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Hello, I'm a newbie from Indiana! I suffered for a year before I was diagnosed with celiac. Its been a stuggle! I'm the only one (at the moment) that has celiac. Being a mother and wife, its difficult to grocery shop and cook for all of us. I am feeling better however other symtoms have surfaced. Not sure what "normal" is anymore! Tammy


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kareng Grand Master

Hello, I'm a newbie from Indiana! I suffered for a year before I was diagnosed with celiac. Its been a stuggle! I'm the only one (at the moment) that has celiac. Being a mother and wife, its difficult to grocery shop and cook for all of us. I am feeling better however other symtoms have surfaced. Not sure what "normal" is anymore! Tammy

HI Tammy!

I don't know how old your kids are but mine are teens so we don't always eat together. I'm the only gluten-free one at our house. When we do eat together & I am fixing all the food, its usually gluten-free. Last night we had BBQ chicken, corn & salad or carrot sticks. When we do pasta together, I get a helper to keep the gluten-free & the regular pasta separate. One is responsible for the gluteny pasta. Its too easy to get confused & use the spoon from one into the other. When that isn't possible, we all eat the gluten-free pasta and no one cares.

For J's 18th birthday/superbowl party, he wanted me to make gluten-free chocolate cupcakes because they are better than alot of other ones.

I find that teen boys & a hub who isn't picky don't care if there is gluten in it or not. My boys say the main criteria is that Imake it so they don't have to cook.

Karla01 Apprentice

Hello, I'm a newbie from Indiana! I suffered for a year before I was diagnosed with celiac. Its been a stuggle! I'm the only one (at the moment) that has celiac. Being a mother and wife, its difficult to grocery shop and cook for all of us. I am feeling better however other symtoms have surfaced. Not sure what "normal" is anymore! Tammy

Hi, I was diagnosed in August, 2010, and have a husband, and 3 teen age boys, our first meal after getting diagnosed my one son sat the table and said ok how do I eat so you dont get sick what can I touch, we were having hamburgers and there were hamburger buns on the table, we all started laughing. Its gotten easier , spagetti nights are hard have to pay attention, I liked the previous comment on having a helper, and I always drain my noodles first, I also take any left overs I want and put them in containers labeled mom so no one else touches them. It seems like alot at first, but it becomes normal after awhile.

Terri O Rookie

It does get easier in time! I only have been gluten-free for 2 months (almost)and am attempting to get my kitchen to a state that I can feel confident eating out of! (wow--that is a really BAD sentence) I dont know how else to say it though...I have a husband and 3 college age kids that are home on and off...they all think I am crazy. Maybe they think I am trying to push the gluten-free lifestyle on them because I frequently comment on studies that I read and such. I try to just do my "own thing." I will tell you though that it does get easier the longer you read the labels! Terri O

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    • trents
      You might consider asking for a referral to a RD (Registered Dietician) to help with food choices and planning a diet. Even apart from any gluten issues, you will likely find there are some foods you need to avoid because of the shorter bowel but you may also find that your system may make adjustments over time and that symptoms may improve.
    • Ello
      I wish Dr’s would have these discussions with their patients. So frustrating but will continue to do research. Absolutely love this website. I will post any updates on my testing and results.  Thank you
    • trents
      Losing 12" of your small bowel is going to present challenges for you in nutritional uptake because you are losing a significant amount of nutritional absorption surface area. You will need to focus on consuming foods that are nutritionally dense and also probably look at some good supplements. If indeed you are having issues with gluten you will need to educate yourself as to how gluten is hidden in the food supply. There's more to it than just avoiding the major sources of gluten like bread and pasta. It is hidden in so many things you would never expect to find it in like canned tomato soup and soy sauce just to name a few. It can be in pills and medications.  Also, your "yellow diarrhea, constipation and bloating" though these are classic signs of a gluten disorder, could also be related to the post surgical shorter length of your small bowel causing incomplete processing/digestion of food.
    • Ello
      Yes this information helps. I will continue to be pro active with this issues I am having. More testing to be done. Thank you so much for your response. 
    • trents
      There are two gluten-related disorders that share many of the same symptoms but differ in nature from each other. One is known as celiac disease or "gluten intolerance". By nature, it is an autoimmune disorder, meaning the ingestion of gluten triggers the body to attack it's own tissues, specifically the lining of the small bowel. This attack causes inflammation and produces antibodies that can be detected in the blood by specific tests like the TTG-IGA test you had. Over time, if gluten is not withheld, this inflammation can cause severe damage to the lining of the small bowel and even result in nutrient deficiency related health issues since the small bowel lining is organ where all the nutrition found in our food is absorbed.  The other is NCGS (Non Celiac Gluten Sensitivity or just "gluten sensitivity") which we know less about and are unsure of the exact mechanism of action. It is not an autoimmune disorder and unlike celiac disease it does not damage the lining of the small bowel, though, like celiac disease, it can cause GI distress and it can also do other kinds of damage to the body. It is thought to be more common than celiac disease. Currently, we cannot test for NCGS. Celiac disease must first be ruled out to arrive at a diagnosis of NCGS. Both disorders require elimination of gluten from the diet.  Either of these disorders can find their onset at any stage of life. We know that celiac disease has a genetic component but the genes are inactive until awakened by some stress event. About 40% of the general population has the genetic potential to develop celiac disease but only about 1% develop active celiac disease. The incidence of NCGS is thought to be considerably higher. I hope this helps.
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