Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Blood Tests For Celiac


blissfully-unaware

Recommended Posts

blissfully-unaware Rookie

Hi

How many of you have gotten the celiac blood tests done again after being gluten free for 6 months (or a year)? My doctor hasn't said anything on this, but I've noticed that some of the forum members have done the tests again. So I'm wondering if it's necessary?

Thanks!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



WinterSong Community Regular

My doctor says that it's necessary, and I agree, because it shows your progress. If your levels don't go down enough or don't change it's a good indication that gluten is somehow sneaking it's way into your diet. For me it's important, because I want to make sure I'm doing it right and that all of my efforts are making a difference.

Kim69 Apprentice

I agree. It's good to get your blood retested to show a trend towards normal levels. I was retested after about four months because I insisted (I am an engineer and like to see trends). It helped me feel I was doing the right thing because the levels were changing in the right direction.

JonnyD Rookie

I've been gluten-free for about 2.5 months and plan to have my celiac levels tested again around the six month level. I also had high cholesterol so I'll get that rechecked then too. Since they're drawing blood, I'm going to have my vitamin levels checked, CBC and whatever else the doc will order. I haven't gone to a nutritionist so I'm waiting to see if it's even necessary. Mostly, I want to see how I'm doing on my own after a reasonable amount of time and then seek help in the areas I need to after that.

blissfully-unaware Rookie

Thanks JessicaNYC, Kim69 and jdrexler for your replies. I'll speak to my doctor about doing the tests again in my next appointment. I also want to know how I've been doing - I'm 99.9% gluten free and I keep wondering if that 0.1% (possible cross contamination) is going to show in the tests or not. I'm lucky that I don't get any symptoms if I've accidently consumed a crumb of gluten, but the downside is that I don't know when there's cross contamination and how much more careful I have to be!

Archived

This topic is now archived and is closed to further replies.

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      132,594
    • Most Online (within 30 mins)
      7,748

    Deborah Walker
    Newest Member
    Deborah Walker
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • amantelchi
      I'd like to clarify: Is the pain you describe in the area just below your chest constant, or does it only appear when you start moving?
    • Jmartes71
      Shingles is dormant and related to chicken pox when one has had in the past.Shingles comes out when stress is heightened.I had my 3rd Shingles in 2023.
    • knitty kitty
      Here's one more that shows Lysine also helps alleviate pain! Exploring the Analgesic Potential of L-Lysine: Molecular Mechanisms, Preclinical Evidence, and Implications for Pharmaceutical Pain Therapy https://pmc.ncbi.nlm.nih.gov/articles/PMC12114920/
    • Flash1970
      Thank you for the links to the articles.  Interesting reading. I'll be telling my brother in law because he has a lot of pain
    • Scott Adams
      Oats naturally contain a protein called avenin, which is similar to the gluten proteins found in wheat, barley, and rye. While avenin is generally considered safe for most people with celiac disease, some individuals, around 5-10% of celiacs, may also have sensitivity to avenin, leading to symptoms similar to gluten exposure. You may fall into this category, and eliminating them is the best way to figure this out. Some people substitute gluten-free quinoa flakes for oats if they want a hot cereal substitute. If you are interested in summaries of scientific publications on the topic of oats and celiac disease, we have an entire category dedicated to it which is here: https://www.celiac.com/celiac-disease/oats-and-celiac-disease-are-they-gluten-free/   
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.