Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Igg Results And Future Expectations?


Neali

Recommended Posts

Neali Rookie

Our 5 year old daughter showed results of IGG high to gluten, gliadin, wheat, spelt, yeast and moderate to egg whites, rye, soy bean and garlic.

From your experience, is there any chances that it can improve (go away?) with time?

She has been on gluten free diet for almost a year, with impressive changes/results.

And on diet free from all the other foods she showed reaction to, for about 1 month and 1/2, we have been recommended to keep it up for 3 months, I might anyway keep it going longer.

We opt for no other treatments so far, but might reconsider as she still presents some signs of not being fully recovered maybe (pale stools).

The Doctor Naturopath we dealt with said that it is possible that the wheat/gliadin/gluten problems would be for life :-( I guess based on the symptoms + results?

I worry a lot, and not knowing enough is the worse, I prefer to be "ready" for all kind of scenarios now, since this is quite recent to us - we've been struggling with "traditional" medecine "back home" in England as they kept saying she was healthy and nothing was wrong with her (always ill with tonsiltis and/or other infections, bloated tummy, eczema, complaining of tummy ache, head ache, nausea, diarhoea)because she was happy and -looking- healthy.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



charliesmom Rookie

Has she been tested for celiac disease?

Neali Rookie

Hello Charliesmom,

No she hasn't.

In England the family doctors we had couldn't be concerned less (almost had me fully convinced that I was the problem and the one to be treated with prozac or else) :-(

And since we arrived here we haven't found a family doctor yet, we went for a naturopath, but she works with limitations, and she also said that the only way to check for celiac was with the endoscopy procedure - which, because of our past experience with medical services we were terrorised of putting her through, but since reading a few positive stories here, I start to re-think.

Aline

GlutenFreeManna Rising Star

Since she has been on a gluten free diet for a year testing for celiac will be negative, if she has it, it would show up false negative. The only way to get testing done would be to challenge her by feeding her gltuen --the equivalent of 3-4 slicces of bread-- for at least 3 months prior to testing. However, if you feed her gltuen again and her symptoms return then you have your answer and should keep her gluten free for good regardless of the test results (or if you can't keep her on gltuen long enough for the tests which is the case for many here). Celiac/gluten intolerance does not go away with time.

alex11602 Collaborator

Our 5 year old daughter showed results of IGG high to gluten, gliadin, wheat, spelt, yeast and moderate to egg whites, rye, soy bean and garlic.

From your experience, is there any chances that it can improve (go away?) with time?

She has been on gluten free diet for almost a year, with impressive changes/results.

And on diet free from all the other foods she showed reaction to, for about 1 month and 1/2, we have been recommended to keep it up for 3 months, I might anyway keep it going longer.

We opt for no other treatments so far, but might reconsider as she still presents some signs of not being fully recovered maybe (pale stools).

The Doctor Naturopath we dealt with said that it is possible that the wheat/gliadin/gluten problems would be for life :-( I guess based on the symptoms + results?

I worry a lot, and not knowing enough is the worse, I prefer to be "ready" for all kind of scenarios now, since this is quite recent to us - we've been struggling with "traditional" medecine "back home" in England as they kept saying she was healthy and nothing was wrong with her (always ill with tonsiltis and/or other infections, bloated tummy, eczema, complaining of tummy ache, head ache, nausea, diarhoea)because she was happy and -looking- healthy.

As far as doctors go I beg you to listen to your gut. Doctors do not know everything...for example, my 16 month old daughter is facing kidney failure (they are functioning at 65%) because the only doctors the insurance would cover insisted she was fine for the same reason (always smiling and happy, little did they know that she was in so much pain that their poking and proding didn't bother her). We finally were fed up with them (they diagnosed her over the phone with celiac and wouldn't do anything when she had bloody stools) and we went to another pediatrician who checked her blood levels and she is deficient in everything and her intestines are in really bad shape, but because the other doctors just blew us off my 16 month old child is facing total organ failure in the next 6 months. Our pediatrician actually just told us to try natural healing like massage and aromatherapy to stimulate her kidneys so that we wont lose her because no one else will even look at her because we no longer have insurance and it seems that it is all about money.

Anyway...sorry that I got so off topic. My point was pretty much find a doctor that will take you seriously because it is your child's life. I truely hope that you get the answers that you need. Good luck to you.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - tiffanygosci posted a topic in Coping with Celiac Disease
      0

      New Celiac Mama in My 30s

    2. - knitty kitty replied to klmgarland's topic in Dermatitis Herpetiformis
      8

      Help I’m cross contaminating myself,

    3. - Yaya replied to Jhona's topic in Introduce Yourself / Share Stuff
      29

      Does anyone here also have Afib

    4. - larc replied to Jhona's topic in Introduce Yourself / Share Stuff
      29

      Does anyone here also have Afib

    5. - klmgarland replied to klmgarland's topic in Dermatitis Herpetiformis
      8

      Help I’m cross contaminating myself,


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,919
    • Most Online (within 30 mins)
      7,748

    SB Willow
    Newest Member
    SB Willow
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • tiffanygosci
      Hello all! My life in the last five years has been crazy. I got married in 2020 at the age of 27, pregnant with our first child almost two months later, gave birth in 2021. We had another baby in April of 2023 and our last baby this March of 2025. I had some issues after my second but nothing ever made me think, "I should see a doctor about this." After having my last baby this year, my body has finally started to find its new rhythm and balance...but things started to feel out of sorts. A lot of symptoms were convoluted with postpartum symptoms, and, to top it all off, my cycle came back about 4m postpartum. I was having reoccurring migraines, nausea, joint pain, numbness in my right arm, hand and fingers, tummy problems, hives. I finally went to my PCP in August just for a wellness check and I brought up my ailments. I'm so thankful for a doctor that listens and is thorough. He ended up running a food allergy panel, an environmental respiratory panel, and a celiac panel. I found out I was allergic to wheat, allergic to about every plant and dust mites, and I did have celiac. I had an endoscopy done on October 3 and my results confirmed celiac in the early stages! I am truly blessed to have an answer to my issues. When I eat gluten, my brain feels like it's on fire and like someone is squeezing it. I can't think straight and I zone out easily. My eyes can't focus. I get a super bad migraine and nausea. I get so tired and irritable and anxious. My body hurts sometimes and my gut gets bloated, gassy, constipated, and ends with bowel movements. All this time I thought I was just having mom brain or feeling the effects of postpartum, sleep deprivation, and the like (which I probably was having and the celiac disease just ramped it up!) I have yet to see a dietician but I've already been eating and shopping gluten-free. My husband and I have been working on turning our kitchen 100% gluten-free (we didn't think this would be so expensive but he assured me that my health is worth all the money in the world). There are still a few things to replace and clean. I'm already getting tired of reading labels. I even replaced some of my personal hygiene care for myself and the kids because they were either made with oats or not labeled gluten-free. I have already started feeling better but have made some mistakes along the way or have gotten contamination thrown into the mix. It's been hard! Today I joked that I got diagnosed at the worst time of the year with all the holidays coming up. I will just need to bring my own food to have and to share. It will be okay but different after years of eating "normally". Today I ordered in person at Chipotle and was trying not to feel self-conscious as the line got long because they were following food-allergy protocols. It's all worth it to be the healthiest version of myself for me and my family. I would be lying if I said I wasn't a little overwhelmed and a little overloaded!  I am thankful for this community and I look forward to learning more from you all. I need the help, that's for sure!
    • knitty kitty
      On the AIP diet, all processed foods are eliminated.  This includes gluten-free bread.  You'll be eating meats and vegetables, mostly.  Meats that are processed, like sausages, sandwich meats, bacons, chicken nuggets, etc., are eliminated as well.  Veggies should be fresh, or frozen without other ingredients like sauces or seasonings.  Nightshade vegetables (eggplant, potatoes, tomatoes, peppers) are excluded.  They contain alkaloids that promote a leaky gut and inflammation.  Dairy and eggs are also eliminated.   I know it sounds really stark, but eating this way really improved my health.  The AIP diet can be low in nutrients, and, with malabsorption, it's important to supplement vitamins and minerals.  
    • Yaya
      Thank you for responding and for prayers.  So sorry for your struggles, I will keep you in mine.  You are so young to have so many struggles, mine are mild by comparison.  I didn't have Celiac Disease (celiac disease) until I had my gallbladder removed 13 years ago; at least nothing I was aware of.  Following surgery: multiple symptoms/oddities appeared including ridges on fingernails, eczema, hair falling out in patches, dry eyes, upset stomach constantly and other weird symptoms that I don't really remember.  Gastro did tests and endoscopy and verified celiac disease. Re heart: I was born with Mitral Valve Prolapse (MVP) and an irregular heartbeat, yet heart was extremely strong.  It was difficult to pick up the irregular heartbeat on the EKG per cardiologist.  I had Covid at 77, recovered in 10 days and 2 weeks later developed long Covid. What the doctors and nurses called the "kickoff to long Covid, was A-fib.  I didn't know what was going on with my heart and had ignored early symptoms as some kind of passing aftereffect stemming from Covid.  I was right about where it came from, but wrong on it being "passing".  I have A-fib as my permanent reminder of Covid and take Flecainide every morning and night and will for the rest of my life to stabilize my heartbeat.   
    • larc
      When I accidentally consume gluten it compromises the well-being of my heart and arteries. Last time I had a significant exposure, about six months ago, I had AFib for about ten days. It came on every day around dinner time. After the ten days or so it went away and hasn't come back.  My cardiologist offered me a collection of pharmaceuticals at the time.  But I passed on them. 
    • klmgarland
      So I should not eat my gluten free bread?  I will try the vitamins.  Thank you all so very much for your ideas and understanding.  I'm feeling better today and have gathered back my composure! Thank you kitty kitty   I am going to look this diet up right away.  And read the paleo diet and really see if I can make this a better situation then it currently is.  
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.