Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Could Casein Be Making Me This Sick Still?


MissBonnie

Recommended Posts

MissBonnie Apprentice

i have been gluten free for 3 months and was getting better but the last 5 weeks ive been bed ridden with pain and nausea. ive even been to hospital and they cant find anything wrong. im lactose free but still drinking lactose free cows milk. could this make me that sick? im at wits end i need to get better :(


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



cyberprof Enthusiast

i have been gluten free for 3 months and was getting better but the last 5 weeks ive been bed ridden with pain and nausea. ive even been to hospital and they cant find anything wrong. im lactose free but still drinking lactose free cows milk. could this make me that sick? im at wits end i need to get better :(

You have nothing - absolutely nothing - to lose by giving it up for a month or so. Good luck! I hope you feel better soon.

GFinDC Veteran

You have nothing - absolutely nothing - to lose by giving it up for a month or so. Good luck! I hope you feel better soon.

Right, that is the simple and easy thing to do to find out if it is bothering her. make sure you read labels becasue casein and lactose are added to many processed foods you wouldn't expect it to be in. Also vitamin pills and medicines need to be checked.

MissBonnie Apprentice

so do i need to be as careful with it as the gluten? or is it more an intolerance than an allergy?

GFinDC Veteran

The answer depends on your body. If you are having anaphylactic like reactions, swelling throat, irritated eyes, etc then it is an allergic (IgE) reaction. That can be deadly and needs to be strictly avoided 100%. A food intolerance is a differnet response, and can cause damage over a period of time with continued exposure, but is not usually an immediate threat. However, if you are having an immune response in yuor digestive system, as in celiac, then you do wnat to avoid it 100% so the antibodies will go down. There is something called casein mediated enteropathy, where that happens and causes villi damage like celiac does.

More people have latcose intolerance than casein intolerance. Lactose intoelrance is not usually a problem other than discomfort and GI upset. I have casein intolerance and it affects me in various ways. If I have dairy (cheese especially which is mostly casein protein), I get some midl GI upset and symptoms. but if I have had a glutening or other GI irritation, I get "wired" and cant' sleep. I once was up for 3 days running after eating some cheese, and didn't even get tired. I finally got a few hours sleep on the 4th day, and more the next and then got back to normal after a week. So it can have different affects on different people. I did try some cheese a couple months ago to see what would happen. It only bothered me a little as far as sleep and some mild GI symptoms. I figure that is because my gut was pretty well healed. But I don't eat it because any symptoms are not really worth it to me.

MissBonnie Apprentice

wow thanks so much for that. i didnt know much about casein sensitivity but if it can cause glutening like symptoms then that could well be my problem! cutting out all cheese and other dairy products beyond lactose from now on.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - trents replied to suek54's topic in Dermatitis Herpetiformis
      3

      Awaiting dermatitis herpetiformis confirmation following biopsy

    2. - suek54 replied to suek54's topic in Dermatitis Herpetiformis
      3

      Awaiting dermatitis herpetiformis confirmation following biopsy

    3. - trents replied to suek54's topic in Dermatitis Herpetiformis
      3

      Awaiting dermatitis herpetiformis confirmation following biopsy

    4. - suek54 posted a topic in Dermatitis Herpetiformis
      3

      Awaiting dermatitis herpetiformis confirmation following biopsy

    5. - xxnonamexx replied to xxnonamexx's topic in Gluten-Free Foods, Products, Shopping & Medications
      2

      Healthy Gluten Free Foods low sugar that you found?

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,247
    • Most Online (within 30 mins)
      7,748

    Noisette
    Newest Member
    Noisette
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • trents
      You might also consider a low iodine diet as iodine is know to exacerbate dermatitis herpetiformis. But be careful with that as well as there are health problems that can accrue from iodine deficiency.
    • suek54
      Hi, Yes, the rash has gone. I still get the itches but there is nothing to see now, apart from a lot of discoloured areas where the rash was worst. Occasionally I get a single lump come up, a bit like hives, but no bigger than a pea and it goes after 24hrs and a steroid cream application.  And yes, giving the gluten-free diet 110%. Very careful about any cross contamination.  This is my fifth autoimmune condition so well and truly on that bandwagon. 
    • trents
      Welcome to the the celiac.com community, @suek54! Is the Dapsone getting the rash under control? Are you practicing a gluten free diet yet? The only known cause for dermatitis herpetiformis is celiac disease.
    • suek54
      Hi Im new to this game, so bear with me.  May through to December last year totally miserable, covered literally head to toe in the worst rash ever, itching like I just cant explain. After seven different medics told me just to "keep putting the cream on, whatever it is will go in the end" finally one lovely doc diagnosed dermatitis herpetiformis. Biopsy 6 weeks ago and Dapsone, which I seem to be tolerating OK so far.  The NHS is in permanent backlog so no result yet but just wanted to say hello to anyone else with this maddening condition.
    • xxnonamexx
      I know gluten free proteins like eggs and yogurt but nuts especially trail mixes are tricky as they are hard to find certified gluten free trail mixes especially w/o added sugars. I agree subscription boxes are hit or miss I think I have found RXBar with simple ingredients no added sugars gluten-free might be a great protein bar.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.