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Recent Activity
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- knitty kitty replied to Alibu's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms13
Waiting on biopsy after positive bloodwork, but also not really believing this is real
@Alibu, I think you should send the National Institute of Health peer reviewed studies I linked to your doctors. Some doctors don't keep abreast of the recent updates to Celiac diagnosis. They may still be operating under the old idea of waiting until intestinal damage is at a Marsh score of 3C or 4 (complete villus atrophy) before diagnosis of Celiac... -
- Alibu replied to Alibu's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms13
Waiting on biopsy after positive bloodwork, but also not really believing this is real
@knitty kitty Thank you for your response!! So do you think my doctor might still diagnose celiac even with the negative biopsy? At this point I'm just wondering like do I have to be super careful when I eat places for cross-contamination, or do I just have to eat gluten free and not worry about the damage so much as the symptoms, you know? Like with celiac... -
- knitty kitty replied to Gary Libby's topic in Gluten-Free Recipes & Cooking Tips4
Newly Diagnosed
Welcome to the forum, @Gary Libby! Have you talked to your doctors and nutritionist about checking for nutritional deficiencies and supplementing with vitamins and minerals while you're healing? Malabsorption caused by the inflammation and damage of celiac disease can deplete our stored vitamins, making us feel poorly the majority of the time... -
- knitty kitty replied to terrymouse's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms6
Probably celiac but also confused
@terrymouse, I agree that you may be suffering from nutritional deficiencies already. Get tested for nutritional deficiencies before supplementing, otherwise the vitamins you're taking can mask a deficiency. Symptoms that you have are similar to what I experienced with malabsorption of Celiac Disease. I would lose my appetite; if I did eat,... -
- knitty kitty replied to Alibu's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms13
Waiting on biopsy after positive bloodwork, but also not really believing this is real
@Alibu, There may not be textbook intestinal damage in the early stage of Celiac Disease!!! Keep in mind that the endoscope used can only reach about a foot past the stomach, while the small intestines are twenty-two feet long! Damage can be patchy or out of reach of the scope. Early celiac disease may not show damage at all. Don't compare...
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