Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Do I Have Celiac Disease?

shawnandjessm

Recommended Posts

shawnandjessm Newbie
shawnandjessm
Posted

Here's my results of the blood test:

gliadin IgA -- <5

gliadin IgG -- 13.5 (normal is under 10)

Reticulin IgA --<1.10

Endomysial IgA AB-- <1.10

Do I have celiac? Any help would be greatly appreciated!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


ravenwoodglass Mentor
ravenwoodglass
Posted

Did your doctor do a total IGA? If that is low then it would produce a false negative in the IGA tests. You do have a high result for the IGG so after you are done with all celiac related testing, including the endo if you are going to have it, then go ahead and do a strict trial of the diet. While false negatives are common in blood tests false positives are not.

shawnandjessm Newbie
shawnandjessm
Posted
  • Author

Thanks for the reply! I did not get a total IGA. I see the doctor on Tuesday so we'll see what he says, although I'm pregnant so can't do the endo at this point. Is there a reason to do the gluten free diet if the doctor doesn't think I have celiac disease and I'm not showing any problems or symptoms? I just had the test because my sister was diagnosed.

Also, I was wondering about the endomysial IGA. Since there is a number there is that a positive result, or is it low enough to be considered negative? Thank you.

ravenwoodglass Mentor
ravenwoodglass
Posted

In my opinion since you do have a positive result you need to be on the diet. Do also post in the pregnacy section to get the advice of others but since undiagnosed celiac can be linked to miscarriages IMHO it would be best to be gluten free. After the baby is born then you can do a gluten challenge for 3 months or so and get retested. Since you already have a positive result there is a good chance that your symptoms may get worse after the baby is born. Childbirth is often a trigger for celiac or causes our symptoms to become more obvious.

shawnandjessm Newbie
shawnandjessm
Posted
  • Author

I saw the doctor today and he said since it is mildly positive he wouldn't worry about it. He said next time I have labwork for my pregnancy to have them retest, and see if the numbers are similar.

ravenwoodglass Mentor
ravenwoodglass
Posted

I saw the doctor today and he said since it is mildly positive he wouldn't worry about it. He said next time I have labwork for my pregnancy to have them retest, and see if the numbers are similar.

I really have to disagree with your doctor. Being a little bit in the positive range is like being a little in the positive range in a pregnacy test.

katie-sbb Newbie
katie-sbb
Posted



  • IgG antibodies do cross the placenta.
  • You are producing IgG at least for gliadin
  • The fetus will carry at least one of your HLA allelles
  • HLA seems involved in this cross reaction
  • Science has only poorly defined the antibodies being produced
  • There is a strong association with miscarriages

Why not play it safe and go gluten free through pregnancy and breast feeding?

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      132,207
    • Most Online (within 30 mins)
      7,748
    WAB19
    Newest Member
    WAB19
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • trents
      Taking Probiotics but Still Getting Sick After Gluten – Advice?

      By trents · Posted

      NCGS does not cause damage to the small bowel villi so, if indeed you were not skimping on gluten when you had the antibody blood testing done, it is likely you have celiac disease.
    • Scott Adams
      Taking Probiotics but Still Getting Sick After Gluten – Advice?

      By Scott Adams · Posted

      I will assume you did the gluten challenge properly and were eating a lot of gluten daily for 6-8 weeks before your test, but if not, that could be the issue. You can still have celiac disease with negative blood test results, although it's not as common:  Clinical and genetic profile of patients with seronegative coeliac disease: the natural history and response to gluten-free diet: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5606118/  Seronegative Celiac Disease - A Challenging Case: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9441776/  Enteropathies with villous atrophy but negative coeliac serology in adults: current issues: https://pubmed.ncbi.nlm.nih.gov/34764141/  Approximately 10x more people have non-celiac gluten sensitivity than have celiac disease, but there isn’t yet a test for NCGS. If your symptoms go away on a gluten-free diet it would likely signal NCGS.
    • Xravith
      Taking Probiotics but Still Getting Sick After Gluten – Advice?

      By Xravith · Posted

      I'm very confused... My blood test came out negative, I checked all antibodies. I suppose my Total IgA levels are normal (132 mg/dl), so the test should be reliable. Still, I'm not relieved as I can't tolerate even a single biscuit. I need to talk to my doctor about whether a duodenal biopsy is necessary. But it is really possible to have intestinal damage despite having a seronegative results? I have really strong symptoms, and I don't want to keep skipping university lectures or being bedridden at home.
    • Scott Adams
      CT with contrast.

      By Scott Adams · Posted

      They may want to also eliminate other possible causes for your symptoms/issues and are doing additional tests.  Here is info about blood tests for celiac disease--if positive an endoscopy where biopsies of your intestinal villi are taken to confirm is the typical follow up.    
    • Scott Adams
      New labs are now very elevated

      By Scott Adams · Posted

      In the Europe the new protocol for making a celiac disease diagnosis in children is if their tTg-IgA (tissue transglutaminase IgA) levels are 10 times or above the positive level for celiac disease--and you are above that level. According to the latest research, if the blood test results are at certain high levels that range between 5-10 times the reference range for a positive celiac disease diagnosis, it may not be necessary to confirm the results using an endoscopy/biopsy: Blood Test Alone Can Diagnose Celiac Disease in Most Children and Adults TGA-IgA at or Above Five Times Normal Limit in Kids Indicates Celiac Disease in Nearly All Cases No More Biopsies to Diagnose Celiac Disease in Children! May I ask why you've had so many past tTg-IgA tests done, and many of them seem to have been done 3 times during short time intervals?    
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.