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Get Endo Done Now?

jemms

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jemms Apprentice
jemms
Posted

Just diagnosed with Gluten Intolerance and possible Celiacs. I was told by my doctor to wait until I feel better to get the endo done. She said the risk for infection is high because I have had so many G.I. symptoms... my concern is that the endo wont show celiac's if I start eating gluten free now...isnt it best to get it done now rather than go off gluten, feel better then start eating gluten again?? Any thoughts on this would be appreciated. Thank you so much!!

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goodnews Apprentice
goodnews
Posted

Just diagnosed with Gluten Intolerance and possible Celiacs. I was told by my doctor to wait until I feel better to get the endo done. She said the risk for infection is high because I have had so many G.I. symptoms... my concern is that the endo wont show celiac's if I start eating gluten free now...isnt it best to get it done now rather than go off gluten, feel better then start eating gluten again?? Any thoughts on this would be appreciated. Thank you so much!!

Interesting, I have never heard that before. I feel like crap and am getting one on Wednesday. Also my gallbladder is failing and have frequent gallbladder pain and they are going to probably schedule to have it taken it out after I do the Endoscopy. They actually wanted to do the endoscopy first. Yes, if you are going to get the endoscopy done and you are thinking celiac you definitely can't go gluten free yet! Doesn't the doctor get that you have GI symptoms and that is why you need the endoscopy? does the dr. feel it will resolve on it's own? Very strange.

Jaymie Jaymz Rookie
Jaymie Jaymz
Posted

I agree. I would get it done now while you're still eating gluten. What's the point of going off of it and then back on?? Gluten challenges suck, and no one really knows for sure how long you should be on one in order to bring the damage back. Everyone's body is different, so all we can do is guess.

From reading here, I've seen people test positive after just one month, and then I saw someone who tested negative even after a six month challenge. Just seems like a crap shoot.

Anyway, hope you get some answers soon.

Cara in Boston Enthusiast
Cara in Boston
Posted

Do not go gluten free until you have the endoscopy done. Even a week can be enough to heal enough that your result could be a false negative. I would schedule it as soon as possible so you can go gluten free as soon as possible and start feeling better.

Cara

jemms Apprentice
jemms
Posted
  • Author

thank you everyone!! I have decided to go ahead and get it done...May 18th is the day!

I think my doctor didnt understand why I needed that definitive answer that yes it is Celiac's...she kept saying well you are gluten intolerant so whether you have celiacs or not you still have to stay off the gluten. I need to know absolutely for sure if it is celiacs not only for me but for my children as well. I am adopted so the more medical info I can find out for myself will benefit my children in the end as well. I am going to start back on the gluten which in some sick way is exciting because I can have that croissant I have been craving :P . Thanks everyone for taking the time to respond.

goodnews Apprentice
goodnews
Posted

thank you everyone!! I have decided to go ahead and get it done...May 18th is the day!

I think my doctor didnt understand why I needed that definitive answer that yes it is Celiac's...she kept saying well you are gluten intolerant so whether you have celiacs or not you still have to stay off the gluten. I need to know absolutely for sure if it is celiacs not only for me but for my children as well. I am adopted so the more medical info I can find out for myself will benefit my children in the end as well. I am going to start back on the gluten which in some sick way is exciting because I can have that croissant I have been craving :P . Thanks everyone for taking the time to respond.

Glad you got it scheduled...yes sometimes they just don't know. My dr. told me the other day that I could try the gluten free diet and see if I felt better. I explained to him that I wanted to wait til all the testing was done to make sure. I said to me there is a difference between going gluten free and not ever being able to cheat (having Celiac) and having to go gluten free for a while (or possibly permanently) because it just makes me feel better. So my endoscopy is in 2 days...tommorrow is the last day I can eat. So we ordered out white pizza with broccoli tonight. It was divine! I am definitely going to miss that. Of course I am certain I will be feeling pretty sick in a little bit, at least with the gallbladder. Keep us posted and enjoying the last hurrah eating gluten. : )

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