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detritus

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detritus Apprentice

I diagnosed myself with Celiac's about a year ago, due in large part to the vast amount of information about it on this forum. It's been a rocky gluten-free year, but the health benefits I'm realizing at this point have made it all worth it. I feel SO much better. But of course, with self diagnosis, there's always a tiny bit of doubt, and the skepticism one sees of the faces of family and friends. Well, today my brother sent me an email, telling me that because of my self diagnosis for Celiac's, he took some tests that came back with a strongly positive indication of gluten intolerance. I've suspected that he had "silent Celiacs" because he never had symptoms. My sister, however, has all the same issues that I do, but insists on labeling it "IBS" and says that her IBS diet tells her to eat bread with every meal!!!!

I'm sorry that my brother will have to forego some of his favorite bread recipes, but glad that he can now start healing his body, and avoid future issues. Now if only I can convince my sister to get tested.....


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hnybny91 Rookie

My Dd went gluten free about a month after I did because she has had sever stomach pain since she developed a severe bacterial infection from a ruptured apendix when she was 13 (she is 18 now.) Well the other day she ordered lettuce wraps from PF Changs. She had never eaten there in her pre-gluten free days so she just assumed that the only lettuce wrap they offered were the gluten free ones so she just ordered "lettuce wraps" instead of "gluten free lettuce wraps". She actually had to call in sick the next day she felt so bad so she got her "confirmation" too :)

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      I thank all who have replied to my initial comment. After letting it sink in for a few days and since eliminating gluten I have to say I do feel some better so all is not lost. I have investigated and there are lots of gluten free choices I can make without giving up really anything. At some point I will attempt to make my own gluten free bread when I have nothing else to do and see how that works. I got to thinking even though annoying it's not the end of the world, this problem is manageable, and it can be a learning curve for sure. Maybe this is just another part of the aging process so I better get used to it. Thank you all again. 
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      Hello, I’m only 20 and recently got diagnosed with celiac disease. I’ve been gluten free for around 2-3 months now but still feel miserable with bouts of gi symptoms that can come and go. I’m not sure what I’m doing wrong since I’ve cut back on a lot of food and eat more Whole Foods alongside using my own plates and such to  avoid possible sites of cross continuation. Recently my gi symptoms seemed to have gotten better but now I’m having a tension headache and some bouts of anxiety which were characteristic of my state when I first started out in the gluten free diet. Am I doing something wrong for these symptoms to come and go randomly??? Or is this normal for the healing process to be so random. I’m scared that I might have unresponsive celiac or refractory even though it would be highly unlikely…
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      Does this require proof of having refractory celiac? I’ve been gluten free for a couple months but still feel miserable but I’m not sure if its refractory celiac disease.
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