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Body Aches

sarahnaser

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sarahnaser Rookie
sarahnaser
Posted

hello, eveyone. my daughter (6yr old)has her first GI visit on the 24 and i am waiting and waiting. but for last 2 weeeks my daughter has been complaining of body aches. the doctor said it could be a virus since no high fever is present. then we went again and she said it could be her allergies. but i don't think the doctor even know. Does anyone have similiar problem? i read in one of the boards that celiac can cause fatigue. what do you do? take motrin everyday? i am confused. should i change doctors? i can't go gluten free yet until teh GI says right?

sarah naser

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flagbabyds Collaborator
flagbabyds
Posted

It could be that she is so malnourished that her bones are starting to disenigrate and that happened to me and besically they said that my bones were so thin that i couldn't walk becuase it hurt me so much maybe you should ask you doctor about that becuase when i was sick they did a muscle biopsy becuase it i couldn't walk and they put me on vitamins and after the diet started i got better and was able to walk again

Guest jhmom
Guest jhmom
Posted

Hi Sara, I am sorry your daughter is in that kind of pain. Since everyone has different symptoms with Celiac it is possible the "pain" is related!?!?!?

As far as the fatigue goes, I have not found anything that helps with it. Right now, I rest when I need to and try not to overdo it. However when your daughter comes off Gluten she should feel a difference within a couple of days and it can take up to months to feel 100% better.

You can put your daughter on a gluten-free diet at any time but if your GI wants to run blood work or other tests she MUST be on gluten for it to come back accurate. There is another option for you which is Open Original Shared Link they perform a stool panel test which is more sensitive than the blood and a lot more accurate and you DO NOT have to be on gluten!!

I know how you must feel my 8 year old has had problems since she was a baby and after I was diagnosed with celiac disease I had her tested through Enterolab and she has it also. After being gluten-free since Sept we are both feeling better, she seems to have more energy and does not complain of abdominal pain!

Hang in there! :D

KAthyB Newbie
KAthyB
Posted

My daughter definitely has body aches related to gluten. They went away while she was gluten-free for 7 weeks and are back now that she is consuming gluten again for her biospy tomorrow. Mainly it is her legs that ache and not much helps. Warm showers or baths are better than using the motrin for a little one. Good Luck!

KathyB

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    • trents
      Unexpected gluten exposure risk from cultivated mushrooms

      By trents · Posted

      Welcome to the celiac.com communiuty, @Matthias! Yes, we have been aware that this can be an issue with mushrooms but as long as they are rinsed thoroughly it should not be a problem since the mushrooms don't actually incorporate the gluten into their cellular structure. For the same reason, one needs to be careful when buying aged cheeses and products containing yeast because of the fact that they are sometimes cultured on gluten-containing substrate.
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    • trents
      how much gluten do I need to eat before blood tests?

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