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Celiac Testing And Insurance

mybellemichelle

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mybellemichelle Newbie
mybellemichelle
Posted

I'm new to this celiac and gluten free stuff. Last week, a nurse practitioner suggested that I could have celiac and that we should check into testing. I have United Healthcare insurance (through my dad). Does anyone have United or know if they cover celiac testing; I read on a few threads here that celiac is an automatic coverage denial with United (which is totally bogus), so I don't know where they would stand on testing.

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sa1937 Community Regular
sa1937
Posted

I'm new to this celiac and gluten free stuff. Last week, a nurse practitioner suggested that I could have celiac and that we should check into testing. I have United Healthcare insurance (through my dad). Does anyone have United or know if they cover celiac testing; I read on a few threads here that celiac is an automatic coverage denial with United (which is totally bogus), so I don't know where they would stand on testing.

My daughter has United Healthcare through my son-in-law's job and they did cover her celiac panel in Aug. 2010. How much I don't know as she obviously had to cover the co-pay. I'd definitely check to make sure the plan your dad has would cover that as I really don't know how group insurance works...coverage might vary from employer to employer. She did not go on to get the endoscopy/biopsy but went gluten-free after her testing knowing that I was already diagnosed.

kareng Grand Master
kareng
Posted

I have United & they paid for the blood work and the endo & colonscopy. I had to pay my deductable/co-pay. This differs by your actual coverage. You have to go to the approved docs and use the approved lab. The doc office has to give them the right codes (reasons for the tests). They also paid for my boys to have the blood work based on family history of a genetic disease.

I think the blood work (we did not do genetic - that they may not pay for) was less than $300 per person. I'll see if I kept that in folder and tell you later if I have it.

kareng Grand Master
kareng
Posted

OK...cost..

One set was $190 & one $335. The first was $335 & he ran a "celiac panel" plus the ones I gave him from The Celiac Center at U of Chicago. The second, cheaper one, had a lot less extra bill padding test. He just ordered the ones by name from the Celiac center. I think the labs run alot of nonsense to make a bigger charge. The ones for my kids, he wrote out the ones he wanted & they only did them (3 or 4). Couldn't find those old bills

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    • trents
      Small Bowel Resection 12 inches

      By trents · Posted

      Losing 12" of your small bowel is going to present challenges for you in nutritional uptake because you are losing a significant amount of nutritional absorption surface area. You will need to focus on consuming foods that are nutritionally dense and also probably look at some good supplements. If indeed you are having issues with gluten you will need to educate yourself as to how gluten is hidden in the food supply. There's more to it than just avoiding the major sources of gluten like bread and pasta. It is hidden in so many things you would never expect to find it in like canned tomato soup and soy sauce just to name a few. It can be in pills and medications.  Also, your "yellow diarrhea, constipation and bloating" though these are classic signs of a gluten disorder, could also be related to the post surgical shorter length of your small bowel causing incomplete processing/digestion of food.
    • Ello
      Small Bowel Resection 12 inches

      By Ello · Posted

      Yes this information helps. I will continue to be pro active with this issues I am having. More testing to be done. Thank you so much for your response. 
    • trents
      Small Bowel Resection 12 inches

      By trents · Posted

      There are two gluten-related disorders that share many of the same symptoms but differ in nature from each other. One is known as celiac disease or "gluten intolerance". By nature, it is an autoimmune disorder, meaning the ingestion of gluten triggers the body to attack it's own tissues, specifically the lining of the small bowel. This attack causes inflammation and produces antibodies that can be detected in the blood by specific tests like the TTG-IGA test you had. Over time, if gluten is not withheld, this inflammation can cause severe damage to the lining of the small bowel and even result in nutrient deficiency related health issues since the small bowel lining is organ where all the nutrition found in our food is absorbed.  The other is NCGS (Non Celiac Gluten Sensitivity or just "gluten sensitivity") which we know less about and are unsure of the exact mechanism of action. It is not an autoimmune disorder and unlike celiac disease it does not damage the lining of the small bowel, though, like celiac disease, it can cause GI distress and it can also do other kinds of damage to the body. It is thought to be more common than celiac disease. Currently, we cannot test for NCGS. Celiac disease must first be ruled out to arrive at a diagnosis of NCGS. Both disorders require elimination of gluten from the diet.  Either of these disorders can find their onset at any stage of life. We know that celiac disease has a genetic component but the genes are inactive until awakened by some stress event. About 40% of the general population has the genetic potential to develop celiac disease but only about 1% develop active celiac disease. The incidence of NCGS is thought to be considerably higher. I hope this helps.
    • Ello
      Small Bowel Resection 12 inches

      By Ello · Posted

      I have always eaten gluten and never stopped until my recent episode. I started more wheat products as my Dr. requested for the Tissue Transglutaminase Iga Antibody. mye result Value <1.0 Value interpretation: <15.0 Antibody not detected > or =15.0 Antibody detected I do not understand any of it. After eating all that wheat product my body exploded with all sorts of symptoms. I stop gluten ASAP. I am still in the healing process. I started having issues after my surgery. 
    • trents
      Small Bowel Resection 12 inches

      By trents · Posted

      Welcome to the celic.com community @Ello! You say you had a blood test for celiac disease after eating gluten for 2 weeks. Were you gluten free before that? Had you ever been officially diagnosed with celiac disease previously? You say the result of the blood test was 1.5. Can you provide the name of the test and the reference range for negative vs. positive for the test? I ask because different labs used different reference ranges so scores without a reference range aren't very helpful.
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