Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Weird Skin Pain


Marie1976

Recommended Posts

Marie1976 Enthusiast

For years, I have been having skin pain/sensitivity on my hands and arms. It comes and goes, usually only on one arm at a time. You can't see anything, no rash or anything. It doesn't itch. Someone suggested it's my joints and not my skin, and I guess it seems weird that I can't really pinpoint where it actually hurts, if it's my skin or joints. I remember getting it as a kid whenever I had a fever. Now it just comes and goes all the time whether I'm sick or not. I'm wondering now if it's celiac-related. Does anyone know what I'm talking about?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



jeannieknits Rookie

For years, I have been having skin pain/sensitivity on my hands and arms. It comes and goes, usually only on one arm at a time. You can't see anything, no rash or anything. It doesn't itch. Someone suggested it's my joints and not my skin, and I guess it seems weird that I can't really pinpoint where it actually hurts, if it's my skin or joints. I remember getting it as a kid whenever I had a fever. Now it just comes and goes all the time whether I'm sick or not. I'm wondering now if it's celiac-related. Does anyone know what I'm talking about?

so funny you mention this because my daughter was just complaining about this last week--she tested neg for celiac,(even had the endoscopy) but I swear she has it. her entire forearm was, in her words "super sensitive", like the "skin was full of nerves" . it went away after about three hours, but she says it's happened before. she's almost 19, has reactions to dairy, gets horrible migraines, always has headaches, has an upset belly most the time, always has had (in my opinion) "weird" poops....but I've been telling her to TRY and go gluten free for a month and she just wont :( stubborn kid.

so, I wonder if this is a symptom as well. I remember having this happen to me. it is very odd.

heather Goble Rookie

For years, I have been having skin pain/sensitivity on my hands and arms. It comes and goes, usually only on one arm at a time. You can't see anything, no rash or anything. It doesn't itch. Someone suggested it's my joints and not my skin, and I guess it seems weird that I can't really pinpoint where it actually hurts, if it's my skin or joints. I remember getting it as a kid whenever I had a fever. Now it just comes and goes all the time whether I'm sick or not. I'm wondering now if it's celiac-related. Does anyone know what I'm talking about?

This happens to me as well. It used to only happen when I was sick or getting sick. I never knew how to explain it, my skin just hurt. Now it happens when I am not sick. I thought it was something that was common to everyone. I remember the first time I told my husband "You know how your skin hurts when you are coming down with something?" He looked at me like I had two heads. He had never heard of such a thing.... Glad to hear it's not just me.

Marie1976 Enthusiast

That describes it exactly, Jeannie. And Heather, I have said those exact words to my husband and he looked at me the same way.

I guess I'm not the only one then!

sb2178 Enthusiast

I tend to get it before a migraine (migraines aren't formally diagnosed as they're pretty rare and a couple of aleve with a long nap generally gets me through them) and the skin pain is worse than the head pain. I HATE wearing clothes then, because it hurts.

JenHarris Apprentice

I too have had this. And it does happen more with being sick, but I've had it with migraines too. My husband thought it was so weird that I couldn't wear anything but super loose clothing when I used to have migraines.

CDFAMILY Rookie

Hi, what you are experiencing is mild neuropathy. My whole family would complain about this. You might check your B vitamins especially B12. Our family takes a B50 complex and B12 sublingual 2-5,000 mcg 3 to 4 times a week. We do not experience this problem anymore.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Kre8sioN Newbie

Can it happen anywhere? Ive been having low to mild sharp pains here and there across the stomach, seem to be just under the skin, no rash, no itch. I often feel my clothes or the seat belt rub and it happens, not every day though? My doctor, just starting to believe I'm Celiac explained it as very small lymph nodes causing this, because I have other enlarged lymph nodes. Any truth to this, anyone else have "Weird Pains" across the skin of the stomach? and thanks cdfamily I will look into this.

heather Goble Rookie

Can it happen anywhere? Ive been having low to mild sharp pains here and there across the stomach, seem to be just under the skin, no rash, no itch. I often feel my clothes or the seat belt rub and it happens, not every day though? My doctor, just starting to believe I'm Celiac explained it as very small lymph nodes causing this, because I have other enlarged lymph nodes. Any truth to this, anyone else have "Weird Pains" across the skin of the stomach? and thanks cdfamily I will look into this.

Lately, I have been experiencing this mostly on my stomach which is different especially as I haven't been "sick." No rash, no bumps, no redness at all even though each time I think "there's got to be something there!"

  • 3 years later...
katalholt Newbie

I don't now if any of you are still following this thread, as it's quite old... But I have had similar symptoms for the last five years or so. I get these "attacks" where my skin feels like it's badly bruised, very sensitive and painful to the touch, but there's no bruise or rash. I usually get it on my back, the back of my neck, my stomach, and sometimes my chest, face, arms and scalp. It's really painful, and lasts for hours, making lying down and sleeping really unbearable.

I realized after having the first attacks that it was somehow related to what I was eating, because I would usually get them after eating Chinese food or pizza, so at first I thought it was MSG. But then I started having them when I hadn't eaten MSG (to my knowledge). Just recently, I was eating more or less a paleo style of eating for about a month, and I was feeling great. I allowed myself a cheat meal that included wheat, and boom. I had an attack. I experimented with it again, ate clean for a few weeks, no attacks. And had another cheat day where I had bread and beer. I had a really bad attack that lasted a day and a half.

So, have any of you come up with more answers? Is this one way that a gluten intolerance can manifest? I've never had GI problems with gluten, and it's never caused a rash, which seems to be a more common symptom. I have been on a B12 supplement even when I had the last couple attacks... So I don't know about the neuropathy theory. Any insights?

edgymama Apprentice

I get something similar but mine is almost always in my thigh area, I get a weird pain/prickle type feeling that is similar to a limb falling asleep but it hurts more and it is just an area of skin that does it. Very strange sensation. I have not been able to connect it to anything or any reason for it happening so my guess would be something to do with vitamin deficiency as well! 

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Colleen H replied to Colleen H's topic in Coping with Celiac Disease
      2

      Gluten related ??

    2. - Jmartes71 replied to Jmartes71's topic in Coping with Celiac Disease
      4

      My only proof

    3. - AlwaysLearning replied to Jmartes71's topic in Coping with Celiac Disease
      4

      My only proof

    4. - AlwaysLearning replied to Colleen H's topic in Coping with Celiac Disease
      2

      Gluten related ??


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,076
    • Most Online (within 30 mins)
      7,748

    Deb baker
    Newest Member
    Deb baker
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Colleen H
      Thank you so much for your response  Yes it seems as though things get very painful as time goes on.  I'm not eating gluten as far as I know.  However, I'm not sure of cross contamination.  My system seems to weaken to hidden spices and other possibilities. ???  if cross contamination is possible...I am in a super sensitive mode of celiac disease.. Neuropathy from head to toes
    • Jmartes71
      EXACTLY! I was asked yesterday on my LAST video call with Standford and I stated exactly yes absolutely this is why I need the name! One, get proper care, two, not get worse.Im falling apart, stressed out, in pain and just opened email from Stanford stating I was rude ect.I want that video reviewed by higher ups and see if that women still has a job or not.Im saying this because I've been medically screwed and asking for help because bills don't pay itself. This could be malpratice siit but im not good at finding lawyers
    • AlwaysLearning
      We feel your pain. It took me 20+ years of regularly going to doctors desperate for answers only to be told there was nothing wrong with me … when I was 20 pounds underweight, suffering from severe nutritional deficiencies, and in a great deal of pain. I had to figure it out for myself. If you're in the U.S., not having an official diagnosis does mean you can't claim a tax deduction for the extra expense of gluten-free foods. But it can also be a good thing. Pre-existing conditions might be a reason why a health insurance company might reject your application or charge you more money. No official diagnosis means you don't have a pre-existing condition. I really hope you don't live in the U.S. and don't have these challenges. Do you need an official diagnosis for a specific reason? Else, I wouldn't worry about it. As long as you're diligent in remaining gluten free, your body should be healing as much as possible so there isn't much else you could do anyway. And there are plenty of us out here who never got that official diagnosis because we couldn't eat enough gluten to get tested. Now that the IL-2 test is available, I suppose I could take it, but I don't feel the need. Someone else not believing me really isn't my problem as long as I can stay in control of my own food.
    • AlwaysLearning
      If you're just starting out in being gluten free, I would expect it to take months before you learned enough about hidden sources of gluten before you stopped making major mistakes. Ice cream? Not safe unless they say it is gluten free. Spaghetti sauce? Not safe unless is says gluten-free. Natural ingredients? Who knows what's in there. You pretty much need to cook with whole ingredients yourself to avoid it completely. Most gluten-free products should be safe, but while you're in the hypersensitive phase right after going gluten free, you may notice that when something like a microwave meal seems to not be gluten-free … then you find out that it is produced in a shared facility where it can become contaminated. My reactions were much-more severe after going gluten free. The analogy that I use is that you had a whole army of soldiers waiting for some gluten to attack, and now that you took away their target, when the stragglers from the gluten army accidentally wander onto the battlefield, you still have your entire army going out and attacking them. Expect it to take two years before all of the training facilities that were producing your soldiers have fallen into disrepair and are no longer producing soldiers. But that is two years after you stop accidentally glutening yourself. Every time you do eat gluten, another training facility can be built and more soldiers will be waiting to attack. Good luck figuring things out.   
    • Russ H
      This treatment looks promising. Its aim is to provoke immune tolerance of gluten, possibly curing the disease. It passed the phase 2 trial with flying colours, and I came across a post on Reddit by one of the study volunteers. Apparently, the results were good enough that the company is applying for fast track approval.  Anokion Announces Positive Symptom Data from its Phase 2 Trial Evaluating KAN-101 for the Treatment of Celiac Disease https://www.reddit.com/r/Celiac/comments/1krx2wh/kan_101_trial_put_on_hold/
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.