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Eyesight Problems


MikeyG

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MikeyG Newbie

Hi,

Hope someone can answer this from personal experience. Last December my regular doc ran some blood tests because I was having bloating problems, the results said boderline celiac. She advised me to cut our the gluten and see how I felt. I did just that, eliminated all gluten from my diet, basically just ate meats and vegetable, didn't seem so bad. The bloating never really went away, but I stayed on the diet until last week. I went to a GI doc to see what he could do and he said he wanted to do an endoscopy, but I would have to go back to eating gluten for a few weeks for it to be accurate, so we made an appointment to have the endoscopy a month from now and I started eating gluten again.

About 4 days after I started, I began to have vision problems in one eye. Blurred vision, at any distance. Up until now, I have never had any vision problems and never needed glasses for any distance. I made an appointment with an opthomologist, he ran all the tests including sending me for an MRI, all good. He gave me some drops and said give it a week. I am doing just that, but now, my other eye is causing me problems, not as bad, but not normal. All of a sudden it comes to me, maybe the gluten I am eating now is causing this problem. Perhaps, now that I have been clean for several months, I am more susceptible to it than I used to be. It seems from reading posts of others, that they became more sensitive after stopping. Anyone run across something like this. I am thinking of stopping the gluten again and see what happens in a few days or so. Any ideas? Thanks.


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Nova Scotian Celiac Newbie

Hi MickeyG,

Others with long term experience with Celiac may have more to add but here is my take on it:

I'm only newly diagnosed, however, I had been experiencing the same vision problems. Before learning of my diagnosis I couldn't understand why my vision would constantly go blurry - night time, morning - depended on the day. I was concerned and saw my optometrist who assured me that my eye sight had not changed AT ALL.

Clearly I wasn't dreaming the vision problems. Fast forward to my first meeting with my nutritionist, post diagnosis and BINGO! She confirmed that as a symptom of malnurishment, the vision problems were due to my body's (villi) inability to absorb vitamin A. So my guess is that upon reintroducing gluten into your system, your body is having a difficult time absorbing vit A....

captaincrab55 Collaborator

Hi,

good. He gave me some drops and said give it a week. I am doing just that, but now, my other eye is causing me problems, not as bad, but not normal. All of a sudden it comes to me, maybe the gluten I am eating now is causing this problem. Perhaps, now that I have been clean for several months, I am more susceptible to it than I used to be. It seems from reading posts of others, that they became more sensitive after stopping. Anyone run across something like this. I am thinking of stopping the gluten again and see what happens in a few days or so. Any ideas? Thanks.

MikeyG, Have you had your blood sugar checked lately??? One may also have a gi issue with dairy, H PYLORI or both...

Good Luck

MikeyG Newbie

Hi MickeyG,

Others with long term experience with Celiac may have more to add but here is my take on it:

I'm only newly diagnosed, however, I had been experiencing the same vision problems. Before learning of my diagnosis I couldn't understand why my vision would constantly go blurry - night time, morning - depended on the day. I was concerned and saw my optometrist who assured me that my eye sight had not changed AT ALL.

Clearly I wasn't dreaming the vision problems. Fast forward to my first meeting with my nutritionist, post diagnosis and BINGO! She confirmed that as a symptom of malnurishment, the vision problems were due to my body's (villi) inability to absorb vitamin A. So my guess is that upon reintroducing gluten into your system, your body is having a difficult time absorbing vit A....

I really doubt this, vitamin A is stored in the body and I have been eating carrots every day as part of my vegetables, so not having them for a few days would not cause a deficiency, though long term it could be a possibility. Thanks for the reply.

MikeyG Newbie

MikeyG, Have you had your blood sugar checked lately??? One may also have a gi issue with dairy, H PYLORI or both...

Good Luck

Last blood test, my glucose was 80, same as it always is. We tested for pylori, but it was negative. Dont't really have much in the way of dairy, not recently anymore. Thank you for replying!

captaincrab55 Collaborator

Dont't really have much in the way of dairy, not recently anymore. Thank you for replying!

Dairy is in many processed foods....

MikeyG Newbie

Dairy is in many processed foods....

I haven't eaten processed foods since last year.


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cassP Contributor

i dont know... but i'll just share that eye problems seem to be common in Autoimmune Disease.. of course we know that MS, and Diabetes can affect the eyes. i dont know about Celiac, but i also have Hashimoto's Thyroiditis, and Grave's Hyperthyroid- BOTH can put pressure on the eyes- which i suffered a lot from before meds. GLUTEN also aggravates Hashi & Graves.

AND, one of my close friends just visited and he has Anklosing Spondylitis (sp?), an Autoimmune Arthritic Disease- anyways, his doc advised him to avoid gluten & dairy. and my friend said when he "eats bad" his eyes swell up, and there's pressure

so maybe there's a connection between Gluten, MANY Autoimmune Disease and the eyes- but please check with your doc- to cover everything

MikeyG Newbie

Thank you for providing this information. I have been checking several of the older posts on this forums and there have been other members that have made reference to visual problems due to gluten. It's funny I did not have it before stopping gluten and now that I add it in again, I have the problem. I am just going to stop the gluten again and see what happens, can't hurt.

cassP Contributor

Thank you for providing this information. I have been checking several of the older posts on this forums and there have been other members that have made reference to visual problems due to gluten. It's funny I did not have it before stopping gluten and now that I add it in again, I have the problem. I am just going to stop the gluten again and see what happens, can't hurt.

ya- many of us can relate to the stronger reactions you're talking about. i think the immune system becomes more vigilant when you take it out... someone smarter than me on here wrote about a certain type of cell that the immune system starts making when we go gluten free- so the reactions will be more amped up.

i honestly think without having the medical knowledge to explain it, that our immune systems have been beated down for so long that they dont work right. you know- like when you're an infant- and brand new to this world- when you have your first foods that you're not designed to eat- like wheat or dairy- you may projectile vomit, or get crazy sick (i had a tonsilectomy & innumerous ear infections).... then your immune system just kinda gets "dumbed down"... so when we go gluten free- our body gets more fine tuned again- and realizes much quicker when it sees an enemy.

that's how i see it

GFinDC Veteran

I got glutened not long aog and my vision got worse. It is getting back to normal now but it has been 6 weeks since the glutening. I was having a hard time focusing and reading the computer screen.

I noticed that in the past also, that gluten affected my vision. I got tri-focals a couple years ago and the doc told me I would need new ones in 6 months. But I am still wearing that first pair. Seems like my eyes are stable as long as I stay gluten-free.

NoodleUnit Apprentice

Mikey

I had problems focussing when I was really bad before I figured it all out. One of the things I had was a rapid vibration in my right eye. Are you getting any neuro issues? I.e. burning sensations behind the eye etc.

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    • catnapt
      so do you have celiac or not? 🤔 why are your vision issues undiagnosed? 😢 what does your ophthalmologist say?  do you have a serious vit A deficiency? what do you take for it? how long have you had celiac disease and how long did  it take to get a diagnosis?   if you are legally blind there are adaptive devices that will help you. I have vision difficulties as well but did not qualify (at least not yet)   do you have a vit A deficiency? why are you undiagnosed? what does your ophthalmologist say? I have a retinal specialist and he tells me my eye condition can not be fixed- until/unless it gets to the point of where surgery is safer since the surgery can leave me actually blind... so you want to wait til it gets really bad 🤪     I hope you find what works for you.    PS   the medication I started at the same time as the gluten challenge is obvious from the condition it's trying to treat. you can google it 😉 it is not an for any auto immune condition.   
    • knitty kitty
      @catnapt,  I apologize.  Obviously I've confused you with someone else.  I have vision problems due to undiagnosed Celiac complications.  Being legally blind, y'all look the same from here.   You still have not said which new medication you started taking.  Parathyroid disorders can affect antibody production.  Bone Loss Correlated with Parathyroid Hormone Levels in Adult Celiac Patients https://pubmed.ncbi.nlm.nih.gov/36619734/ Effect of vitamin B1 supplementation on bone turnover markers in adults: an exploratory single-arm pilot study https://pmc.ncbi.nlm.nih.gov/articles/PMC12075007/
    • catnapt
      during the gluten challenge I did not consume any wheat germ   the wheat germ is TOASTED - it's the only way it is sold now afiak doesn't matter I consume vast amounts of lectin containing foods PROPERLY prepared and have for well over a decade. They do not bother me in the least.    no anemia however the endo who ordered the celiac panel is the one who suggested the 2 week gluten challenge of eating at least 2 slices of bread per day or a serving of pasta- ALSO put me on a new drug at the same time (not a good idea)  I ate 4 slices because they were thin, or 2 English muffins, and just once some lasagna that someone else made since I stopped eating wheat pasta years ago. The English muffins caused some of the worst symptoms but that pc of lasagna almost killed me ( not literally but the pain was extreme) during those 12 days there were at least 3 times I considered going to Urgent Care.   This entire process was a waste of time TBH due to being on that new drug at the exact same time. it is impossible to tell if the drug I am taking for the possible renal calcium leak is working or not- given the dramatic response to the gluten challenge and resulting nausea (no vomiting) and eventually a loss of appetite and lower intake of foods so now I have a dangerously low potassium level   I don't have a simple case of celiac or no- I have an extremely complicated case with multiple variables I am seeing an endocrinologist for a problem with the calcium sensing glands - that system is very complicated and she has been unable to give me a firm diagnosis after many tests with confusing and often alarming results. She also appears to be inexperienced and unsure of herself. but I don't have the luxury of finding a new endo due to multiple issues of insurance, lack of drs in my area, money and transportation. so I'm stuck with her At least she hasn't given up    in any case I can assure you that lectins are not and never were the problem. I know they are a favorite villain in some circles to point to, but I have ZERO symptoms from my NORMAL diet which DOES NOT contain gluten. The longer I went without bread or foods with wheat like raisin bran cereal, the better I have felt. my body had been telling me for several years that wheat was the problem- or maybe specifically gluten, that remains to be seen- and stopping eating it was the best thing I could have done   I almost had unnecessary MAJOR SURGERY due to joint pain that I ONLY have if I am eating bread or related products I assumed it was the refined grains - never really suspected gluten but it does not matter I won't put that poison in my body ever again not that it is literally poison but it is def toxic to me        
    • knitty kitty
      @catnapt,  I'm sorry you're having such a rough time.   How much wheat germ and how much gluten were you eating? Lectins in beans can be broken down by pressure cooking them.  Do you pressure cook your beans?  Were you pressure cooking your wheat germ? What drugs are you taking?  Some immunosuppressive drugs affect IgA production.  Do you have anemia?
    • catnapt
      oops my gluten challenge was only 12 days It started Jan 21s and ended Feb 1st   worst 12 days of my life   Does not help that I also started on a thiazide-like drug for rule in/out renal calcium leak at the exact same time No clue if that could have been symptoms worse 🤔
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