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What To Eat...

strezzedout1979

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strezzedout1979 Newbie
strezzedout1979
Posted

Hello All!!! So I am hoping to get a little advise from peaople who a re going thru what I am... I have Celiac disease but also an egg allergy, and to top it all off with a beautiful Red ribbon My docs are adding a Casein allergy and a lactose allergy to the mix. As I see it I have just about nothing left to eat at this point. I took the Gluten allergy with a "what can ya do" attitude and while it Kills me to live so close to restaurants and fast food I dealt with it. I was actually almost not even realizing i was missing anything. But then the pains came much worse than the last time and way more intense... Always on the right side. They were originaly upper right quadrant pains but these started lower right and have now taken over my entire right side. I have had a colonoscopy,EGD, stomache emptying study, Enough Radiation to become a Super Hero, I go for a capsule Endoscopy on Monday and all the while I am in pain. When I was first diagnosed I had a TTg level of 124 which I was told with my gluten-free diet would return to normal.... it didn't still at 79. after 2 years of strict gluten-free diet.. I don't eat out I pack my own food for gatherings... I KNOW what I am eating. Just a little perterbed that with all my efforts to get better I seem to be getting worse everyday. Any thoughts from anyone?? I would definately appreciate anything!!

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Skylark Collaborator
Skylark
Posted

Hi there. That sounds awful.

First, are you eating gluten-free oats? Some celiacs react to them like wheat and you won't get well. Also, some folks find they can't get well eating a lot of gluten-free processed foods. There are still traces of gluten in them and it's too much for some people.

Have you tried an elimination diet? I couldn't figure out what was going on with my stomach and ate lamb, rice, and lettuce for two weeks. (My doctors never suspected celiac.) I drank only water once I weaned off caffeine. Lamb is supposedly one of the meats you're unlikely to be allergic to. Some people use turkey instead. At the end of two weeks all my GI problems were gone and I was able to add foods back and figure out what I was reacting to.

If you don't want to go that far, you could try removing soy and oddly enough, coffee.

strezzedout1979 Newbie
strezzedout1979
Posted
  • Author

I eliminated all processed foods I eat pretty much fruits and veggies rice and meat. I don't intake caffeine... was never much of a coffee or tea person... koolaides ok with me :) I am to the point I haven't been able to get off my couch the pain has gotten so bad. I just don't know how much Guinea piging I can go thru. the EGD was not so bad, the colonoscopy was bad the CT scans are just making me mad and now on monday I do the capsule endocopy. The pain is practically my entire right side at this point, hurts if I eat or if I don't I went on a complete water diet for 5 days... still didn't help. Just losing faith in docs at this point

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