Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Specific Carbohydrate Diet (Scd)


Melati

Recommended Posts

Melati Newbie

My husband and daughter (18 yrs old) both have celiac disease. My daughter has been diagnosed with refractory celiac disease and has more serious problems, but my husband also has had ongoing, lingering issues even on a gluten-free diet for 15 years. They are both just starting on the Specific Carbohydrate Diet. I would love to talk to anyone else out there who is doing this. We have a few questions that I can't seem to find answers for online at the SCD websites. (maybe I just don't know where to look)

Our 24-hour (SCD "legal") goats milk yogurt came out a bit runny and quite sour. I think this is probably normal, but just want to confirm with someone. I'm also wondering how do you really know if the machine worked properly and kept the yogurt at the right temp for the whole 24 hours so as to use up all the lactose?

I also made French Cream with Half and Half. (the 24 hour kind) It came out much thicker and not nearly as sour as the goats milk.

Since starting the diet this past weekend (and eating the yogurt) my daughter's stools are being affected. She doesn't normally have diarrhea as a regular symptom, but is saying her stools are soft, light-colored and come with lots of gas. Does this mean she's reacting to the yogurt, or is it a detox symptom? Can you start detoxing after only 2 days? She's already been off sugar and grains for a long time. (although she was still eating some things considered "illegal" on the SCD, which we've now cut out.) She has been off cow's milk for over a year. Up until we started the SCD and made our own yogurt, she was eating store-bought goats milk yogurt from Trader Joe's and seemed to handle it ok. (???) So maybe she shouldn't have the French Cream??

Thanks! ~Melati


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Takala Enthusiast

Hi Melati,

I did the Specific Carbohydrate Diet in the beginning, around 8 years ago, but I used it as a guide and did not follow all the "rules" strictly. At the time I avoided all dairy, even yogurt. This SCD diet was invented by a northern European lady who had great but sometimes eccentric ideas about foods, and I found some of the rules pretty contradictory.

My rule for myself is that even if a diet says "yes," for a certain item, if it doesn't work for me, it just doesn't work. Makes life simpler.

No matter what I did, I could not get comfortable with yogurt. Even now, years later, there is like one brand I can do a little of. I can eat lots of hard cheese as long as it's organic. Go figure. I'm convinced that a lot of yogurt still has lactose. It was almost comical. I was, by gosh, going to make myself find and eat yogurt every day. I was going to put it in gluten free baking. I finally gave up. Thank God.

But the probiotics! And it must be HOMEMADE ! Uhm, I figure I get enough of that from other food. Olives, saurkraut....

I am part Northern European and probably then carry enough genes to tolerate dairy in my healthier state, as an adult, but for some people, this just isn't going to happen.

Be cautious, also, that things like tomato juice, and juice based drinks, which USED to be perfectly safe in America, are now run through processing plants where they make all sorts of juice drinks with added ingredients. Including grain byproducts as thickeners. I used to use tomato juice a lot to replace the tomato products that the SCD said were bad for me. Now I just use plain canned tomato products, ingredients, "tomatoes," and it's a lot safer.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Florence Lillian replied to lmemsm's topic in Gluten-Free Recipes & Cooking Tips
      13

      gluten free cookie recipes

    2. - Russ H replied to Charlie1946's topic in Related Issues & Disorders
      15

      Severe severe mouth pain

    3. - cristiana replied to Charlie1946's topic in Related Issues & Disorders
      15

      Severe severe mouth pain

    4. - Scott Adams replied to lmemsm's topic in Gluten-Free Recipes & Cooking Tips
      13

      gluten free cookie recipes

    5. - Florence Lillian replied to xxnonamexx's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      1

      Fermented foods, Kefir, Kombucha?

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      132,911
    • Most Online (within 30 mins)
      7,748

    AngieMcK24
    Newest Member
    AngieMcK24
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • Florence Lillian
      More cookie recipes ...thanks so much for the heads-up Scott.  One can never have too many.  Cheers, Florence.
    • Russ H
      Hi Charlie, You sound like you have been having a rough time of it. Coeliac disease can cause a multitude of skin, mouth and throat problems. Mouth ulcers and enamel defects are well known but other oral conditions are also more common in people with coeliac disease: burning tongue, inflamed and swollen tongue, difficulty swallowing, redness and crusting in the mouth corners, and dry mouth to name but some. The link below is for paediatric dentistry but it applies to adults too.  Have you had follow up for you coeliac disease to check that your anti-tTG2 antibodies levels have come down? Are you certain that you not being exposed to significant amounts of gluten? Are you taking a PPI for your Barrett's oesophagus? Signs of changes to the tongue can be caused by nutritional deficiencies, particularly iron, B12 and B9 (folate) deficiency. I would make sure to take a good quality multivitamin every day and make sure to take it with vitamin C containing food - orange juice, broccoli, cabbage etc.  Sebaceous hyperplasia is common in older men and I can't find a link to coeliac disease.   Russ.   Oral Manifestations in Pediatric Patients with Coeliac Disease – A Review Article
    • cristiana
      Hi @Charlie1946 You are very welcome.   I agree wholeheartedly with @knitty kitty:  "I wish doctors would check for nutritional deficiencies and gastrointestinal issues before prescribing antidepressants." I had a type of tingling/sometimes pain in my cheek about 2 years after my diagnosis.  I noticed it after standing in cold wind, affecting  me after the event - for example, the evening after standing outside, I would feel either tingling or stabbing pain in my cheek.   I found using a neck roll seemed to help, reducing caffeine, making sure I was well-hydrated, taking B12 and C vitamins and magnesium.  Then when the lockdowns came and I was using a facemask I realised that this pain was almost entirely eliminated by keeping the wind off my face.  I think looking back I was suffering from a type of nerve pain/damage.  At the time read that coeliacs can suffer from nerve damage caused by nutritional deficiencies and inflammation, and there was hope that as bodywide healing took place, following the adoption of a strict gluten free diet and addressing nutritional deficiencies, recovery was possible.   During this time, I used to spend a lot of time outdoors with my then young children, who would be playing in the park, and I'd be sheltering my face with an upturned coat collar, trying to stay our of the cold wind!  It was during this time a number of people with a condition called Trigeminal Neuralgia came up to me and introduced themselves, which looking back was nothing short of miraculous as I live in a pretty sparsely populated rural community and it is quite a rare condition.   I met a number of non-coeliacs who had suffered with this issue  and all bar one found relief in taking medication like amitriptyline which are type of tricyclic anti-depressant.   They were not depressed, here their doctors had prescribed the drugs as pain killers to address nerve pain, hence I mention here.  Nerve pain caused by shingles is often treated with this type of medication in the UK too, so it is definitely worth bearing in mind if standard pain killers like aspirin aren't working. PS  How to make a neck roll with a towel: https://www.painreliefwellness.com.au/2017/10/18/cervical-neck-roll/#:~:text=1.,Very simple. 
    • Scott Adams
      We just added a ton of new recipes here: https://www.celiac.com/celiac-disease/gluten-free-recipes/gluten-free-dessert-recipes-pastries-cakes-cookies-etc/gluten-free-cookie-recipes/
    • Florence Lillian
      I have had celiac for many years and still had terrible digestion. I cook from scratch, never eat anything with gluten ( A Gut that needs special attention seems to affect many who suffer from celiac) .  I made my own Kombucha, it helped my Gut much more than the yogurt I made but I still had issues. Water Kefir did nothing. As a last resort I made MILK Kefir and it has really started healing my Gut. It has been about 2 months now and I am doing so much better. It was trial and error getting the right PH in the Kefir ferment that agreed with my stomach, too little ferment, too much, I finally hit the right one for me. Milk Kefir has the most probiotics than any of the other. I can't find my notes right now but there are at least 30 probiotics in Kefir, Kombucha has about 5-7 and yogurt around 3 if I recall correctly.  I wish you all the best, I know how frustrating this condition can be. 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.