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Celiac And Work


Lucydesi

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Lucydesi Rookie

Sometimes it seems like all I have the energy for is work. I would like to do more but my job is pretty emotionally demanding so it seems like I don't have much energy for anything else. I do fun things on the weekends sometimes, but wish I could swing more of a social life. I wonder if anyone else struggles with the demands of work and energy levels. I have been gluten-free for 3 years and am much better, but I am really cracking down on small amount such as those trace amounts found in lipstick. My house is completely gluten-free. Any tips on increasing energy?

Thanks so much. :huh:


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sb2178 Enthusiast

Making sure that I get enough sleep and maintain high levels of nutrients help. I find that I really need a multimineral and additional magnesium. I've tried dropping both, but it seems like weird sleep patterns and more fatigue pop up within a week or two each time.

Cutting sugar/refined grains in favor of whole grains (preferably unprocessed) and fruit tends to help level out blood sugar so I don't hit the total exhaustion point at the end of the workday. My success in doing that varies!

Can you bring your social life to you instead of going out for it? Meet at the pub around the corner, or rent a movie and make pop corn with a couple of friends instead of heading out a movie. Or low-key things like having afternoon coffee with one or two people. I started an intense job last fall and found that I needed more downtime but also a social life! Fortunately, friends were willing to come to me, and it was fairly easy to just drop by unannounced at couple of people's houses who lived near-by on the Sunday afternoons I was desperate for people and up for it. Have a cup of tea, chat a bit, then head home.

cassP Contributor

i can relate BIG TIME. i have more energy now that im on meds for my thyroid.. but its still not quite there- between the fatigue & anxiety, and then the intestinal pain from additional food intolerances: i spend way too much time confined to my home or bathroom... the remaining energy i have is totally spent at my crappy job (im a massage therapist- and it is STRENOUS labor).

i never have time or energy to clean- my house is just a mess- im thinking i should pay someone to clean it- i dont have the energy or the upper body strength left- forget scrubbing. :(

its really getting old. and i seem to only fit in my exercise on the days off- when if i could do some everyday- it would help me feel better.

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    • Colleen H
      Thank you so much for your response  Yes it seems as though things get very painful as time goes on.  I'm not eating gluten as far as I know.  However, I'm not sure of cross contamination.  My system seems to weaken to hidden spices and other possibilities. ???  if cross contamination is possible...I am in a super sensitive mode of celiac disease.. Neuropathy from head to toes
    • Jmartes71
      EXACTLY! I was asked yesterday on my LAST video call with Standford and I stated exactly yes absolutely this is why I need the name! One, get proper care, two, not get worse.Im falling apart, stressed out, in pain and just opened email from Stanford stating I was rude ect.I want that video reviewed by higher ups and see if that women still has a job or not.Im saying this because I've been medically screwed and asking for help because bills don't pay itself. This could be malpratice siit but im not good at finding lawyers
    • AlwaysLearning
      We feel your pain. It took me 20+ years of regularly going to doctors desperate for answers only to be told there was nothing wrong with me … when I was 20 pounds underweight, suffering from severe nutritional deficiencies, and in a great deal of pain. I had to figure it out for myself. If you're in the U.S., not having an official diagnosis does mean you can't claim a tax deduction for the extra expense of gluten-free foods. But it can also be a good thing. Pre-existing conditions might be a reason why a health insurance company might reject your application or charge you more money. No official diagnosis means you don't have a pre-existing condition. I really hope you don't live in the U.S. and don't have these challenges. Do you need an official diagnosis for a specific reason? Else, I wouldn't worry about it. As long as you're diligent in remaining gluten free, your body should be healing as much as possible so there isn't much else you could do anyway. And there are plenty of us out here who never got that official diagnosis because we couldn't eat enough gluten to get tested. Now that the IL-2 test is available, I suppose I could take it, but I don't feel the need. Someone else not believing me really isn't my problem as long as I can stay in control of my own food.
    • AlwaysLearning
      If you're just starting out in being gluten free, I would expect it to take months before you learned enough about hidden sources of gluten before you stopped making major mistakes. Ice cream? Not safe unless they say it is gluten free. Spaghetti sauce? Not safe unless is says gluten-free. Natural ingredients? Who knows what's in there. You pretty much need to cook with whole ingredients yourself to avoid it completely. Most gluten-free products should be safe, but while you're in the hypersensitive phase right after going gluten free, you may notice that when something like a microwave meal seems to not be gluten-free … then you find out that it is produced in a shared facility where it can become contaminated. My reactions were much-more severe after going gluten free. The analogy that I use is that you had a whole army of soldiers waiting for some gluten to attack, and now that you took away their target, when the stragglers from the gluten army accidentally wander onto the battlefield, you still have your entire army going out and attacking them. Expect it to take two years before all of the training facilities that were producing your soldiers have fallen into disrepair and are no longer producing soldiers. But that is two years after you stop accidentally glutening yourself. Every time you do eat gluten, another training facility can be built and more soldiers will be waiting to attack. Good luck figuring things out.   
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      This treatment looks promising. Its aim is to provoke immune tolerance of gluten, possibly curing the disease. It passed the phase 2 trial with flying colours, and I came across a post on Reddit by one of the study volunteers. Apparently, the results were good enough that the company is applying for fast track approval.  Anokion Announces Positive Symptom Data from its Phase 2 Trial Evaluating KAN-101 for the Treatment of Celiac Disease https://www.reddit.com/r/Celiac/comments/1krx2wh/kan_101_trial_put_on_hold/
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