Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Extreme Sensitivity To Sounds?


Nads

Recommended Posts

Nads Rookie

I am gluten intolerant and suspect my teenage daughter is as well. She has a lot of anxiety and depression. In the last six months she has become so sensitive to sounds that she gets upset whenever someone opens a door, chews loudly or even just clears their throat. I am wondering if any of you have kids with this issue? She doesn't have a lot of GI issues but I read that children don't always have them as a symptom. Wondering if this has been your experience with any of your kids?

She is trying a gluten free diet (2 weeks now) but haven't see a huge difference yet. She may be slightly less anxious but hard to tell. I want her to take a multivitamin supplement but she has trouble swallowing pills. She eats hardly any veggies and I can't figure out how to make them so she will like them. Any ideas here also appreciated.

Thanks


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



T.H. Community Regular

Both my daughter and I have sensitivity to sound more when we get glutened, yeah. It's most noticeable in crowds, but I've had low music, a squeaky door, or even someone whistling feel like an assault on the eardrums. My daughter also tends to get the same thing with her skin, where the slightest touch is perceived as uncomfortable or painful.

I haven't seen these ever listed under traditional symptoms, though, so I can't swear to the following, but I think they would fall under the 'neurological' symptoms category. For those, sometimes it takes a while to heal up, months, sometimes.

What is she having on her gluten free diet? If she's having a lot of processed gluten-free foods, she might still be getting enough gluten to make her not heal (if she's gluten intolerant). Because 'gluten free' is really 'gluten extra-lite.' Kind of like low calories food - you eat enough, and you still have problems, ya know?

Also, with my daughter, we took her off all 8 major allergens along with gluten, kept a food journal and slowly added them back in, and THAT was when we really noticed a difference. She has trouble with a few other foods, too.

stillpine Newbie

Both my daughter and I have sensitivity to sound more when we get glutened, yeah. It's most noticeable in crowds, but I've had low music, a squeaky door, or even someone whistling feel like an assault on the eardrums. My daughter also tends to get the same thing with her skin, where the slightest touch is perceived as uncomfortable or painful.

I haven't seen these ever listed under traditional symptoms, though, so I can't swear to the following, but I think they would fall under the 'neurological' symptoms category. For those, sometimes it takes a while to heal up, months, sometimes.

What is she having on her gluten free diet? If she's having a lot of processed gluten-free foods, she might still be getting enough gluten to make her not heal (if she's gluten intolerant). Because 'gluten free' is really 'gluten extra-lite.' Kind of like low calories food - you eat enough, and you still have problems, ya know?

Also, with my daughter, we took her off all 8 major allergens along with gluten, kept a food journal and slowly added them back in, and THAT was when we really noticed a difference. She has trouble with a few other foods, too.

I'm a 40 y.o. male and have been extremely sensitive to sounds, touch, even light when things are going bad for me. Since having kids, about 7 years ago, I've kept earplugs with me almost all the time.

It's so tough because I hate having my boys be so quiet just for me, and my wife is supportive, but I love them so much and try to find every way to let them play free without feeling "wrong" or stifled for making normal kid noises.

I didn't know about having celiac until about 7 yrs ago, but looking back, I used to get bothered when my mom would clear her throat and chew her food. Just felt like ever sound grated on raw nerves and got worse with age.

I'm thinking of getting a device for the hearing impaired that you wear and used headphones so that I can put those "ear buds" that plug noise out in my ears. Then turn the device up a bit when I need to hear or down when I need peace. Tight earplugs get irritating on the ears and hold in moisture, so it I want a change. I may try "piping" in some white noise with an ipod or something using a 'Y' jack just to stabilize the sound ambience. I've also considered hunters' or sportsmen's sound cancelers that block loud bursts of noise. I just have a feeling they only block real loud noise and not the ordinary noise that bothers folks like us with nerve damage/sensitivity.

Sorry to hear the trouble. Gotta be creative sometimes...

eatmeat4good Enthusiast

My son had extreme sensitivity to noise. He always told me to stop yelling and I would be talking in my normal tone of voice. I was so concerned for so long since his personality changed. Short tempered and gluten ataxia too which we just thought was family clumsiness. Right. He wouldn't be able to go to those kids places with lots of games and noise since he simply couldn't tolerate it. Later the depression and brain fog. It was totally and definitely related to gluten. Did NOT figure this out until he was 16 though. But his improvement has been rapid and miraculous. He now listens to his music loudly like every other teenager whereas before he would literally beg me not to play music in the house.

It has got to be neurological. He is only 6 months gluten free and almost all of the hearing sensitivity is gone. He is thrilled and so am I. I hope it improves for you.

On another note, hearing sensitivity is also a salicylate intolerance symptom. It can also cause other symptoms. Some people have to limit their intake of fruits an vegetables because of it, in addition to coconut oil, wintergreen, almonds as they are very high in sals.

I can also say that my son and I both couldn't tolerate the tastes of some foods, mostly vegetables, but the sense of taste is very much improved for both of us in the six months being gluten free.

It is very strange the wide myriad of symptoms gluten can cause. No wonder we never figured it out for years. But now all sorts of things are disappearing and it is just amazing.

I hope your symptoms improve as well as ours did.

mommida Enthusiast

I had taken a decongestant and it raised my blood pressure. Sounds were unbearable, I felt like crying. I did end up in the ER with chest pain and a rapid heartbeat three days after taking the medication. About 2 months after that I had a gallbladder attack and had it removed.

Seriously, go to a doctor to find out what the underlaying cause could be.

Mizzo Enthusiast

My girl has a hard time eating veggies also. I have slowly worked upto a spoonful of peas or 2 asparagus spears or a couple of broccoli stems cause she won't eat the florettes etc.. you get the picture. this has been a slow process over the last 9months to get to this amount.

Applesauce , Ranch dressing , ketchup and mustard help. : )

She has had a tendancy to gag and throw up her food if she THINKS it doesn't taste good, and in her mind all green veggies are yucky.

I process mushroom, eggplant, zuchini, carrot. peppers , onion etc.. whatever I feel would taste good and hide it in my meatballs, meatloaf, burgers (works really well with Turkey burgers cause they need flavor added anyways) I have even added carrot and eggplant into my spaghettie sauce with no one the wiser.

I process the veggies not dice them cause that didn't work, she would taste the bits and spits them out. She will eat carrots willingly so I give her a couple at lunch and a green veg at dinner. She should be eating 2x as much as she is but we are a mile ahead of where we were last year so I am happy with the progress.

I supplement with Fiber gummies and leave the skin on fruit etc.. whenever I can. Also, I add Zuchini to muffins .

good luck

gf-soph Apprentice

I had had problems with noise sensitivity, though for me I think it is more related to other food intolerances than to gluten, as it has actually been worse since i've been gluten free.

When I am having a food reaction I am very sensitive to noises, I will literally jump at a small thing. I think it's related to FODMAPS, though there is a chance it is related to salicylates. I have to continue testing to find out.

I have also found that food reactions can cause sinus swelling, which block my eustacheon tubes and causes ear pressure, which also causes noise sensitivity.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - xxnonamexx posted a topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      0

      My Journey Continues some notes

    2. - Cecile replied to Cecile's topic in Related Issues & Disorders
      3

      Symptoms

    3. - Jmartes71 posted a topic in Introduce Yourself / Share Stuff
      0

      Not validated

    4. - Jmartes71 replied to Jmartes71's topic in Related Issues & Disorders
      4

      New issue

    5. - Jmartes71 replied to chrish42's topic in Doctors
      3

      Doctors and Celiac.com

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,194
    • Most Online (within 30 mins)
      7,748

    TBH
    Newest Member
    TBH
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • xxnonamexx
      I have increased my vitamin intake Vitamin B Complex plus 2 Thiamax, NeuroMag, Benfotiamine with breakfast. I continue reading and watching gluten free items that I eat. Breakfast is Bobs Redmill gluten-free oatmeal with Chobani zero sugar yogurt a banana and blueberries. Lunch since im at a deli gluten-free is hard to come by so I stick with turkey with gluten-free Promise bread. Dinner varies like gluten-free pasta, tacos, chicken, sausage, meat etc. rice or take out from gluten-free places. I have decided to stay away from gluten-free pizza as I feel I felt weird with it unless its store bought frozen. I am going to try to make my own gluten-free bread, Bagels. I have been good with baking gluten-free treats like cookies, muffins. Snacks if its not fruit, veggies I grab a protein bar or chocolate guilty pleasure reeses, hersheys, York PP. I am going to start to use my fitness pal app to track what I eat and note when I feel off to see if I can pinpoint if a trend of a certain gluten-free food is a culprit. I noticed once in a while I feel a little bloated, gassy that I think is from the pizza so I am going to avoid it and continue narrowing it down. I have been doing very well and I have learned even if you think you are doing everything 100% gluten-free eating it can sneak in without you knowing. This year is more traveling which im afraid of but have already looked into gluten-free places in Nashville which they have and back to Aruba I went last year and have the gluten-free places already selected. Most restaurants I have been to have been very helpful with what to stay away from to avoid CC. If a place states they don't have any gluten-free the I stick with a salad or when I took my kids to breakfast as much as I miss the breakfast this place serves I played it safe with yogurt and a fruit bowl so at least my kids were happy to go there again. Local farmers market has great gluten-free items that I treat myself to like different types of breads, baked goods. My journey continues...
    • Cecile
      Thank you Scott for your wonderful info. I will pry my Doctor for more extensive blood testing. I appreciate your time. 
    • Jmartes71
      After waisted time of new care team, yet again EXHAUSTED saw new gi today in Modesto, though all my ailments im not getting any kind of concern of me being celiac and sentive to just about everything since menopause. Dr daid why don't I go see you guys because my blood shows zero for celiac. I told him im glutenfree since 1994 by colonoscopy with biopsy positive celiac sprue by GI.Its RIDICULOUS when im bringing in material from this site of knowledge as well as the autoimmune institute,and  there's zero interest on their part.Medical IS causing me depression.Im view as a disability chaser, IM STILL RECOVERING from being a bus driver that im still healing and having more issues, now I may have multiple sclerosis or meningioma. Ive reached out, wrote letters, NOT feeling well. This is inhumane. 
    • Jmartes71
      I was taking medicine for sibo but it was not agreeing with my stomach at all.Was on gabapentin but it amps me up.I was taking in morning because it wasn't allowing me to sleep.This has always been an issue with medicine and me.Even going to dentist, the good shot that numbs you once, I can't take because it makes my heart beat fast and I  get the shakes.I have to take the crappy stuff and get injected always more than 4 times always.Its infuriating 
    • Jmartes71
      I showed one doctor I went to once because completely clueless of celiac disease and yes that one was connected to a well known hospital and she said oh thats just a bunch of people that think they are celiac coming together. I said um no they have doctors and knowledge behind what is being written. So bay area is Downplaying this site! SADLY 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.