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Bacteria Breath Test?


redheadsmom

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redheadsmom Rookie

I got a call from my the nurse informing me that my blood work was negative for Celiac, but my Vitamin D was pretty low and I had some inflammation. I did get the okay from the doctor to go ahead with a Biopsy/Endoscopy and even scheduled it for next month but after hearing back from my insurance company my deductible of 2k would apply. So that's not going to happen, we cannot afford that. However I do have to go in in a few weeks to have a bacteria breath test done to check for bacteria in the small intestine and was told to remain on my normal diet until then. Does anyone have an experience with this test and is it possible all of my symptoms could be caused from this bacteria? In addition to "IBS" type issues such as bloating, gas, the big D, I have severe GERD, psoriasis, kidney stones, UTI's, yeast infestions, panic attacks, fatigue, foggy brain, mood swings, and the list goes on & on.

Jessica


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jackay Enthusiast

I got a call from my the nurse informing me that my blood work was negative for Celiac, but my Vitamin D was pretty low and I had some inflammation. I did get the okay from the doctor to go ahead with a Biopsy/Endoscopy and even scheduled it for next month but after hearing back from my insurance company my deductible of 2k would apply. So that's not going to happen, we cannot afford that. However I do have to go in in a few weeks to have a bacteria breath test done to check for bacteria in the small intestine and was told to remain on my normal diet until then. Does anyone have an experience with this test and is it possible all of my symptoms could be caused from this bacteria? In addition to "IBS" type issues such as bloating, gas, the big D, I have severe GERD, psoriasis, kidney stones, UTI's, yeast infestions, panic attacks, fatigue, foggy brain, mood swings, and the list goes on & on.

Jessica

I had the test done about six weeks ago and mine was negative. It is so hard to figure out what causes all our symptoms. Wish it would be so much easier.

redheadsmom Rookie

I had the test done about six weeks ago and mine was negative. It is so hard to figure out what causes all our symptoms. Wish it would be so much easier.

I'm sure mine will be negative too, the only tests that have ever been positive for me are pregnancy tests :D. I had a test for H pylori a few months ago and it was negative too. My plan remains the same, I will go gluten free no matter what the results as I firmly believe that's my issue.

Jessica

burdee Enthusiast

I got a call from my the nurse informing me that my blood work was negative for Celiac, but my Vitamin D was pretty low and I had some inflammation. I did get the okay from the doctor to go ahead with a Biopsy/Endoscopy and even scheduled it for next month but after hearing back from my insurance company my deductible of 2k would apply. So that's not going to happen, we cannot afford that. However I do have to go in in a few weeks to have a bacteria breath test done to check for bacteria in the small intestine and was told to remain on my normal diet until then. Does anyone have an experience with this test and is it possible all of my symptoms could be caused from this bacteria? In addition to "IBS" type issues such as bloating, gas, the big D, I have severe GERD, psoriasis, kidney stones, UTI's, yeast infestions, panic attacks, fatigue, foggy brain, mood swings, and the list goes on & on.

I've read that 'breath tests' are very inaccurate. I tested for, was diagnosed with and treated for 8 different gut bugs (over a 5 year period). My doc used stool tests (esp. a microbial profile which ID's the DNA of the bug) to diagnose my 5 different bacteria, 2 parasites and candida. Stool tests are very accurate for diagnosing gut infections from bacteria, parasites and yeasts.

Despite eliminating gluten and 6 other diagnosed (by blood test) allergens, I still had gut symptoms until I treated those bugs. BTW I kept getting gut bugs, because my stomach acid was deficient. So my stomach acid didn't kill those food born bacteria (and parasites) that most people's stomachs kill before the bugs reach their intestines. I also had other immunity problems caused by low white blood cells (neutropenia), hypothyroidism and low Vitamin D. After resolving my problems with stomach acid, neutropenia, hypothyroidism and vitamin D levels, I no longer get 'gut bugs' or respiratory infections (which were frequent before I improved my white blood cell level).

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      It is just so sad that health care in the United States has come to this.  Health insurance should be available to everyone, not just the healthy or the rich.  My heart goes out to you.  I would not hesitate to have the test and pay for it myself.  My big concern would be how you could keep the results truly private.  I am sure that ultimately, you could not.  A.I. is getting more and more pervasive, and all data is available somewhere.  I don't know if you could give a fake name, or pay for your test with cash.  I certainly would not disclose any positive results on a private insurance application.  As I understand it, for an official diagnosis, an MD needs to review your labs and make the call.  If you end up in the ER, or some other situation, just request a gluten free diet, and say it is because you feel better when you don't eat gluten.      Hang in there, though.  Medicare is not that far away for you, and it will remove a lot of stress from your health care concerns.  You will even be able to "come out of the closet" about being Celiac!
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      Yes, I've posted a few times about two companies: Request a Test and Ulta Labs. Also, pretty much we can all request any test we want (with the possible exception of the N protein Covid test and I'm sure a couple of others) with Lab Corp (or Pixel by Lab Corp) and Quest. I much prefer Lab Corp for their professionalism, ease of service and having it together administratively, at least in DC. And just so you know, Request a Test uses Lab Corp and Quest anyway, while Ulta Labs uses only Quest. Ulta Labs is cheaper than Request a Test, but I am tired of dealing with Quest, so I don't use them so much.
    • Scott Adams
      PS - I think you meant this site, but I don't believe it has been updated in years: http://glutenfreedrugs.com/ so it is best to use: You can search this site for prescriptions medications, but will need to know the manufacturer/maker if there is more than one, especially if you use a generic version of the medication: To see the ingredients you will need to click on the correct version of the medication and maker in the results, then scroll down to "Ingredients and Appearance" and click it, and then look at "Inactive Ingredients," as any gluten ingredients would likely appear there, rather than in the Active Ingredients area. https://dailymed.nlm.nih.gov/dailymed/   
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