Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Fructose Malabsorption


tea-and-crumpets

Recommended Posts

tea-and-crumpets Explorer

Does anyone also suffer from fructose malabsorption? I have been gluten free for almost six months. I'm quite strict in my house: no gluten at all, replaced all of the pans, all of that. I rarely eat out of the house and then only at restaurants that are definitely gluten free. Yet still I have some bad days. More good days than bad, I'd say, but I've found myself taking immodium more often when I have somewhere to be. When I get sick it's the usual culprits. Big D, but not often the floating kind. (Sorry!) Extreme stomach cramping, and often lower down in my large intestinal area.

I have noticed that I have a lot of problems with onions, for example. Last night I had tomato sauce and today I was really sick. Some days, though, I eat a stew that I make that has a small bit of tomato and I have no problem.

I am trying to find a new doctor right now, but money is tight. I also would like to find out what's wrong with me as soon as I can. I was doing so well for a while that it's really discouraging to feel like I'm moving backwards. :( Could I just still be healing from gluten? I was sick about three years before I went gluten free, and I stopped eating gluten completely, barring being glutened twice.

Any advice?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Mack the Knife Explorer

Does anyone also suffer from fructose malabsorption? I have been gluten free for almost six months. I'm quite strict in my house: no gluten at all, replaced all of the pans, all of that. I rarely eat out of the house and then only at restaurants that are definitely gluten free. Yet still I have some bad days. More good days than bad, I'd say, but I've found myself taking immodium more often when I have somewhere to be. When I get sick it's the usual culprits. Big D, but not often the floating kind. (Sorry!) Extreme stomach cramping, and often lower down in my large intestinal area.

I have noticed that I have a lot of problems with onions, for example. Last night I had tomato sauce and today I was really sick. Some days, though, I eat a stew that I make that has a small bit of tomato and I have no problem.

I am trying to find a new doctor right now, but money is tight. I also would like to find out what's wrong with me as soon as I can. I was doing so well for a while that it's really discouraging to feel like I'm moving backwards. :( Could I just still be healing from gluten? I was sick about three years before I went gluten free, and I stopped eating gluten completely, barring being glutened twice.

Any advice?

My girlfriend suffers from this. She blows up like a bullfrog if she eats too much fructose. A lot of the symptoms are similar to Coeliac disease so it may be hard to tell them apart. Fructose malabsorption is all to do with quantity and loading. So some days a certain food might be fine and other days it will set you off. It all depends on how much fructose you've had that day already. And everyone's tolerances are a bit different.

You can be tested for Fructose Malabsorption though hydrogen breath testing. However, the testing probably won't be covered by your health insurance.

If you suspect fructose is a problem then the simplest thing would be to avoid high fructose foods for a couple of weeks and see if that settles you down. You can always go through the testing at a later date if you want. Unlike Coeliac disease, the testing won't be negated by having removed the problem food in your diet.

The major foods you need to avoid or eat very minimally are:

Fruit:

Apples, pears, mango, watermelon, quince, paw paw, lychee, guava, pomegranate, dried fruit, fruit juice, tomatoes, tomato paste.

Vegetables:

Onion, garlic, spring onion, leek, asparagus, artichoke, Jerusalem artichoke, witlof, chicory, radicchio, endive and dandelion greens.

Others:

Honey, coconut milk and cream, wheat, brown rice, fructose, fruit juice sweeteners (apple or pear juice concentrate), artificial sweeteners (ie sorbitol and xylitol), and high fructose corn syrups (which are used a lot in soda drinks)

Irritable Bowel Syndrome (IBS) and nightshade sensitivity are other areas you might want to look into. Tomatoes and onions are both nightshades and lots of people have problems with them.

tea-and-crumpets Explorer

My girlfriend suffers from this. She blows up like a bullfrog if she eats too much fructose. A lot of the symptoms are similar to Coeliac disease so it may be hard to tell them apart. Fructose malabsorption is all to do with quantity and loading. So some days a certain food might be fine and other days it will set you off. It all depends on how much fructose you've had that day already. And everyone's tolerances are a bit different.

You can be tested for Fructose Malabsorption though hydrogen breath testing. However, the testing probably won't be covered by your health insurance.

If you suspect fructose is a problem then the simplest thing would be to avoid high fructose foods for a couple of weeks and see if that settles you down. You can always go through the testing at a later date if you want. Unlike Coeliac disease, the testing won't be negated by having removed the problem food in your diet.

The major foods you need to avoid or eat very minimally are:

Fruit:

Apples, pears, mango, watermelon, quince, paw paw, lychee, guava, pomegranate, dried fruit, fruit juice, tomatoes, tomato paste.

Vegetables:

Onion, garlic, spring onion, leek, asparagus, artichoke, Jerusalem artichoke, witlof, chicory, radicchio, endive and dandelion greens.

Others:

Honey, coconut milk and cream, wheat, brown rice, fructose, fruit juice sweeteners (apple or pear juice concentrate), artificial sweeteners (ie sorbitol and xylitol), and high fructose corn syrups (which are used a lot in soda drinks)

Irritable Bowel Syndrome (IBS) and nightshade sensitivity are other areas you might want to look into. Tomatoes and onions are both nightshades and lots of people have problems with them.

Thank you for the info! The concept of loading makes a lot of sense to me, as some days are worse than others. I did consider nightshade sensitivity, but I don't have any problems at all with potatoes, so I discounted it.

I find myself very sad at the thought of losing onions and tomatoes. Wasn't gluten enough? :(

cassP Contributor

Thank you for the info! The concept of loading makes a lot of sense to me, as some days are worse than others. I did consider nightshade sensitivity, but I don't have any problems at all with potatoes, so I discounted it.

I find myself very sad at the thought of losing onions and tomatoes. Wasn't gluten enough? :(

ya, i suffer from this- it's a REAL PAIN IN THE A... exactly! shouldn't gluten be enough :/

what's tricky with this is that it's kind of trial and error with each food item- and like mack the knife said- with quantity as well. also- if you research online- you're gonna see a different list of foods everytime.. tho every list has the biggest culprits.

i am ok with tomatoes & tomato paste in moderation. if i have more than 1 bowl of rice pasta bolognese than i get fructose problems. but just one bowl and im ok. i also noticed that i handle homemade sauce better than a jar. dont know why. onions are ok for me in moderation. garlic is a little more iffy.

i avoid Pears, Prunes, Apples, and Dates like the PLAGUE. i can do a SMALL amount of mango.. and i usually limit my banana to a 1/2 a banana-> and try to eat it more ripe. the riper it is-> the higher sucrose content & lower fructose. today tho, i had my new fave snack- of a little banana, berries, and goat yogurt... and unfortunately i overdid it, tho i dont know how- i stuck to the low fructose fruits... but i was a little bloated & uncomfortable for the rest of work.

i also avoid grapes. and im still feeling out sweet potatoes & asparagus.

its a HUGE pain in the A- because we need fruits and veggies to be healthy- so, im constantly "testing the waters".

_______________

Mack the Knife: why is brown rice a culprit and not white??? this is VERY INTERESTING... because my brother was telling his wife that since she switched to brown rice- its been bothering him... and she thought he was crazy... but hhmmmmm.

  • 9 months later...
Austin Guy Contributor

I've not felt right much of the time after going gluten free last May. I have good days and bad days. I've gone through every food intolerance imaginable except one that should have been obvious. To maintain a healthy diet I started eating just meats, fresh vegetables and fruit - specifically an apple and a banana a day. I finally figured out today that I have a problem that is most likely lactose malabsorption. Gurgly gut, fatigue, lack of motivation, not enjoying things, bloating, gas, mild brain fog. Can't wait for tomorrow to come because I will avoid foods with much lactose in them.

  • 4 years later...
kkgirl Contributor

I just seen your  post.i have celiac and can't have dairy proteins or lactose. But fructose a huge issue for me. The dumb thing is the breath test was negative but i was so sick during that test I thought it was going to be positive and I told them I never want to do this test again. Yet it came back negative and they think it was a false negative because of how sick I was but I refuse to take the test again it was that bad. I'm new to it so I haven't found what I can can have it know pasta sauce if I have to much makes me sick. Iv tried adding it back in but it makes me so sick. 

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,902
    • Most Online (within 30 mins)
      7,748

    Patty6133
    Newest Member
    Patty6133
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Xravith
      Yes, you are right. Indeed, I’ve been feeling anemic since the beginning of this week, and today I felt horrible during a lecture at the university, I was trembling a lot and felt all my body incredibly heavy, so I had to come back home. I’ll do a blood test tomorrow, but I’m just worried about the possibility of it coming back negative. I’ve been eating two cookies in the morning as my only source of gluten over the past two weeks—could that affect the final result?
    • trents
      Welcome to the forum, @Judy M! Yes, he definitely needs to continue eating gluten until the day of the endoscopy. Not sure why the GI doc advised otherwise but it was a bum steer.  Celiac disease has a genetic component but also an "epigenetic" component. Let me explain. There are two main genes that have been identified as providing the "potential" to develop "active" celiac disease. We know them as HLA-DQ 2.5 (aka, HLA-DQ 2) and HLA-DQ8. Without one or both of these genes it is highly unlikely that a person will develop celiac disease at some point in their life. About 40% of the general population carry one or both of these two genes but only about 1% of the population develops active celiac disease. Thus, possessing the genetic potential for celiac disease is far less than deterministic. Most who have the potential never develop the disease. In order for the potential to develop celiac disease to turn into active celiac disease, some triggering stress event or events must "turn on" the latent genes. This triggering stress event can be a viral infection, some other medical event, or even prolonged psychological/emotional trauma. This part of the equation is difficult to quantify but this is the epigenetic dimension of the disease. Epigenetics has to do with the influence that environmental factors and things not coded into the DNA itself have to do in "turning on" susceptible genes. And this is why celiac disease can develop at any stage of life. Celiac disease is an autoimmune condition (not a food allergy) that causes inflammation in the lining of the small bowel. The ingestion of gluten causes the body to attack the cells of this lining which, over time, damages and destroys them, impairing the body's ability to absorb nutrients since this is the part of the intestinal track responsible for nutrient absorption and also causing numerous other food sensitivities such as dairy/lactose intolerance. There is another gluten-related disorder known as NCGS (Non Celiac Gluten Sensitivity or just, "gluten sensitivity") that is not autoimmune in nature and which does not damage the small bowel lining. However, NCGS shares many of the same symptoms with celiac disease such as gas, bloating, and diarrhea. It is also much more common than celiac disease. There is no test for NCGS so, because they share common symptoms, celiac disease must first be ruled out through formal testing for celiac disease. This is where your husband is right now. It should also be said that some experts believe NCGS can transition into celiac disease. I hope this helps.
    • Judy M
      My husband has had lactose intolerance for his entire life (he's 68 yo).  So, he's used to gastro issues. But for the past year he's been experiencing bouts of diarrhea that last for hours.  He finally went to his gastroenterologist ... several blood tests ruled out other maladies, but his celiac results are suspect.  He is scheduled for an endoscopy and colonoscopy in 2 weeks.  He was told to eat "gluten free" until the tests!!!  I, and he know nothing about this "diet" much less how to navigate his in daily life!! The more I read, the more my head is spinning.  So I guess I have 2 questions.  First, I read on this website that prior to testing, eat gluten so as not to compromise the testing!  Is that true? His primary care doctor told him to eat gluten free prior to testing!  I'm so confused.  Second, I read that celiac disease is genetic or caused by other ways such as surgery.  No family history but Gall bladder removal 7 years ago, maybe?  But how in God's name does something like this crop up and now is so awful he can't go a day without worrying.  He still works in Manhattan and considers himself lucky if he gets there without incident!  Advice from those who know would be appreciated!!!!!!!!!!!!
    • Scott Adams
      You've done an excellent job of meticulously tracking the rash's unpredictable behavior, from its symmetrical spread and stubborn scabbing to the potential triggers you've identified, like the asthma medication and dietary changes. It's particularly telling that the rash seems to flare with wheat consumption, even though your initial blood test was negative—as you've noted, being off wheat before a test can sometimes lead to a false negative, and your description of the other symptoms—joint pain, brain fog, stomach issues—is very compelling. The symmetry of the rash is a crucial detail that often points toward an internal cause, such as an autoimmune response or a systemic reaction, rather than just an external irritant like a plant or mites. I hope your doctor tomorrow takes the time to listen carefully to all of this evidence you've gathered and works with you to find some real answers and effective relief. Don't be discouraged if the rash fluctuates; your detailed history is the most valuable tool you have for getting an accurate diagnosis.
    • Scott Adams
      In this case the beer is excellent, but for those who are super sensitive it is likely better to go the full gluten-free beer route. Lakefront Brewery (another sponsor!) has good gluten-free beer made without any gluten ingredients.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.