My Results... I Think?

[katiekay]

Am so confused. I have been bugging my doctor via email (because I left my cell phone elsewhere) about various info I've learned about celiacs. This is the response I got:

"Your Celiac tests- tTg IgA and tTg IgG are both absent.

Your sources are correct in that what this suggests is you do not hve severe celiac disease.

Wheat allergy is a different thing.

If you want a good resorce to discuss this with ( and get blood tests for) I recommend Karen Chagnon-Registered Dietician and Nutritionist at 221-3332 in Yarmouth.

I don't know much about those saliva tests but sounds reasonable."

Do you guys have any thoughts??? I will try and call him tomorrow. And just want to state that the blood test was taken after 6 1/2 days being gluten free but then 3 1/2 days being back on gluten. I would think that mild might actually mean that I have it... but am not sure what he meant or if that's what he meant.

This was the response I just emailed:

"Do you mean my results came in?

You wrote that I "do not have severe celiac disease" does that mean I have a mild case? Are you stating that this signifies that I have a wheat allergy?

Would you be able to mail me my results?"

[katiekay]

maybe he meant "you do not have anything as severe as celiacs but you may have a wheat allergy"

[MsCurious]

Am so confused. I have been bugging my doctor via email (because I left my cell phone elsewhere) about various info I've learned about celiacs. This is the response I got:

"Your Celiac tests- tTg IgA and tTg IgG are both absent.

Your sources are correct in that what this suggests is you do not hve severe celiac disease.

Wheat allergy is a different thing.

If you want a good resorce to discuss this with ( and get blood tests for) I recommend Karen Chagnon-Registered Dietician and Nutritionist at 221-3332 in Yarmouth.

I don't know much about those saliva tests but sounds reasonable."

Do you guys have any thoughts??? I will try and call him tomorrow. And just want to state that the blood test was taken after 6 1/2 days being gluten free but then 3 1/2 days being back on gluten. I would think that mild might actually mean that I have it... but am not sure what he meant or if that's what he meant.

This was the response I just emailed:

"Do you mean my results came in?

You wrote that I "do not have severe celiac disease" does that mean I have a mild case? Are you stating that this signifies that I have a wheat allergy?

Would you be able to mail me my results?"

I'm totally guessing here, but it "almost" sounds like he is using the term "wheat allergy" incorrectly ...and probably means gluten intolerance (which is why he said you don't have a severe case of celiac disease.... but wheat allergy (gluten intolerance is probably what he meant) is a different thing.) BUT ... again I'm just guessing. He may have meant that you don't have celiac, and you "might" have a wheat allergy... but those are so very different, that it seems an odd thing to say. Lots of people are gluten intolerant, but don't have wheat allergy and vice versa. Let us know what you find out! Hang in there... and good luck. Hope you feel better soon.

[katiekay]

hi mscurious...i don't understand what you mean. do you mean that he may mean that i do have a mild case of celiac which is labeled gluten intolerance?

[MsCurious]

hi mscurious...i don't understand what you mean. do you mean that he may mean that i do have a mild case of celiac which is labeled gluten intolerance?

That kind of is what it sounds like he might have meant, but I don't really know, because of how he worded things. Best things to do is to pin him down. Ask him if he thinks you may have a wheat allergy, and if so... test for it. OR, did he mean you might have gluten intolerance (which is not wheat allergy in the conventional sense). Make him tell you what he thinks, and keep asking him questions until you understand the answers. If he doesn't know the answers, ask him what he is going to do to find out the answers.

Hmmm.. I just read what he said again, and it DOES sound like he is suggesting you get tested for wheat allergy.