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Celiac Organizations


Guest kmmolina

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Guest kmmolina

I have noticed that there are several different celiac disease organizations. Many of them have an annual fee. I was wondering if any of you have joined them and which ones are worth it? Also, I see that there are several magazines that you can get a subscription for. Any opinions about these?


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There are a number of publications... there's the newsletter that Scott (the man who runs this site) makes: Scott Free. I've never read that one so I can't recommend it or not.

There's another magazine called Living Without--nice pictures, recipes, articles, etc. I get this one. The only downside is that it's not entirely on the gluten-free lifestyle, but also on other allergies and intolerances.

Then I think there's one called Gluten Free Living--can't recommend it either cause I've never read it.

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There are a bunch of small celiac groups like the Celiac Awareness something... the two big ones are the CSA (Celiac Sprue Association) and GIG (Gluten Intolerance Group). I like GIG a lot more, mainly because of their stance on a number of issues (hah, this gets to be like political parties).

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      thank you RMJ! That is very helpful advice. Good to know we aren’t crazy if we don’t do the endoscopy. We are going to try the gluten free and see how symptoms and levels improve.    thank you Wheatwacked (love the username lol) that is also reassuring. Thankfully she has an amazing and experienced pediatrician. And yesss I forgot to mention the poop! She has the weirdest poop issues.    How long did it take y'all to start seeing improvement in symptoms? 
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