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What Advice Should I Give My Husband?

Lunabell

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Lunabell Apprentice
Lunabell
Posted

Our youngest daughter was diagnosed with Celiac back in December. Because of that my husband took a long hard look at his lifelong stomach issues and decided to go fully gluten-free two weeks ago. All of his issue have resolved, he looks healthier, and is in a much better mood. I had no idea that some of the problems in our marriage were actually caused by gluten!

So now what should he do? After awhile he will not test positive for Celiac, but I doubt any doctor will convince him to go back to how he was feeling before, just for a test. Should he just live life gluten free, enjoy the change, and just tell his doctor what is going on?

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GlutenFreeManna Rising Star
GlutenFreeManna
Posted

It's totally up to him. If he is committed to staying strictly gluten free without a dr diagnosis then he can do whatever he wants and doesn't need a drs permission. However, if he feels like he can be gluten free and cheat every once in a while he should probably go back on gluten and get tested. For me personally the effects of the gltuen free diet are so life changing that I am not tempted to cheat and I have no need for a dr diagnosis. I have only been tempted to cheat once to test it about a month into the diet. Never again. My symptoms from even a tiny amount of gltuen are too extreme to make it worth cheating and not worth damamging my health againfor testing. However I can totally see where peopel who have mild symptoms might doubt themselves more and want to do testing. My husband feels better when he is gluten free but he is not convinced he needs to do it 100% of the time. I urged him to eat gluten and get tested because his symptoms are not severe at all, but he didn't want to do that. It's his choice and I'm not forcing the issue. I think he feels that by not gettign tested he keeps his options open to eat gluten or not eat gluten. he is still turning down gluteny treats at the office by saying his wife is "highly allergic" and he doesn't want to make me sick. I don't mind him using me as the excuse but I do wish he would just make a firm decision and "own" the diagnosis. So, in short, if your husband believes he has it and is convinced enough to just tell people he has it without worrying about the dr diagnosis tell him to go for it. Otherwise, I would urge him to get tested.

eatmeat4good Enthusiast
eatmeat4good
Posted

Welcome! If he doesn't want to go back to eating gluten for the testing, at least have his vitamin levels and thyroid function checked.

Yes, gluten can destroy not only our bodies but our relationships.

I'm glad you guys figured it out...you will be much happier and healthier now.

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    • knitty kitty
      High DGP-A with normal IGA

      By knitty kitty · Posted

      @rei.b,  I understand how frustrating starting a new way of eating can be.  I tried all sorts of gluten-free processed foods and just kept feeling worse.  My health didn't improve until I started the low histamine AIP diet.  It makes a big difference.   Gluten fits into opioid receptors in our bodies.  So, removing gluten can cause withdrawal symptoms and reveals the underlying discomfort.  SIBO can cause digestive symptoms.  SIBO can prevent vitamins from being absorbed by the intestines.  Thiamine insufficiency causes Gastrointestinal Beriberi (bloating, abdominal pain, nausea, diarrhea or constipation).  Thiamine is the B vitamin that runs out first because it can only be stored for two weeks.  We need more thiamine when we're sick or under emotional stress.  Gastric Beriberi is under recognised by doctors.  An Erythrocyte Transketolace Activity test is more accurate than a blood test for thiamine deficiency, but the best way to see if you're low in thiamine is to take it and look for health improvement.  Don't take Thiamine Mononitrate because the body can't utilize it well.  Try Benfotiamine.  Thiamine is water soluble, nontoxic and safe even at high doses.  I thought it was crazy, too, but simple vitamins and minerals are important.  The eight B vitamins work together, so a B Complex, Benfotiamine,  magnesium and Vitamin D really helped get my body to start healing, along with the AIP diet.  Once you heal, you add foods back in, so the AIP diet is worth doing for a few months. I do hope you'll consider the AIP diet and Benfotiamine.
    • captaincrab55
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      Imemsm, Most of us have experienced discontinued, not currently available or products that suddenly become seasonal.   My biggest fear about relocating from Maryland to Florida 5 years ago, was being able to find gluten-free foods that fit my restricted diet.  I soon found out that the Win Dixie and Publix supper markets actually has 99% of their gluten-free foods tagged, next to the price.  The gluten-free tags opened up a  lot of foods that aren't actually marked gluten-free by the manufacture.  Now I only need to check for my other dietary restrictions.  Where my son lives in New Hartford, New York there's a Hannaford Supermarket that also has a gluten-free tag next to the price tag.  Hopefully you can locate a Supermarket within a reasonable travel distance that you can learn what foods to check out at a Supermarket close to you.  I have dermatitis herpetiformis too and I'm very sensitive to gluten and the three stores I named were very gluten-free friendly.  Good Luck 
    • rei.b
      High DGP-A with normal IGA

      By rei.b · Posted

      Okay well the info about TTG-A actually makes a lot of sense and I wish the PA had explained that to me. But yes, I would assume I would have intestinal damage from eating a lot of gluten for 32 years while having all these symptoms. As far as avoiding gluten foods - I was definitely not doing that. Bread, pasta, quesadillas (with flour tortillas) and crackers are my 4 favorite foods and I ate at least one of those things multiple times a day e.g. breakfast with eggs and toast, a cheese quesadilla for lunch, and pasta for dinner, and crackers and cheese as a before bed snack. I'm not even kidding.  I'm not really big on sugar, so I don't really do sweets. I don't have any of those conditions.  I am not sure if I have the genes or not. When the geneticist did my genetic testing for EDS this year, I didn't think to ask for him to request the celiac genes so they didn't test for them, unfortunately.  I guess another expectation I had is  that if gluten was the issue, the gluten-free diet would make me feel better, and I'm 3 months in and that hasn't been the case. I am being very careful and reading every label because I didn't want to screw this up and have to do gluten-free for longer than necessary if I end up not having celiac. I'm literally checking everything, even tea and anything else prepacked like caramel dip. Honestly its making me anxious 😅
    • knitty kitty
      High DGP-A with normal IGA

      By knitty kitty · Posted

      So you're saying that you think you should have severe intestinal damage since you've had the symptoms so long?   DGP IgG antibodies are produced in response to a partial gluten molecule.  This is different than what tissue transglutaminase antibodies are  produced in response to.   TTg IgA antibodies are produced in the intestines in response to gluten.  The tTg IgA antibodies attack our own cells because a structural component in our cell membranes resembles a part of gluten.  There's a correlation between the level of intestinal damage with the level of tTg antibodies produced.  You are not producing a high number of tTg IgA antibodies, so your level of tissue damage in your intestines is not very bad.  Be thankful.   There may be reasons why you are not producing a high quantity of tTg IgA antibodies.  Consuming ten grams or more of gluten a day for two weeks to two months before blood tests are done is required to get sufficient antibody production and damage to the intestines.  Some undiagnosed people tend to subconsciously avoid lots of gluten.  Cookies and cakes do not contain as much gluten as artisan breads and thick chewy pizza crust.  Anemia, diabetes and thiamine deficiency can affect IgA antibody production as well.   Do you carry genes for Celiac?  They frequently go along with EDS.
    • rei.b
      High DGP-A with normal IGA

      By rei.b · Posted

      I was tested for celiac at the same time, so I wasn't taking naltrexone yet. I say that, because I don't. The endoscopy showed some mild inflammation but was inconclusive as to celiac disease. They took several biopsies and that's all that was shown. I was not given a Marsh score.
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