Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Wish Me Luck!

Jatango

Recommended Posts

Jatango Rookie
Jatango
Posted

Hey all you Silly Yaks! :)

I'm off to get blood tested tomorrow and just need to commiserate with some other gluten sensitive people. That gluten loading the day before is TORTURE! So far today, I've had a biscuit, cruddy lipton noodles for lunch and mac and cheese for dinner. My gut isn't pleased, but I really want a clear result.

A wee bit of history, I am a 25 female, no children with a TSH of 90(!) and potential Hashimoto antibodies. My DO thinks I have the DQ2 or DQ8 HLA complex, testing will be performed for that too.

The bloating and constipation has been so bad since I started treating my thyroid that even if I come back "negative," I'm going off. I know I can feel better than this, and I really want to.

Thanks for being here!

Jess

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


ravenwoodglass Mentor
ravenwoodglass
Posted

You say the gluten loading day the day before the tests is awful, does that mean you have been gluten free or gluten light? If so that one day back on gluten is not likely to give positive results on any testing. A gluten challenge is usually needed for 2 to 3 months for the antibodies to present in the blood. It sounds like you know you need to gluten free no matter what the results so I hope the gluten loading doesn't make you feel too awful.

GFinDC Veteran
GFinDC
Posted

Well, I hope you have been eating gluten longer than 1 day before your testing! The usual recommendation around here is 3 months at least. Even at that, there is still a chance of a false negative, as the tests are not 100% per cent accurate.

So it would be good to do the diet for several months anyway, regardless of the test results.

Good luck on your test! :-)

Jatango Rookie
Jatango
Posted
  • Author

Well, I hope you have been eating gluten longer than 1 day before your testing! The usual recommendation around here is 3 months at least. Even at that, there is still a chance of a false negative, as the tests are not 100% per cent accurate.

So it would be good to do the diet for several months anyway, regardless of the test results.

Good luck on your test! :-)

Oh no, I am gluten-full and have been for years. I just made sure to go overboard on that last day. :) Today I am VERY gluten lite and feeling much much better. :) The vampires took NINE tubes of blood this morning. Sheesh!

ravenwoodglass Mentor
ravenwoodglass
Posted

Oh no, I am gluten-full and have been for years. I just made sure to go overboard on that last day. :) Today I am VERY gluten lite and feeling much much better. :) The vampires took NINE tubes of blood this morning. Sheesh!

If you are going to have the biopsy done do keep on a gluten full diet until afterwards. After the biopsy is done or if you are done with testing don't go gluten lite go gluten free. Gluten light won't stop the antibodies.

Jatango Rookie
Jatango
Posted
  • Author

If you are going to have the biopsy done do keep on a gluten full diet until afterwards. After the biopsy is done or if you are done with testing don't go gluten lite go gluten free. Gluten light won't stop the antibodies.

Yeah, I just reduced the gluten today because I was feeling so cruddy. After we're done diagnosing things, I will probably go gluten free, one way or the other. I've been down this road before with an elimination diet, but my compliance as a 17 year old wasn't fantastic.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. Churro
      - Churro replied to Churro's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      15

      Celiac disease symptoms

      Thanks for your input.
    2. trents
      - trents replied to Churro's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      15

      Celiac disease symptoms

      If you have hemorrhoids 1x weekly I don't see how you have time to heal from one episode before you experience another one, unless each one is a very minor event. Have you consulted a physician about your hemorrhoid issue? It's not normal to be having an episode every week unless it is really one episode that is not completely healing between weekly...
    3. Churro
      - Churro replied to Churro's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      15

      Celiac disease symptoms

      No I haven't had one since 2021. I rarely have more than 1 per week.
    4. trents
      - trents replied to Churro's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      15

      Celiac disease symptoms

      Sorry, I see that now as I reread your original post. You say you have hemorrhoids "only once a week" now. When I develop hemorrhoids, which is once every few years now, it generally takes 3-4 days for healing to take place. So, it doesn't seem like you could have much relief time between episodes if you have them weekly. Have you had a lower GI scoping done...
    5. Churro
      - Churro replied to Churro's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      15

      Celiac disease symptoms

      Everyday I eat a medium to large apple in the morning and a large banana at night. I eat a cup of oatmeal in the evening. The ezekiel wheat bread I eat has a good amount of fiber. I haven't dealt with constipation for at least a year. Most of the time my feces are soft.
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,055
    • Most Online (within 30 mins)
      7,748
    EllieBelly
    Newest Member
    EllieBelly
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Who's Online (See full list)

  • Upcoming Events

  • Posts

    • Churro
      Celiac disease symptoms

      By Churro · Posted

      Thanks for your input. 
    • trents
      Celiac disease symptoms

      By trents · Posted

      If you have hemorrhoids 1x weekly I don't see how you have time to heal from one episode before you experience another one, unless each one is a very minor event. Have you consulted a physician about your hemorrhoid issue? It's not normal to be having an episode every week unless it is really one episode that is not completely healing between weekly flareups.
    • Churro
      Celiac disease symptoms

      By Churro · Posted

      No I haven't had one since 2021. I rarely have more than 1 per week. 
    • trents
      Celiac disease symptoms

      By trents · Posted

      Sorry, I see that now as I reread your original post. You say you have hemorrhoids "only once a week" now. When I develop hemorrhoids, which is once every few years now, it generally takes 3-4 days for healing to take place. So, it doesn't seem like you could have much relief time between episodes if you have them weekly. Have you had a lower GI scoping done recently?
    • Churro
      Celiac disease symptoms

      By Churro · Posted

      Everyday I eat a medium to large apple in the morning and a large banana at night. I eat a cup of oatmeal in the evening. The ezekiel wheat bread I eat has a good amount of fiber. I haven't dealt with constipation for at least a year. Most of the time my feces are soft. 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.