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TIAs/Neurological Testing

Mothering3

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Mothering3 Apprentice
Mothering3
Posted

I got diagnosed with Celiac Disease on Friday through a positive blood test after I started having liver problems.

About 3 years ago, while pregnant, I had a TIA (ministroke). They never found the cause of it, so (rather foolishly) diagnosed it as a migraine because of my age (25 at the time), and my being pregnant, even though my symptoms were classic TIA, and very atypical for a migraine.

A little over a year ago, I had another. This time I was at a better hospital. They admitted me for stroke care, did way more testing, and still found nothing. They diagnosed it as a TIA, with underlying cause unknown. They put me on aspirin therapy.

Now that I have been diagnosed with Celiac, I am wondering: Is there a test I could do to see if my TIAs are related to Celiac? If they are, I could probably stop aspirin therapy. Should I see a neurologist in addition to my GI?

Thoughts?

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eatmeat4good Enthusiast
eatmeat4good
Posted

Yes, I would. If you can see a neurologist they may be able to help you now that you have been diagnosed with Celiac. That is too serious to make the decision about stopping aspirin therapy on your own. But I wouldn't hold my breath that you will be able to find a neurologist knowledgeable about Celiac. But maybe if you can find a smart one, they will be willing to get up to speed on it to help you in your situation.

That is incredible that they called it a migraine. And that you had to suffer it again. Thank god you didn't stop looking for answers. Stay strong and yes, I would see a neurologist. They should be able to monitor such a thing with scans or something.

Mothering3 Apprentice
Mothering3
Posted
  • Author

Yes, I would. If you can see a neurologist they may be able to help you now that you have been diagnosed with Celiac. That is too serious to make the decision about stopping aspirin therapy on your own. But I wouldn't hold my breath that you will be able to find a neurologist knowledgeable about Celiac. But maybe if you can find a smart one, they will be willing to get up to speed on it to help you in your situation.

That is incredible that they called it a migraine. And that you had to suffer it again. Thank god you didn't stop looking for answers. Stay strong and yes, I would see a neurologist. They should be able to monitor such a thing with scans or something.

Well as far as the TIAs, they do not show up on a scan even if I have had one. They diagnosed it based on self-reported symptoms. I was curious if there is some kind of test that people do to check for Celiac-related neurological damage. I don't know if that is possible or not.

Jade

Mothering3 Apprentice
Mothering3
Posted
  • Author

That is incredible that they called it a migraine.

I know. Don't you love when doctors diagnose an individual based on broad health data rather than the person in front of them???

I've heard this happens with celiac disease a lot. Just heard of a woman who was told by her doctor that she did not have Celiac or need to be tested for it because she was overweight, and "Celiacs are underweight".

Seriously, if you are going to be an MD it is important to understand how medical statistics work. And that is not how they work.

ravenwoodglass Mentor
ravenwoodglass
Posted

Do you have balance issues? If you do mention them to the neurologist if you do see one. Have the TIA results sent to him or her also. They can do an MRI that looks for brain lesions, UBOs, that are found with celiac that has attacked the brain. There are tests they can do to see if you have had a TIA including a CT scan of the brain. There is also the possibility that what you had was indeed a migraine as that is something quite a few of us suffer from. The most important thing is for you to get right to an ER, calling an ambulance if needed, if it happens again.

Mothering3 Apprentice
Mothering3
Posted
  • Author

Do you have balance issues? If you do mention them to the neurologist if you do see one. Have the TIA results sent to him or her also. They can do an MRI that looks for brain lesions, UBOs, that are found with celiac that has attacked the brain. There are tests they can do to see if you have had a TIA including a CT scan of the brain. There is also the possibility that what you had was indeed a migraine as that is something quite a few of us suffer from. The most important thing is for you to get right to an ER, calling an ambulance if needed, if it happens again.

I did have those tests done at the time of both of my TIAs and have not had any neuro symptoms since then. They did not find anything. I think they would have seen lesions if that's what was causing the activity, but I don't know. My understanding is that it is common for TIAs to not show up on a brain scan, though sometimes they do. But what defines it as a TIA as opposed to a stroke is that there is no brain damage. If there is brain damage, even slightly, it is considered a stroke. I guess sometimes there are some other signs on the scan that some activity has happened, but oftentimes there is not. Also, since I went straight to the hospital at the onset of symptoms, they could also potentially see a migraine on the scan, but did not.

Migraine has not been ruled out.

Migraines are typically: accompanied by a headache or visual disturbances, last an hour or more in length, come on gradually, if numbness is involved it is typically bilateral numbness.

TIAs typically: come on suddenly, no headache or visual disturbances, last 1 minute-1/2 hour. come on suddenly, if numbness is involved it is typically unilateral.

My episodes fit all of the criteria for TIA and none for migraine. (Also involved aphasia, common TIA symptom). But it is definitely possible to have a migraine aura with no headache that seems like a TIA, it just seems less likely than a TIA to me given my symptoms.

ravenwoodglass Mentor
ravenwoodglass
Posted

Hopefully a good neurologist will be able to get to the bottom of what is going on. It must have been a very scarey experience and I hope it doesn't happen to you again. I agree with the other poster that you shouldn't stop the asprin until you have gotten an ok from a good neuro.

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Mothering3 Apprentice
Mothering3
Posted
  • Author

Oh yeah, I wasn't intending to stop the aspirin without talking to a doctor. I was just thinking one reason to see a neurologist is that if we could find a connection, it might make sense to stop the aspirin. Wouldn't mind having one less pill to take!

Hopefully a good neurologist will be able to get to the bottom of what is going on. It must have been a very scarey experience and I hope it doesn't happen to you again. I agree with the other poster that you shouldn't stop the asprin until you have gotten an ok from a good neuro.

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      how much gluten do I need to eat before blood tests?

      By catnapt · Posted

      after several years of issues with a para-gland issue, my endo has decided it's a good idea for me to be tested for celiac disease. I am 70 yrs old and stunned to learn that you can get celiac this late in life. I have just gradually stopped eating most foods that contain gluten over the past several years- they just make me feel ill- although I attributed it to other things like bread spiking blood sugar- or to the things I ate *with* the bread or crackers etc   I went to a party in Nov and ate a LOT of a vegan roast made with vital wheat gluten- as well as stuffing, rolls and pie crust... and OMG I was so sick! the pain, the bloating, the gas, the nausea... I didn't think it would ever end (but it did) and I was ready to go the ER but it finally subsided.   I mentioned this to my endo and now she wants me to be tested for celiac after 2 weeks of being on gluten foods. She has kind of flip flopped on how much gluten I should eat, telling me that if the symptoms are severe I can stop. I am eating 2-3 thin slices of bread per day (or english muffins) and wow- it does make me feel awful. But not as bad as when I ate that massive amnt of vital wheat gluten. so I will continue on if I have to... but what bothers me is - if it IS celiac, it seems stupid for lack of a better word, to intentionally cause more damage to my body... but I am also worried, on the other hand, that this is not a long enough challenge to make the blood work results valid.   can you give me any insight into this please?   thank you
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