Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Elevated Tsh

scottyg354

Recommended Posts

scottyg354 Enthusiast
scottyg354
Posted

Well guys, been a few days since I posted. Quick question. Is it possible that Celiac could have caused my TSH to rise to 8.5. I am on levothyroxine and have felt pretty bad for years like maybe 6 or 7. Levothyroxine seemed to help at first but now I am back to square one. I cut out Gluten for a week and half and thought I felt better, but I am going for testing at the end of the month (scopes and all) and am just curious. I mean you would think after six or seven years that my TSH would have been a little higher.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Gemini Experienced
Gemini
Posted

Well guys, been a few days since I posted. Quick question. Is it possible that Celiac could have caused my TSH to rise to 8.5. I am on levothyroxine and have felt pretty bad for years like maybe 6 or 7. Levothyroxine seemed to help at first but now I am back to square one. I cut out Gluten for a week and half and thought I felt better, but I am going for testing at the end of the month (scopes and all) and am just curious. I mean you would think after six or seven years that my TSH would have been a little higher.

If you are still eating gluten and do have Celiac, then yes, your thyroid function could be getting worse. TSH is not linear in how people respond. Some can get as high as 25 and feel bad, but not horrible while others will be as sluggish as a turtle with a TSH of 6. If you have been taking thyroid supplement, that could be helping to keep your numbers a bit lower, which is good, but obviously there's a problem causing it to be high while on meds.

You need a stronger dose or a different type of thyroid supplement.

Good luck with your testing...I hope you get some answers!

ravenwoodglass Mentor
ravenwoodglass
Posted

In addition if you are celiac you may not be absorbing your meds as well as you would otherwise so you would need a higher dose for the same effect.

scottyg354 Enthusiast
scottyg354
Posted
  • Author

In addition if you are celiac you may not be absorbing your meds as well as you would otherwise so you would need a higher dose for the same effect.

The meds did lower my TSH down to like 3 but I'm still feeling bad, with GI problems and skin issues. Only thing they really helped with was sleeping all day and night.

ravenwoodglass Mentor
ravenwoodglass
Posted

The meds did lower my TSH down to like 3 but I'm still feeling bad, with GI problems and skin issues. Only thing they really helped with was sleeping all day and night.

Glad your going to get your tests over with fairly soon. Hopefully once those are done and you can get on the diet strictly the GI and skin issues will resolve.

scottyg354 Enthusiast
scottyg354
Posted
  • Author

Glad your going to get your tests over with fairly soon. Hopefully once those are done and you can get on the diet strictly the GI and skin issues will resolve.

Me too been a crazy few years. I hope its something easily fairly easy to manage like Celiacs, and not an IBD.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,162
    • Most Online (within 30 mins)
      7,748
    Jean Kemling
    Newest Member
    Jean Kemling
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • DAR girl
      Celiac and allergic to common subs and adds in prepared foods

      By DAR girl · Posted

      Looking for help sourcing gluten-free products that do not contain potato or corn derived ingredients. I have other autoimmune conditions (Psoriatic Arthritis and Sjogrens) so I’m looking for prepared foods as I have fatigue and cannot devote a lot of time to baking my own treats. 
    • Scott Adams
      Disregarded

      By Scott Adams · Posted

      I am so sorry you're going through this. It's completely understandable to feel frustrated, stressed, and disregarded after such a long and difficult health journey. It's exhausting to constantly advocate for yourself, especially when you're dealing with so many symptoms and positive diagnoses like SIBO, while still feeling unwell. The fact that you have been diligently following the diet without relief is a clear sign that something else is going on, and your doctors should be investigating other causes or complications, not dismissing your very real suffering. 
    • Oldturdle
      Paying for my own Celiac screening at WalkInLab so a positive result doesn’t become part of my medical history

      By Oldturdle · Posted

      It is just so sad that health care in the United States has come to this.  Health insurance should be available to everyone, not just the healthy or the rich.  My heart goes out to you.  I would not hesitate to have the test and pay for it myself.  My big concern would be how you could keep the results truly private.  I am sure that ultimately, you could not.  A.I. is getting more and more pervasive, and all data is available somewhere.  I don't know if you could give a fake name, or pay for your test with cash.  I certainly would not disclose any positive results on a private insurance application.  As I understand it, for an official diagnosis, an MD needs to review your labs and make the call.  If you end up in the ER, or some other situation, just request a gluten free diet, and say it is because you feel better when you don't eat gluten.      Hang in there, though.  Medicare is not that far away for you, and it will remove a lot of stress from your health care concerns.  You will even be able to "come out of the closet" about being Celiac!
    • plumbago
      Paying for my own Celiac screening at WalkInLab so a positive result doesn’t become part of my medical history

      By plumbago · Posted

      Yes, I've posted a few times about two companies: Request a Test and Ulta Labs. Also, pretty much we can all request any test we want (with the possible exception of the N protein Covid test and I'm sure a couple of others) with Lab Corp (or Pixel by Lab Corp) and Quest. I much prefer Lab Corp for their professionalism, ease of service and having it together administratively, at least in DC. And just so you know, Request a Test uses Lab Corp and Quest anyway, while Ulta Labs uses only Quest. Ulta Labs is cheaper than Request a Test, but I am tired of dealing with Quest, so I don't use them so much.
    • Scott Adams
      Does Dailymed.nlm.nih.gov site have filters for gluten?

      By Scott Adams · Posted

      PS - I think you meant this site, but I don't believe it has been updated in years: http://glutenfreedrugs.com/ so it is best to use: You can search this site for prescriptions medications, but will need to know the manufacturer/maker if there is more than one, especially if you use a generic version of the medication: To see the ingredients you will need to click on the correct version of the medication and maker in the results, then scroll down to "Ingredients and Appearance" and click it, and then look at "Inactive Ingredients," as any gluten ingredients would likely appear there, rather than in the Active Ingredients area. https://dailymed.nlm.nih.gov/dailymed/   
×
×
  • Create New...