Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

What Are The Odds I'm Pre-Diabetic?


Fire Fairy

Recommended Posts

Fire Fairy Enthusiast

My brother has type 1 diabetes. Several other family members have type 2. I have noted for several years now that sometimes my urine smells like pancake syrup. I asked my brother and he said he had never noticed his urine smelling sweet but his nose isn't the best. I had tried googling it about a year ago and found no information. Just now I googled and found info which says I should be concerned

Open Original Shared Link

"Sweet smelling

Catching a whiff of something sugary sweet after you pee might actually be a clue to something very serious going on in your body.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



YoloGx Rookie

My brother has type 1 diabetes. Several other family members have type 2. I have noted for several years now that sometimes my urine smells like pancake syrup. I asked my brother and he said he had never noticed his urine smelling sweet but his nose isn't the best. I had tried googling it about a year ago and found no information. Just now I googled and found info which says I should be concerned

Open Original Shared Link

"Sweet smelling

Catching a whiff of something sugary sweet after you pee might actually be a clue to something very serious going on in your body.

Fire Fairy Enthusiast

Thank you for responding Yolo. If I just need a standard blood sugar test I have several family members who have the blood sugar test machines. Everytime I've tested it I've been normal.

Dandylion root tea sounds lovely. :)

IrishHeart Veteran

I agree and I think your system is correcting itself. Erratic blood sugars are common, I have read, with celiac and perhaps, you are leveling off now that you are gluten free! Go with yolo's suggestion.. the dandelion tea will help clear the liver. :)

My glucose levels used to go up and down. My thyroid panels do too...but now, they are "normal" (hooray) No meds. My sister has type 1 diabetes and I have used her meter to check myself and I am okay, too...but it is wise to watch ourselves, nonetheless. :)

A blood test, when you can afford it, may put your mind at ease!

YoloGx Rookie

I agree and I think your system is correcting itself. Erratic blood sugars are common, I have read, with celiac and perhaps, you are leveling off now that you are gluten free! Go with yolo's suggestion.. the dandelion tea will help clear the liver. :)

My glucose levels used to go up and down. My thyroid panels do too...but now, they are "normal" (hooray) No meds. My sister has type 1 diabetes and I have used her meter to check myself and I am okay, too...but it is wise to watch ourselves, nonetheless. :)

A blood test, when you can afford it, may put your mind at ease!

Hi Irish heart. Nice to know I gave some good advice.

Meanwhile I would like to ask you about your experience with your thyroid. My friend Graeme right now is "crashing'. He's taking levothyroxin and still can't sleep, is subject to the cold, has constipation, exhaustion but can't sleep, brain fog etc. though he is quite thin. I figure he's having trouble with his adrenals. We had him take a bunch of tests for his thyroid recently which he should get results of next week.

He has celiac too which makes me wonder about the whole thing, if maybe this crash is in part due to his not needing to be on so much thyroxin. However I also think the low adrenals are getting in the way of converting T-4 to T-3 and thus creating a toxic condition.

What seemed to set it off was both the cold weather and his being on a severe anti candida diet. He stopped eating all grains and squash except for zucchinis. I convinced him this was bad for his health. He is doing a little better now that he is eating some rice each day and now has added lentils to his diet. However he still is in a crisis.

Any insights as to what to do meanwhile? Am wondering if he should go see a functional medicine doc. instead of the county doc he usually sees... This has been going on for far too long.

IrishHeart Veteran

Gosh, I do not know what to say about your friend. What does his endocrinologist think of all this?? It does not seem right hat he has so many symptoms while on meds. I think those severe candida diets often cause nutritional deficiencies (JMHO) when someone remains on them too long.

My experience was BEFORE I went gluten-free, when I was very tired and ill and overweight. My TSH was 5.3 and the doctor put me on synthroid. I zoomed to .8. I felt jittery and wired and had a whole bunch of symptoms (we now know were from the celiac) and the endo said snarkily "It's not your thyroid giving you all those symptoms! Your numbers are fine" FINE? I felt awful!!

I started dropping weight and losing my hair rapidly and had MAJOR gastro and sleep problems.

So, I went to a NP who specializes in hormone balancing and she put me on Armour and tested my adrenal function via saliva testing. My cortisol was high in the morning and I was working with an ND, so I tried every homeopathic remedy and supplement to "restore my adrenals" and nothing changed my raciness, anxiety, gastro symptoms, fatigue. I went on an "adrenal fatigue diet", including MORE whole WHEAT, etc. FOR 9 MONTHS..and got more and more ill..!!!!.little did we know...I had celiac and so, I lost nearly two years listening to all kinds of medical practitioners---mainstream and alternative---and things just got worse.

A functional med MD listened to my story, how I felt my thyroid was trying to work on its own and that I was really jumping out of my skin. He ran tests and decided that because my thyroid antibodies were so low, I asked him did he think I needed to be on ANY medication and he said NO. I agreed with him and stopped taking it and within a month, I felt a bit better (well, I still had some bad symptoms because of the gluten but at least I wasn't racing in my brain and unable to sit still) and my numbers, TSH, T3, T4 are all normal now. My latest cortisol readings were within normal range. I believe the gluten affected the thyroid and adrenals and that they are functioning almost normally now as my body gets rid of the gluten.

Going gluten-free has helped me with the other issues of brain fog, rapid weight loss, anxiety, jitteryness...but I think the medicine made me HYPER because I did not even need medicine at all, rather I needed to be OFF gluten!!

So, I think, that in MY case, My thyroid numbers were off --just slightly hypo, for most of my life and the celiac was the real reason. Now that I am gluten-free, I think my thyroid is functioning normally. I'll see next month when I go back for blood work.

Wish I could offer more thoughts regarding your friend.

sorry.

Fire Fairy Enthusiast

Thank you both. So glad to read of your improvements IrishHeart. I hope your friend starts improving soon Yolo.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



YoloGx Rookie

Thank you both. So glad to read of your improvements IrishHeart. I hope your friend starts improving soon Yolo.

He is getting better thankfully--as I hope you are too.

I have him taking dandelion/chicory root tea to help detox--similar to what I suggested for you.

He's also now on natural things to help his adrenals--like ashwaganda, more co-enzyme B vitamins, 5HTP to help him sleep, more frequent meals. He'll be seeing an endocrinologist soon.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Ginger38 replied to Ginger38's topic in Related Issues & Disorders
      4

      Shingles - Could It Be Related to Gluten/ Celiac

    2. - Mari replied to Jmartes71's topic in Related Issues & Disorders
      18

      My only proof

    3. - Ginger38 replied to Xravith's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      Challenges eating gluten before biopsy

    4. - Scott Adams replied to Xravith's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      Challenges eating gluten before biopsy

    5. - Scott Adams replied to emzie's topic in Related Issues & Disorders
      2

      Stomach hurts with movement


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,470
    • Most Online (within 30 mins)
      7,748

    Elkay008
    Newest Member
    Elkay008
    Joined

  • Celiac.com Sponsor (A20):



  • Celiac.com Sponsor (A22):




  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Ginger38
      It has been the most terrible illness ever! Going on 3 weeks now… I had chicken pox as a kid… crazy how much havoc this dormant virus has caused after being reactivated! No idea what even caused it to fire back up. I’m scared this pain and sensitivity is just never going to improve or go away 
    • Mari
      OKJmartes. Skin and eyes. Also anxiety and frustration. I have read that Celiacs have more skin problems than people who do not have Celiacs. I take increased levels of Vit. D3, very high levels of B12 and an eating part of an avocado every day. KnittyKitty and others here can add what they take for skin health. A Dermatologist might identify the type of skin condition. By eyes you may mean eyesight problems not just irritated, red eyes. It is not very difficult to get a diagnosis of which eye condition is affecting your vision but much more difficult to find an effective remedy. The ophthalmologists I have seen have been only a little helpful. There seems to have been some advances in eye treatments that most of them are completely ignorant of or just won't add to their treatment plans.  Forcertain you may as well buy some remedy from a facebook ad but that is obviously risky and may actually damafe your eyes. However it is known that certain supplements , taken at the effectivelevels do help with eyesight. Two of them are Luten and zanthamin (spelling?)and certain anti-oxidants such as bilberry..    Hope this helps.
    • Ginger38
      I refused to do the gluten challenge for a long time because I knew how sick I would be: I have always had and still have positive antibodies and have so many symptoms my  GI was 💯 sure I would have a positive biopsy. I didn’t want to make myself sick to get a negative biopsy and be more confused by all this.  He couldn’t guarantee me a negative biopsy meant no celiac bc there may not be damage yet or it’s possible to miss biopsies where there’s damage but he was so sure and convinced me I needed that biopsy I went back on gluten. It was a terrible experience! I took pictures of the bloating and swelling and weight gain during the challenge. I gained 9 pounds, looked pregnant, was in pain , couldn’t work or function without long naps and the brain fog was debilitating. And in the end he didn’t get a positive biopsy… so I wish I had never wasted my time or health going through it. I haven’t been truly straightened  out since and I am currently battling a shingles infection at 43 and I can’t help but wonder if the stress I put my body under to try and get an official diagnosis has caused all this. Best of luck to you - whatever you decide. It’s not a fun thing to go through and I still don’t have the answers I was looking for 
    • Scott Adams
      It's completely understandable to struggle with the gluten challenge, especially when it impacts your health and studies so significantly. Your experience of feeling dramatically better without gluten is a powerful clue, whether it points to celiac disease or non-celiac gluten sensitivity. It's very wise of you and your doctor to pause the challenge until your holidays, prioritizing your immediate well-being and exams. To answer your questions, yes, it is possible for blood tests to be negative initially and become positive later as the disease progresses, which is why the biopsy remains the gold standard. Many, many people find the gluten challenge incredibly difficult due to the return of debilitating symptoms, so you are certainly not alone in that struggle. Wishing you the best for your exams and for obtaining clearer answers when you're able to proceed.
    • Scott Adams
      It's smart that you're seeing the gastroenterologist tomorrow. While it's possible this is a severe and persistent inflammatory reaction to gluten, the fact that the pain is movement-dependent and localized with tenderness is important for your specialist to hear. It could indeed be significant inflammation, but it's also worth ruling out other overlapping issues that can affect those with celiac disease. Is it possible you got some gluten in your diet somehow? This could be a possible trigger. Hopefully, tomorrow's appointment will provide clearer answers and a path to relief so you can get back to your lectures and enjoy your weekend. Wishing you all the best for the consultation.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.