.

So it is your DQ test that you were referring to? I just wondered if there was a "Gluten Intolerance test" out there that I wasn't aware of. And yeah, from what I'm reading, there seem to be connections with RA and at the very least the antibodies and immune system. Its probably all related. They're still finding those things out.

My doctor got allergist involved and now I'm starting to get the tests that will probably diagnose me. Persistence seems to pay off. Its not a popularity contest... I'm sure my doctor thinks... okay... okay... lets just get this done and get you out of my hair! LOL

[ravenwoodglass]

  On 2/26/2011 at 8:22 PM, MsCurious said:

So it is your DQ test that you were referring to? I just wondered if there was a "Gluten Intolerance test" out there that I wasn't aware of. And yeah, from what I'm reading, there seem to be connections with RA and at the very least the antibodies and immune system. Its probably all related. They're still finding those things out.

My doctor got allergist involved and now I'm starting to get the tests that will probably diagnose me. Persistence seems to pay off. Its not a popularity contest... I'm sure my doctor thinks... okay... okay... lets just get this done and get you out of my hair! LOL

Yes it is the DQ test that I am referring to. I had been diagnosed 5 years before that with celiac so I didn't do the gluten testing. Enterolab can do testing for gluten antibodies, if you want it done simply contact the web site for information. They do not diagnose celiac but they can tell you if you are making antibodies to gluten.