Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Prilosec And Other Acid Inhibotors


prisjo

Recommended Posts

prisjo Newbie

I have celiac desease plus acid reflux. Recently I started experiencing symptoms of viatimin deficieny because I was taking a prescription of 40 mg prilosec prescribed by my dr. Has anyone experience this and if so what did you do. Also I would like to know the best brand of vitamins to take that are gluten free. If this has already been discussed just pooint me to the post as this is the first time I have posted anything on this site. Thanks

Prisjo


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Syl Rookie

Sorry to hear about the vitamin issues, in the same boat myself. Finding the root cause of the acid reflux and not just covering up the symptoms with medication is the most important thing you can do. Unfortunately the majority of conventional doctors will send you away with PPI's no matter what symptoms you're having so you need to be assertive and attempt to find out WHAT is causing the acid reflux so you can determine the right approach. As you've experienced yourself these drugs taken over the long haul will only add to your problems (unless you have an ulcer, which they can then help the healing process by stopping the acid.) There are many changes you can make like eating smaller meals, avoiding acidic foods like tomatoes, coffee, etc, and you could try taking a tablespoon of Braggs Apple Cider Vinegar diluted in water with every meal. This helps increase production of acid in the stomach which is what you want so that food is properly digested. The action of PPI's kills the stomach acid therefore leading to a low production, and the problems eventually snowball :(

As far as a good gluten free multi, I'd recommend Country Life Liquid Multi-vitamin. It's the one I was recommended when I first came on here 9 months ago and it was a huge help in regaining my energy and helping the healing process. It's very complete and if purchased online it's about 15-20 dollars which is good considering you'll get a month or so out of it.

cap6 Enthusiast

I have been on 2 Prilosec a day for over a year & half. Knowing how bad they can be for you over the long haul I have tried to wean off but every time the acid has become so much worse, feels like pure acid pouring down my throat. Three weeks ago I started to take pure liquid Aloe, 2 oz two x's a day and have weaned down to just one Prilosec a day. So far.... feeling good and no acid! Almost afraid to cheer too loudly but it may be working and I would rather be doing something natural. Figured i would give it a month before starting to wean off of the 1 Prilosec a day. Maybe Aloe would help you. The health food store suggested it to me.

prisjo Newbie

I have celiac desease plus acid reflux. Recently I started experiencing symptoms of viatimin deficieny because I was taking a prescription of 40 mg prilosec prescribed by my dr. Has anyone experience this and if so what did you do. Also I would like to know the best brand of vitamins to take that are gluten free. If this has already been discussed just pooint me to the post as this is the first time I have posted anything on this site. Thanks

Prisjo

Thanks Syl

I get alot of info about Celiac, but generally there are no specifics as to what really works. My doctor took a blood sample to see if I have B-12 deficientcy, but also schudled me an appointment with a neuro guy. I would have rather found out about the B-12 before going to another Dr who may or may not know about Celiac. Ah such is life.

prisjo Newbie

I have been on 2 Prilosec a day for over a year & half. Knowing how bad they can be for you over the long haul I have tried to wean off but every time the acid has become so much worse, feels like pure acid pouring down my throat. Three weeks ago I started to take pure liquid Aloe, 2 oz two x's a day and have weaned down to just one Prilosec a day. So far.... feeling good and no acid! Almost afraid to cheer too loudly but it may be working and I would rather be doing something natural. Figured i would give it a month before starting to wean off of the 1 Prilosec a day. Maybe Aloe would help you. The health food store suggested it to me.

Well Cap6 I have just invested in a supplement drink that is supposed to be loaded with good things for Celiacs, but it looks and tastes like sludge and is a funky green color. lol So I guess aloe is probably not something I would add right now but thanks for the input. P

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,265
    • Most Online (within 30 mins)
      7,748

    V Arnold
    Newest Member
    V Arnold
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • RMJ
      It is more likely code for “we think there really was a good response to the treatment, but it was small or in a small percent of subjects so it would take a large clinical trial to try to prove it.”
    • Dana0207
      Thank you so much for your replies. Luckily the rash went away when I completely swore off gluten. It took several months but I have not had a flare in months. So a biopsy is no longer possible. The itch was terrible and apart from bleaching my skin the steroid lotions and potions did nothing. The Gliadin is for accidents and shall be a part of my travel kit from now on. This past exposure has made a me a little leery about eating anything that was not cooked in my kitchen or a dedicated gluten-free restaurant. As much as I used to love baked goods, I am cured and have become quite the gluten free baker to the point that friends and family forget that my cakes/cookies/and bread are not "real". I guess I will have to wait for the new blood test to come out to get confirmation but I have a suspicion that the rash was dermatitis herpetiformis.
    • Jmartes71
      Hello, I just wanted to share with the frustration of skin issues and seeing dermatologist and medications not working for years, I did my own healing experiment. As of last week I have been taking a drop internally under the tongue of Vetiver and putting on topically on sores Yellow/Pom.I am seeing a extreme difference at a rapid time.Im also noticing my nails a little harder. Ive always been into natural properties because I feel its safer for the body.I know short time, but really seeing a difference. I also feel the the trapped gases that causes bloating helps break down as well.Curious if any body else can benefit from and has tried. Products is made by Doterra by Dr Hill
    • Scott Adams
      We have a category of articles on this topic if you really want to dive into it: https://www.celiac.com/celiac-disease/miscellaneous-information-on-celiac-disease/gluten-free-diet-celiac-disease-amp-codex-alimentarius-wheat-starch/
    • Scott Adams
      I agree with @trents, and the rash you described, especially its location and resistance to steroids, sounds highly characteristic of dermatitis herpetiformis, which is the skin manifestation of celiac disease. The severe and prolonged reaction you're describing five days after a small exposure is, while extreme, not unheard of for those with a high sensitivity; the systemic inflammatory response can absolutely last for several days or even weeks, explaining why you still don't feel right. Your plan to avoid a formal gluten challenge is completely understandable given the severity of your reactions, and many choose the same path for their well-being. While experiences with GliadinX (they are a sponsor here) are mixed, some people do report a reduction in the severity of their symptoms when taken with accidental gluten, though it is crucial to remember it is not a cure or a license to eat gluten and its effectiveness can vary from person to person. For now, the absolute best advice is to continue being hyper-vigilant about cross-contamination—buffets are notoriously high-risk, even with good intentions. Connecting with a gastroenterologist and a dermatologist who specialize in celiac disease is essential for navigating diagnosis and management moving forward. Wishing you a swift recovery from this last exposure. If you have DH you will likely also want to avoid iodine, which is common in seafoods and dairy products, as it can exacerbate symptoms in some people. This article may also be helpful as it offers various ways to relieve the itch:  
×
×
  • Create New...