Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Still Bed-Wetting At 8 Yrs Old


Mizzo

Recommended Posts

Mizzo Enthusiast

Is ANyone else having bed-wetting issue's?

My DD will be 8 in 4 wks. She had lots of day-accidents before diagnosis, those have stopped completely except for when she gets glutened. She has not been dry for 2 nights in a row ever.

We are getting her up at 10:30 at night to use the bathroom , she get's nothing to drink after dinner and she still wets. She is in XL underjams and is now feeling the pressure of "Sleepovers".

We just missed a Girl Scout opportunity and she was devastated. I hesitate to call the Dr's, Last time this discussion was had our Pedi said "wait it out another year and see what happens", our GI wanted to send us to a specialty clinic.

Is this common for Celiac's? Any advice?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



kareng Grand Master

We have had some of this in our extended family. Summer is a good time to work on it. Look on the internet & there are websites that talk about it.

What helped for some kids was some "bladder enlargeing & muscle training". When you feel the need to pee, hold it another 10 -30 minutes. When you pee, stop & start. Sometimes a month or 2 of this will really help.

hockeymomofceliacchild Rookie

Is ANyone else having bed-wetting issue's?

My DD will be 8 in 4 wks. She had lots of day-accidents before diagnosis, those have stopped completely except for when she gets glutened. She has not been dry for 2 nights in a row ever.

We are getting her up at 10:30 at night to use the bathroom , she get's nothing to drink after dinner and she still wets. She is in XL underjams and is now feeling the pressure of "Sleepovers".

We just missed a Girl Scout opportunity and she was devastated. I hesitate to call the Dr's, Last time this discussion was had our Pedi said "wait it out another year and see what happens", our GI wanted to send us to a specialty clinic.

Is this common for Celiac's? Any advice?

Im not sure if this is assosiated with celiac but I can certainly sympathize with your daughter, I was a bedwetter till...well lets just say I had my period and STILL wet the bed. Don't let them tell you to wait another year it is really hard on a little girl. Im my case I was always told I was lazy, too deep a sleeper, drinking too much before bed etc..

when they finally took it seriously and I was mortified by it completely the doctor actually examined me and realized my bladder was the size of and infants!

He prescribed some medication that encourages the bladder to grow (sorry I don't know what it is called-but I have seen it advertised in magazines) and voila never had a problem since...

I'm not saying that is her problem but have them check the size of her bladder itself. I don't have celiac (or at least I had a negative blood result after my brother and son were diagnosed)

I was actually going to talk to my doctor tomorrow about my own little one who is having a hard time with potty training and I was wondering at what point can they tell if her bladder is or isn't developing. She goes to the potty and two minutes later can pee her pants...thinking she may have the same problem as mommy did.

Good luck with this and hopefully for your DD sake you find answers soon, if it makes her feel better let her know when I was that age there was no such thing as underjammies! lol I learned how to wash bedding and pj's by myself at a very young age. lol

WW340 Rookie

My son had this problem. He does have celiac, and it does run in families, but I do not know of any celiac relationship.

The pad and bell worked wonderfully for us. It was like a magic cure. You have to work with the program by getting up with the child and washing their face and completely waking them up, but after several times, they get it and start controlling their bladder.

Open Original Shared Link we got ours at sears, but this is the concept.

Roda Rising Star

My oldest had never been dry a day in his life at night since he was born till he was a little over 6 years old. I was potty trainging his little brother at the time and thought it would be a good chance for him too. I bought an enuresis alarm by Malem it worked great. In the booklet that came with it it said it could take up to several months to be sucessfull. My son was dry at night in two weeks! I hung onto it after in case we needed it for the youngest one. Once he was potty trained he was broke both night and day so I didn't need it anymore. I was able to sell the unit as the sensor is replaceable. I am glad to say my oldest is 10 now and has been dry at night since. Here are a few links to the alarms.

Open Original Shared Link

Open Original Shared Link

  • 2 weeks later...
SilverSlipper Contributor

My daughter was completely dry during nights and then started having tummy problems (which led to the Celiac diagnosis). She started wetting the bed during that time and I've always wondered if there was a Celiac connection. Our doctor prescribed desmopressin. Within a few weeks she was completely dry all night and hasn't had problems since. We started it after she turned 8 yrs old by the way. Best of luck.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,019
    • Most Online (within 30 mins)
      7,748

    Wilson1984
    Newest Member
    Wilson1984
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Who's Online (See full list)

  • Upcoming Events

  • Posts

    • sleuth
      He is not just a psychiatrist.  He is also a neuroscientist.  And yes, I have already read those studies.   I agree with benfotiamine.  This is short term while glutened/inflammation occurs.  As I had already mentioned, these symptoms no longer exist when this phase passes.  And yes, I know that celiac is a disease of malnutrition.  We are working with a naturopath.
    • knitty kitty
      Please do more research before you settle on nicotine. Dr. Paul New house is a psychiatrist.  His latest study involves the effect of nicotine patches on Late Life Depression which has reached no long term conclusions about the benefits.   Effects of open-label transdermal nicotine antidepressant augmentation on affective symptoms and executive function in late-life depression https://pubmed.ncbi.nlm.nih.gov/39009312/   I'm approaching the subject from the Microbiologist's point of view which shows nicotine blocks Thiamine B1 uptake and usage:   Chronic Nicotine Exposure In Vivo and In Vitro Inhibits Vitamin B1 (Thiamin) Uptake by Pancreatic Acinar Cells https://pubmed.ncbi.nlm.nih.gov/26633299/   While supplementation with thiamine in the form Benfotiamine can protect from damage done by  nicotine: Benfotiamine attenuates nicotine and uric acid-induced vascular endothelial dysfunction in the rat https://pubmed.ncbi.nlm.nih.gov/18951979/   I suggest you study the beneficial effects of Thiamine (Benfotiamine and TTFD) on the body and mental health done by Dr. Derrick Lonsdale and Dr. Chandler Marrs.  Dr. Lonsdale had studied thiamine over fifty years.   Hiding in Plain Sight: Modern Thiamine Deficiency https://pmc.ncbi.nlm.nih.gov/articles/PMC8533683/ I suggest you read their book Thiamine Deficiency Disease, Dysautonomia, and High Calorie Malnutrition.     Celiac Disease is a disease of malabsorption causing malnutrition.  Thiamine and benfotiamine: Focus on their therapeutic potential https://pmc.ncbi.nlm.nih.gov/articles/PMC10682628/
    • sleuth
      Thanks for your response.  Everything you mentioned he is and has been doing.  Tobacco is not the same as nicotine.  Nicotine, in the form of a patch, does not cause gastrointestinal irritation.  Smoking does. He is not smoking.  Please do your research before stating false information. Dr. Paul Newhouse has been doing research on nicotine the last 40 years at Vanderbilt University Medical Center.  
    • Jmartes71
      Im so frustrated and still getting the run around trying to reprove my celiac disease which my past primary ignored for 25 years.I understand that theres a ray of medical that doctors are limited too but not listening and telling the patient ( me) that im not as sensitive as I think and NOT celiac!Correction Mr white coat its not what I think but for cause and affect and past test that are not sticking in my medical records.I get sick violently with foods consumed, not eating the foods will show Im fabulous. After many blood draws and going through doctors I have the HLA- DQ2 positive which I read in a study that Iran conducted that the severity in celiac is in that gene.Im glutenfree and dealing with related issues which core issue of celiac isn't addressed. My skin, right eye, left leg diagestive issues affected. I have high blood pressure because im in pain.Im waisting my time on trying to reprove that Im celiac which is not a disease I want, but unfortunately have.It  has taken over my life personally and professionally. How do I stop getting medically gaslight and get the help needed to bounce back if I ever do bounce back to normal? I thought I was in good care with " celiac specialist " but in her eyes Im good.Im NOT.Sibo positive, IBS, Chronic Fatigue just to name a few and its all related to what I like to call a ghost disease ( celiac) since doctors don't seem to take it seriously. 
    • trents
      @Martha Mitchell, your reaction to the lens implant with gluten sounds like it could be an allergic reaction rather than a celiac reaction. It is possible for a celiac to be also allergic to gluten as it is a protein component in wheat, barley and rye.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.