Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Could Casein Be Making Me This Sick Still?


MissBonnie

Recommended Posts

MissBonnie Apprentice

i have been gluten free for 3 months and was getting better but the last 5 weeks ive been bed ridden with pain and nausea. ive even been to hospital and they cant find anything wrong. im lactose free but still drinking lactose free cows milk. could this make me that sick? im at wits end i need to get better :(


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



cyberprof Enthusiast

i have been gluten free for 3 months and was getting better but the last 5 weeks ive been bed ridden with pain and nausea. ive even been to hospital and they cant find anything wrong. im lactose free but still drinking lactose free cows milk. could this make me that sick? im at wits end i need to get better :(

You have nothing - absolutely nothing - to lose by giving it up for a month or so. Good luck! I hope you feel better soon.

GFinDC Veteran

You have nothing - absolutely nothing - to lose by giving it up for a month or so. Good luck! I hope you feel better soon.

Right, that is the simple and easy thing to do to find out if it is bothering her. make sure you read labels becasue casein and lactose are added to many processed foods you wouldn't expect it to be in. Also vitamin pills and medicines need to be checked.

MissBonnie Apprentice

so do i need to be as careful with it as the gluten? or is it more an intolerance than an allergy?

GFinDC Veteran

The answer depends on your body. If you are having anaphylactic like reactions, swelling throat, irritated eyes, etc then it is an allergic (IgE) reaction. That can be deadly and needs to be strictly avoided 100%. A food intolerance is a differnet response, and can cause damage over a period of time with continued exposure, but is not usually an immediate threat. However, if you are having an immune response in yuor digestive system, as in celiac, then you do wnat to avoid it 100% so the antibodies will go down. There is something called casein mediated enteropathy, where that happens and causes villi damage like celiac does.

More people have latcose intolerance than casein intolerance. Lactose intoelrance is not usually a problem other than discomfort and GI upset. I have casein intolerance and it affects me in various ways. If I have dairy (cheese especially which is mostly casein protein), I get some midl GI upset and symptoms. but if I have had a glutening or other GI irritation, I get "wired" and cant' sleep. I once was up for 3 days running after eating some cheese, and didn't even get tired. I finally got a few hours sleep on the 4th day, and more the next and then got back to normal after a week. So it can have different affects on different people. I did try some cheese a couple months ago to see what would happen. It only bothered me a little as far as sleep and some mild GI symptoms. I figure that is because my gut was pretty well healed. But I don't eat it because any symptoms are not really worth it to me.

MissBonnie Apprentice

wow thanks so much for that. i didnt know much about casein sensitivity but if it can cause glutening like symptoms then that could well be my problem! cutting out all cheese and other dairy products beyond lactose from now on.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - hjayne19 posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      0

      Celiac Screening

    2. - yellowstone posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      0

      Cold/flu or gluten poisoning?

    3. - Churro replied to Churro's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      17

      Celiac disease symptoms

    4. - Wheatwacked replied to Churro's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      17

      Celiac disease symptoms

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,069
    • Most Online (within 30 mins)
      7,748

    danichristine
    Newest Member
    danichristine
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • hjayne19
      Hi all,  Looking for some advice. I started having some symptoms this past summer like night sweats and waking at 4 am and felt quite achy in my joints. I was training heavily for cycling for a few weeks prior to the onset of these symptoms starting. I have had low Ferratin for about 4 years (started at 6) and usually sits around 24 give or take. I was doing some research and questioned either or not I might have celiac disease (since I didn’t have any gastric symptoms really). My family doctor ran blood screening for celiac. And my results came back: Tissue Transglutaminase Ab IgA HI 66.6 U/mL Immunoglobulin IgA 1.73 g/ My doctor then diagnosed me with celiac and I have now been gluten free for 3 months. In this time I no longer get night sweats my joint pain is gone and I’m still having trouble sleeping but could very much be from anxiety. I was since referred to an endoscopy clinic to get a colonoscopy and they said I should be getting a biopsy done to confirm celiac. In this case I have to return to eating gluten for 4-6 weeks before the procedure. Just wanted some advice on this. I seem to be getting different answers from my family physician and from the GI doctor for a diagnosis.    Thanks,  
    • yellowstone
      Cold/flu or gluten poisoning? Hello. I've had another similar episode. I find it very difficult to differentiate between the symptoms of a cold or flu and those caused by gluten poisoning. In fact, I don't know if my current worsening is due to having eaten something that disagreed with me or if the cold I have has caused my body, which is hypersensitive, to produce symptoms similar to those of gluten poisoning.        
    • Churro
      I'm no longer dealing with constipation. I got my liver test last month and it was in normal range. Two years ago I did have a vitamin D deficiency but I'm know taking vitamin D3 pills. Last month I got my vitamin D checked and it was in normal range. I don't believe I've had my choline checked. However, I do drink almond milk eat Greek yogurt on a daily basis. 
    • Wheatwacked
      Non-Celiac Gluten Sensitivity (NCGS) can be associated with low ferritin and iron deficiency. Once Celiac Disease (1% of the population affected) has been ruled out by tests the next step is to check for Non Celiac Gluten Sensitivity (10% of the population affected) by eliminating gluten for a trial period, then re-introduce Gluten Challange. Have you been supplementing Iron? How are your liver enzymes? Low levels of ferritin indicate iron deficiency, while  59% transferrin saturation indicates high iron levels.  Possibly indicating Fatty Liver Disease.  Choline is crucial for liver health, and deficiency is a known trigger for Non-Alcoholic Fatty Liver.  Some experts say that less than 10% eat the the Food and Nutrition Board established Adequate Intake that are based on the prevention of liver damage. Severe constipation and hemorrhoids may be linked to a bile or choline deficiency.  "Ninety-five percent of phospholipids (PLs) in bile is secreted as phosphatidylcholine or lecithin."  Fatty acid composition of phospholipids in bile in man   Deficiency of these bile salts causes the bile to get thick. Some people with Celiac Disease are misdiagnosed with Gall Bladder bile issues.  Removal of the gallbladder provides only temporary relief. Whether or not celiac disease or NCGS are your issues you need to look at your vitamin D blood level.   
    • Churro
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.