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Only An Endoscopy With Bi-opsy, No Bloodwork

Suezboss

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Suezboss Apprentice
Suezboss
Posted

My Dr. only did an Endoscopy, and did a bi-opsy, he never did bloodwork..

is that enough to rule that it DEFINATELY is Celiac Disease?

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KaitiUSA Enthusiast
KaitiUSA
Posted

if it was negative then no because a biopsy can miss damage. There may be sporadic or no damage yet. It can rule in celiac but it can't rule it out.

If it was positive then you HAVE celiac. Doesn't matter about blood work

Jnkmnky Collaborator
Jnkmnky
Posted

Are you really freaked out by the dx? It's ok. It won't be that bad once you find the foods you can eat. Outback Steakhouse has a gluten free menu!! We've eaten out there dozens of times. You can download it, or just go to the restaurant and ask for their gluten free menu.

Jnkmnky Collaborator
Jnkmnky
Posted

Are you really freaked out by the dx? It's ok. It won't be that bad once you find the foods you can eat. Outback Steakhouse has a gluten free menu!! We've eaten out there dozens of times. You can download it, or just go to the restaurant and ask for their gluten free menu.

Suezboss Apprentice
Suezboss
Posted
  • Author
Are you really freaked out by the dx?  It's ok.  It won't be that bad once you find the foods you can eat.  Outback Steakhouse has a gluten free menu!!  We've eaten out there dozens of times.  You can download it, or just go to the restaurant and ask for their gluten free menu.

<{POST_SNAPBACK}>

Thanks guys!

yes, i'm a little freaked out... I think that i'm under a lot of stress this year (which is what I think brought the disease out).. my mom had celiac as a baby, but I NEVER did... so it was quite a shock when my dr. was trying to rule everyting out, and was mearly expecting to come up with "IBS" diagnosis, and came back and said "we found someing we didn't think we would find... Swelling in the intestines"... i was SHOCKED...

an dit's a major lifestyle adjustment 2 weeks before my wedding.... I have TOO much on my mind right now... and NOW trying to go to Trader Joes and stock up on foods that I CAN eat... ahhhhhhhhhhhhhhhh

but my fiancee is being REALLY supportive, and he is even willing to eat the Brown rice pasta with me!! (he is from a huge italian family, and I was more nervous about HIS habbits having to change... but he's OK with it!)

Thanks for all the help and support.

KaitiUSA Enthusiast
KaitiUSA
Posted

Try Tinkyada pasta....tastes really normal...none of my family knew a difference before we told them

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    • knitty kitty
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By knitty kitty · Posted

      @Jane02, I hear you about the kale and collard greens.  I don't do dairy and must eat green leafies, too, to get sufficient calcium.  I must be very careful because some calcium supplements are made from ground up crustacean shells.  When I was deficient in Vitamin D, I took high doses of Vitamin D to correct the deficiency quickly.  This is safe and nontoxic.  Vitamin D level should be above 70 nmol/L.  Lifeguards and indigenous Pacific Islanders typically have levels between 80-100 nmol/L.   Levels lower than this are based on amount needed to prevent disease like rickets and osteomalacia. We need more thiamine when we're physically ill, emotionally and mentally stressed, and if we exercise like an athlete or laborer.  We need more thiamine if we eat a diet high in simple carbohydrates.  For every 500 kcal of carbohydrates, we need 500-1000 mg more of thiamine to process the carbs into energy.  If there's insufficient thiamine the carbs get stored as fat.  Again, recommended levels set for thiamine are based on minimum amounts needed to prevent disease.  This is often not adequate for optimum health, nor sufficient for people with absorption problems such as Celiac disease.  Gluten free processed foods are not enriched with vitamins like their gluten containing counterparts.  Adding a B Complex and additional thiamine improves health for Celiacs.  Thiamine is safe and nontoxic even in high doses.  Thiamine helps the mitochondria in cells to function.  Thiamine interacts with each of the other B vitamins.  They are all water soluble and easily excreted if not needed. Interesting Reading: Clinical trial: B vitamins improve health in patients with coeliac disease living on a gluten-free diet https://pubmed.ncbi.nlm.nih.gov/19154566/ Safety and effectiveness of vitamin D mega-dose: A systematic review https://pubmed.ncbi.nlm.nih.gov/34857184/ High dose dietary vitamin D allocates surplus calories to muscle and growth instead of fat via modulation of myostatin and leptin signaling https://pubmed.ncbi.nlm.nih.gov/38766160/ Safety of High-Dose Vitamin D Supplementation: Secondary Analysis of a Randomized Controlled Trial https://pubmed.ncbi.nlm.nih.gov/31746327/ Vitamins and Celiac Disease: Beyond Vitamin D https://pmc.ncbi.nlm.nih.gov/articles/PMC11857425/ Investigating the therapeutic potential of tryptophan and vitamin A in modulating immune responses in celiac disease: an experimental study https://pubmed.ncbi.nlm.nih.gov/40178602/ Investigating the Impact of Vitamin A and Amino Acids on Immune Responses in Celiac Disease Patients https://pmc.ncbi.nlm.nih.gov/articles/PMC10814138/
    • Jane02
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By Jane02 · Posted

      Thank you so much @knitty kitty for this insightful information! I would have never considered fractionated coconut oil to be a potential source of GI upset. I will consider all the info you shared. Very interesting about the Thiamine deficiency.  I've tracked daily averages of my intake in a nutrition software. The only nutrient I can't consistently meet from my diet is vitamin D. Calcium is a hit and miss as I rely on vegetables, dark leafy greens as a major source, for my calcium intake. I'm able to meet it when I either eat or juice a bundle of kale or collard greens daily haha. My thiamine intake is roughly 120% of my needs, although I do recognize that I may not be absorbing all of these nutrients consistently with intermittent unintentional exposures to gluten.  My vitamin A intake is roughly 900% (~6400 mcg/d) of my needs as I eat a lot of sweet potato, although since it's plant-derived vitamin A (beta-carotene) apparently it's not likely to cause toxicity.  Thanks again! 
    • knitty kitty
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By knitty kitty · Posted

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    • Scott Adams
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By Scott Adams · Posted

      I do not know this, but since they are labelled gluten-free, and are not really a product that could easily be contaminated when making them (there would be not flour in the air of such a facility, for example), I don't really see contamination as something to be concerned about for this type of product. 
    • trents
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By trents · Posted

      Contact them.
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