Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Igg Results And Future Expectations?

Neali

Recommended Posts

Neali Rookie
Neali
Posted

Our 5 year old daughter showed results of IGG high to gluten, gliadin, wheat, spelt, yeast and moderate to egg whites, rye, soy bean and garlic.

From your experience, is there any chances that it can improve (go away?) with time?

She has been on gluten free diet for almost a year, with impressive changes/results.

And on diet free from all the other foods she showed reaction to, for about 1 month and 1/2, we have been recommended to keep it up for 3 months, I might anyway keep it going longer.

We opt for no other treatments so far, but might reconsider as she still presents some signs of not being fully recovered maybe (pale stools).

The Doctor Naturopath we dealt with said that it is possible that the wheat/gliadin/gluten problems would be for life :-( I guess based on the symptoms + results?

I worry a lot, and not knowing enough is the worse, I prefer to be "ready" for all kind of scenarios now, since this is quite recent to us - we've been struggling with "traditional" medecine "back home" in England as they kept saying she was healthy and nothing was wrong with her (always ill with tonsiltis and/or other infections, bloated tummy, eczema, complaining of tummy ache, head ache, nausea, diarhoea)because she was happy and -looking- healthy.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


charliesmom Rookie
charliesmom
Posted

Has she been tested for celiac disease?

Neali Rookie
Neali
Posted
  • Author

Hello Charliesmom,

No she hasn't.

In England the family doctors we had couldn't be concerned less (almost had me fully convinced that I was the problem and the one to be treated with prozac or else) :-(

And since we arrived here we haven't found a family doctor yet, we went for a naturopath, but she works with limitations, and she also said that the only way to check for celiac was with the endoscopy procedure - which, because of our past experience with medical services we were terrorised of putting her through, but since reading a few positive stories here, I start to re-think.

Aline

GlutenFreeManna Rising Star
GlutenFreeManna
Posted

Since she has been on a gluten free diet for a year testing for celiac will be negative, if she has it, it would show up false negative. The only way to get testing done would be to challenge her by feeding her gltuen --the equivalent of 3-4 slicces of bread-- for at least 3 months prior to testing. However, if you feed her gltuen again and her symptoms return then you have your answer and should keep her gluten free for good regardless of the test results (or if you can't keep her on gltuen long enough for the tests which is the case for many here). Celiac/gluten intolerance does not go away with time.

alex11602 Collaborator
alex11602
Posted

Our 5 year old daughter showed results of IGG high to gluten, gliadin, wheat, spelt, yeast and moderate to egg whites, rye, soy bean and garlic.

From your experience, is there any chances that it can improve (go away?) with time?

She has been on gluten free diet for almost a year, with impressive changes/results.

And on diet free from all the other foods she showed reaction to, for about 1 month and 1/2, we have been recommended to keep it up for 3 months, I might anyway keep it going longer.

We opt for no other treatments so far, but might reconsider as she still presents some signs of not being fully recovered maybe (pale stools).

The Doctor Naturopath we dealt with said that it is possible that the wheat/gliadin/gluten problems would be for life :-( I guess based on the symptoms + results?

I worry a lot, and not knowing enough is the worse, I prefer to be "ready" for all kind of scenarios now, since this is quite recent to us - we've been struggling with "traditional" medecine "back home" in England as they kept saying she was healthy and nothing was wrong with her (always ill with tonsiltis and/or other infections, bloated tummy, eczema, complaining of tummy ache, head ache, nausea, diarhoea)because she was happy and -looking- healthy.

As far as doctors go I beg you to listen to your gut. Doctors do not know everything...for example, my 16 month old daughter is facing kidney failure (they are functioning at 65%) because the only doctors the insurance would cover insisted she was fine for the same reason (always smiling and happy, little did they know that she was in so much pain that their poking and proding didn't bother her). We finally were fed up with them (they diagnosed her over the phone with celiac and wouldn't do anything when she had bloody stools) and we went to another pediatrician who checked her blood levels and she is deficient in everything and her intestines are in really bad shape, but because the other doctors just blew us off my 16 month old child is facing total organ failure in the next 6 months. Our pediatrician actually just told us to try natural healing like massage and aromatherapy to stimulate her kidneys so that we wont lose her because no one else will even look at her because we no longer have insurance and it seems that it is all about money.

Anyway...sorry that I got so off topic. My point was pretty much find a doctor that will take you seriously because it is your child's life. I truely hope that you get the answers that you need. Good luck to you.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,198
    • Most Online (within 30 mins)
      7,748
    Jamie0230
    Newest Member
    Jamie0230
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Scott Adams
      Does Dailymed.nlm.nih.gov site have filters for gluten?

      By Scott Adams · Posted

      Clearly from what you've said the info on Dailymed is much more up to date than the other site, which hasn't been updated since 2017. The fact that some companies might be repackaging drugs does not mean the info on the ingredients is not correct.
    • RMJ
      Waiting Gastroenterology review

      By RMJ · Posted

      To evaluate the TTG antibody result we’d need to know the normal range for that lab.  Labs don’t all use the same units.  However, based on any normal ranges that I’ve seen and the listed result being greater than a number rather than a specific number, I’d say yes, that is high! Higher than the range where the test can give a quantitative result. You got good advice not to change your diet yet.  If you went gluten free your intestines would start to heal, confusing any further testing,
    • Bev in Milw
      Does Dailymed.nlm.nih.gov site have filters for gluten?

      By Bev in Milw · Posted

      Scott is correct….Thank you for catching that!      Direct link for info  of fillers.    http://www.glutenfreedrugs.com/Excipients.htm Link is on 2nd page  of www.glutenfreedrugs.com   Site was started by a pharmacist (or 2) maybe 15-20 yrs ago with LAST updated in  2017.  This makes it’s Drug List so old that it’s no longer relevant. Companies & contacts, along with suppliers &  sources would need to be referenced, same amount effort  as starting with current data on DailyMed      That being said, Excipient List is still be relevant since major changes to product labeling occurred prior ’17.           List is the dictionary that sources the ‘foreign-to-us’ terms used on pharmaceutical labels, terms we need to rule out gluten.    Note on DailyMed INFO— When you look for a specific drug on DailyMed, notice that nearly all of companies (brands/labels) are flagged as a ‘Repackager’… This would seem to suggest the actual ‘pills’ are being mass produced by a limited number of wholesaler suppliers (esp for older meds out of  patent protection.).      If so, multiple repackager-get  bulk shipments  from same supplier will all  be selling identical meds —same formula/fillers. Others repackager-could be switching suppliers  frequently based on cost, or runs both gluten-free & non- items on same lines.  No way to know  without contacting company.     While some I know have  searched pharmacies chasing a specific brand, long-term  solution is to find (or teach) pharmacy staff who’s willing help.    When I got 1st Rx ~8 years ago, I went to Walgreens & said I needed gluten-free.  Walked  out when pharmacist said  ‘How am I supposed  to know…’  (ar least he as honest… ). Walmart pharmacists down the block were ‘No problem!’—Once, they wouldn’t release my Rx, still waiting on gluten-free status from a new supplier. Re: Timeliness of DailyMed info?   A serendipitous conversation with cousin in Mi was unexpectedly reassuring.  She works in office of Perrigo, major products of OTC meds (was 1st to add gluten-free labels).  I TOTALLY lucked out when I asked about her job: “TODAY I trained a new full-time employee to make entries to Daily Med.’  Task had grown to hours a day, time she needed for tasks that couldn’t be delegated….We can only hope majorities of companies are as  conscientious!   For the Newbies…. SOLE  purpose of  fillers (possible gluten) in meds is to  hold the active ingredients together in a doseable form.  Drugs  given by injection or as IV are always gluten-free!  (Sometimes drs can do antibiotics w/ one-time injection rather than 7-10 days of  pills .) Liquid meds (typically for kids)—still read labels, but  could be an a simpler option for some products…
    • Ginger38
      Food Allergies

      By Ginger38 · Posted

      So I recently had allergy testing for IGE antibodies in response to foods. My test results came back positive to corn, white potatoes, egg whites. Tomatoes, almonds and peanuts to name a few.  I have had obvious reactions to a few of these - particularly tomatoes and corn- both GI issues. I don’t really understand all this allergy versus celiac stuff. If the food allergies are mild do I have to avoid these foods entirely? I don’t know what I will eat if I can’t  have corn based gluten free products 
    • JForman
      7yo struggling!

      By JForman · Posted

      We have four children (7-14 yo), and our 7 year old was diagnosed with NCGS (though all Celiac labs were positive, her scope at 4 years old was negative so docs in the US won't call it celiac). We have started her on a Gluten Free diet after 3 years of major digestive issues and ruling out just about everything under the sun. Our home and kitchen and myself are all gluten-free. But I have not asked my husband/her dad or her other siblings to go completely gluten-free with us. They are at home, but not out of the home. This has led to situations when we are eating out where she has to consistently see others eating things she can't have and she has begun to say "Well, I can't have <fill in the blank>...stupid gluten."  How have you supported your gluten-free kiddos in the mental health space of this journey, especially young ones like her. I know it's hard for me as an adult sometimes to miss out, so I can't imagine being 7 and dealing with it! Any tips or ideas to help with this? 
×
×
  • Create New...