Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Pain Right Under Diaphragm


Chad Sines

Recommended Posts

Chad Sines Rising Star

It seems that people have pain all over the place. I have the same issues but when it is worst, I feel a semi-pain right under my diaphragm, over liver area (had GB removed many years ago) right where one might say a GB pain was coming from. That area is always sensitive to touch. Apparently I am finding gluten in foods I think are safe, grr. Do others experience discomfort/pain in this area as well? Do digestive enzymes help at all? I have heard say that the fat metabolism could be goofed because of no GB so I was wondering about the enzymes.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



quincy Contributor

That is where my pain first began last year before my scope. I thought it was my GB and want on a bread and pasta diet to quiet my GB down! little did I realize I went on an unintended gluten challenge! have you had a recent scope? Mine showed significant irritation at the base of esophagus where meets stomach, hiatal hernia causes the acids to come up into esophagus and can cause tenderness in that spot. this is all conjecture on my part.

I have also heard that some can have bile salts empty into intestines and cause considerable pain, especially if you have GB removed.

have you just been diagnosed w celiac? how long on gluten free diet? I found digestive enzymes very helpful. after i began to heal I stopped taking them but I have had recent problems and am thinking of restarting...

Chad Sines Rising Star

I had a GI suggest it years ago and then that was the end of it although she did some blood work (never heard back) that I am trying to get a hold of. At the time I did not know enough to pursue it more. I just assumed the issues were post-GB removal issues. I had all the symptoms for a year with the worse being nausea, vomiting, dizziness, anxiety, brain fog 24/7. After a year that comment of "you ever been tested for celiac" dawned on me, so I just gave gluten free a try since there are no meds for it. Within 2 days I was 90% better. I went from multiple daily barfing to maybe once a month and that seems to be from accidental goods. Before the change I was a gluten eating machine. Whenever my issues died down I just ate whatever was quick and easy not knowing it might be hurting me. It has been about 3 months now. I get glutened at times not realizing it and think I need to eliminate corn, milk, and soy as each seem to cause me issues.

I am really burnt out on the docs as after 10+ years none had any clue except that passing comment. I have read better "medical" advice on these forums. At some point I will talk to a new GI, but I am in no hurry and do not want to have to introduce gluten just to be scoped. I am considering the test people recommends. The change works for me and I am 100% gluten-free unless it is an honest accident. Whether gluten intolerant, wheat allergy or Celiac, I am treating as if Celiac and being extremely diligent as the reminders of the year past keep me on track.

MrMatchStick Newbie

These kind of pains are hard to pin point in my celiac experience. I had gone through a whole battery of probing and tests for years from doctors that never found an answer. For years I was having severe pain which I thought was coming from my heart and was eminating from that area. After I learned I had celiac disease I found out most of the pain was from gas buildup in my intenstins and stomach. The actual spot that was causing the pain was in my lower abdomen but I was feeling it in my heart/upper stomach area.

Now that I know when I have pain in my stomach area (which is rare because I follow the diet) I press on my intenstines and it somehow gives a little relief.

To sum it up....probably gas buildup due to the fact that your body is not properly digesting the food.

Igg postive Rookie

It seems that people have pain all over the place. I have the same issues but when it is worst, I feel a semi-pain right under my diaphragm, over liver area (had GB removed many years ago) right where one might say a GB pain was coming from. That area is always sensitive to touch. Apparently I am finding gluten in foods I think are safe, grr. Do others experience discomfort/pain in this area as well? Do digestive enzymes help at all? I have heard say that the fat metabolism could be goofed because of no GB so I was wondering about the enzymes.

I had my gallbladder removed a few years ago and that is were my pain was the worst before I went on GFD. It could be that area was more sensitive to the intestine bloating? I have been on the GFD over a month (just started the FODMAP diet for food intolerances) and the pain has eased off. How long have you been on the GFD?

  • 1 month later...
Chad Sines Rising Star

I just now saw your reply. I went gluten-free in about March with some challenges to it since I was not officially diagnosed. Each time about 1-2 days later and sometimes earlier I notice I am a dingbat. Sunday I had a small piece of cake and yesterday I ate at KFC (famous bowl). So blechy now.. Bad Chad. My discomfort is definitely over the liver area. I have a hiatal hernia a well.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Mmoc replied to Mmoc's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      Blood tests low iGA 4 years later digestive issues

    2. - Aretaeus Cappadocia replied to Clear2me's topic in Gluten-Free Foods, Products, Shopping & Medications
      6

      Gluten free nuts

    3. - trents replied to Larzipan's topic in Related Issues & Disorders
      42

      Has anyone had terrible TMJ/ Jaw Pain from undiagnosed Celiac?

    4. - Scott Adams replied to Larzipan's topic in Related Issues & Disorders
      42

      Has anyone had terrible TMJ/ Jaw Pain from undiagnosed Celiac?

    5. - Wheatwacked commented on Scott Adams's article in Latest Research
      6

      Study Estimates the Costs of Delayed Celiac Disease Diagnosis (+Video)


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,387
    • Most Online (within 30 mins)
      7,748

    LizzieE
    Newest Member
    LizzieE
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Who's Online (See full list)

    • There are no registered users currently online
  • Upcoming Events

  • Posts

    • Mmoc
      Thank you kindly for your response. I have since gotten the other type of bloods done and am awaiting results. 
    • Aretaeus Cappadocia
      I wanted to respond to your post as much for other people who read this later on (I'm not trying to contradict your experience or decisions) > Kirkland Signature Super Extra-Large Peanuts, 2.5 lbs, are labeled "gluten free" in the Calif Costcos I've been in. If they are selling non-gluten-free in your store, I suggest talking to customer service to see if they can get you the gluten-free version (they are tasty) > This past week I bought "Sliced Raw Almonds, Baking Nuts, 5 lbs Item 1495072 Best if used by Jun-10-26 W-261-6-L1A 12:47" at Costco. The package has the standard warning that it was made on machinery that <may> have processed wheat. Based on that alone, I would not eat these. However, I contacted customer service and asked them "are Costco's Sliced Almonds gluten free?" Within a day I got this response:  "This is [xyz] with the Costco Member Service Resolutions Team. I am happy to let you know we got a reply back from our Kirkland Signature team. Here is their response:  This item does not have a risk of cross contamination with gluten, barley or rye." Based on this, I will eat them. Based on experience, I believe they will be fine. Sometimes, for other products, the answer has been "they really do have cross-contamination risk" (eg, Kirkland Signature Dry Roasted Macadamia Nuts, Salted, 1.5 lbs Item 1195303). When they give me that answer I return them for cash. You might reasonably ask, "Why would Costco use that label if they actually are safe?" I can't speak for Costco but I've worked in Corporate America and I've seen this kind of thing first hand and up close. (1) This kind of regulatory label represents risk/cost to the company. What if they are mistaken? In one direction, the cost is loss of maybe 1% of sales (if celiacs don't buy when they would have). In the other direction, the risk is reputational damage and open-ended litigation (bad reviews and celiacs suing them). Expect them to play it safe. (2) There is a team tasked with getting each product out to market quickly and cheaply, and there is also a committee tasked with reviewing the packaging before it is released. If the team chooses the simplest, safest, pre-approved label, this becomes a quick check box. On the other hand, if they choose something else, it has to be carefully scrutinized through a long process. It's more efficient for the team to say there <could> be risk. (3) There is probably some plug and play in production. Some lots of the very same product could be made in a safe facility while others are made in an unsafe facility. Uniform packaging (saying there is risk) for all packages regardless of gluten risk is easier, cheaper, and safer (for Costco). Everything I wrote here is about my Costco experience, but the principles will be true at other vendors, particularly if they have extensive quality control infrastructure. The first hurdle of gluten-free diet is to remove/replace all the labeled gluten ingredients. The second, more difficult hurdle is to remove/replace all the hidden gluten. Each of us have to assess gray zones and make judgement calls knowing there is a penalty for being wrong. One penalty would be getting glutened but the other penalty could be eating an unnecessarily boring or malnourishing diet.
    • trents
      Thanks for the thoughtful reply and links, Wheatwacked. Definitely some food for thought. However, I would point out that your linked articles refer to gliadin in human breast milk, not cow's milk. And although it might seem reasonable to conclude it would work the same way in cows, that is not necessarily the case. Studies seem to indicate otherwise. Studies also indicate the amount of gliadin in human breast milk is miniscule and unlikely to cause reactions:  https://www.glutenfreewatchdog.org/news/gluten-peptides-in-human-breast-milk-implications-for-cows-milk/ I would also point out that Dr. Peter Osborne's doctorate is in chiropractic medicine, though he also has studied and, I believe, holds some sort of certifications in nutritional science. To put it plainly, he is considered by many qualified medical and nutritional professionals to be on the fringe of quackery. But he has a dedicated and rabid following, nonetheless.
    • Scott Adams
      I'd be very cautious about accepting these claims without robust evidence. The hypothesis requires a chain of biologically unlikely events: Gluten/gliadin survives the cow's rumen and entire digestive system intact. It is then absorbed whole into the cow's bloodstream. It bypasses the cow's immune system and liver. It is then secreted, still intact and immunogenic, into the milk. The cow's digestive system is designed to break down proteins, not transfer them whole into milk. This is not a recognized pathway in veterinary science. The provided backup shifts from cow's milk to human breastmilk, which is a classic bait-and-switch. While the transfer of food proteins in human breastmilk is a valid area of study, it doesn't validate the initial claim about commercial dairy. The use of a Dr. Osborne video is a major red flag. His entire platform is based on the idea that all grains are toxic, a view that far exceeds the established science on Celiac Disease and non-celiac gluten sensitivity. Extraordinary claims require extraordinary evidence, and a YouTube video from a known ideological source is not that evidence."  
    • Wheatwacked
      Some backup to my statement about gluten and milk. Some background.  When my son was born in 1976 he was colicky from the beginning.  When he transitioned to formula it got really bad.  That's when we found the only pediactric gastroenterologist (in a population of 6 million that dealt with Celiac Disease (and he only had 14 patients with celiac disease), who dianosed by biopsy and started him on Nutramegen.  Recovery was quick. The portion of gluten that passes through to breastmilk is called gliadin. It is the component of gluten that causes celiac disease or gluten intolerance. What are the Effects of Gluten in Breastmilk? Gliaden, a component of gluten which is typically responsible for the intestinal reaction of gluten, DOES pass through breast milk.  This is because gliaden (as one of many food proteins) passes through the lining of your small intestine into your blood. Can gluten transmit through breast milk?  
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.