Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Was Doing Well, Now Feeling Bad Again


cgd

Recommended Posts

cgd Newbie

I started the gluten-free diet a week and a half ago and did really well for a week. Now, my stomach is bloated after every meal, I have gas from hell, and I had a headache again today. What gives? I've been strict with the diet. Is it possible this isn't my problem? The first week went so well, but then things went downhill. Help!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



KaitiUSA Enthusiast

You will be lucky to see any improvement so fast. It takes time to heal. It took me 8 months to get to normal. I was getting alot better by the 3rd month though.

Just stick to it, it will be worth it but don't expect such a quick change. Everyone varies with times of when their symptoms go away. It depends on damage done, age, etc

lgranott Rookie

When I first started, there were so many times that I thought I was strictly gluten-free and I found out that I wasn't, over and over again. Things that I never would have thought of, like shampoo... Or ingredients that I didn't realize were gluten. There is also cross-contamination. Products that have no gluten listed, or dishes ordered in restaurants that appear to be gluten-free are sometimes contaminated without you even realizing it.

Aside from contamination, it does take a while to feel better. Often months until you are really doing well most of the time. There are setbacks and foods that are hard to digest, like raw veggies can still be hard for your unhealed body.

Do you know if you are sensitive to dairy? that is often the case.

Hmm... what else? You might want to keep a food log for a while to see what exactly you are eating, and log any reactions you may have. One of the problems is that a reaction might not be immediate, so you can't just look at what you just finished eating.

I am certainly no expert, as this is all fairly new to me too, but you came to the right place. There are so many wonderful helpful people in this comunity with a wealth of knowledge. Take some time to read some of the threads. A lot of questions will get answered.

Good luck!

Liatt

cgd Newbie

Thanks for the thoughts on this. I've tried to be strict, but you're right, the restaurant-ordered dishes might be cross-contaminated. And the raw veggies and such might be hard to digest. Time, as Kaiti pointed out, is also something to consider, and I shouldn't expect improvement so fast. It was just weird to be doing so well, then have this happen, not to mention disappointing.

I do have a hiatal hernia, and that might be rearing its head with the diet change, or maybe it would have decided to act up anyhow. Maybe I need to consider some digestive enzymes or something.

This place is great, and I've been reading a lot of the threads. So much great information!

KaitiUSA Enthusiast

Digestive Enzymes and Probiotics are great. L-Glutamine is great for intestinal healing too. All of these are not for everyone but they worked great for me.

You just can't expect to feel better so soon..just keep doing what you are doing and it will come.

Also, looking at shampoos/cosmetics and all that stuff is a good idea to do because you may be getting glutened that way

cgd Newbie

Thanks for giving me some perspective. I did change my lotion (St. Ives) because it contains wheat germ oil. I think the face makeup is OK (Clinique), but who knows. I don't use much lipstick, mainly just Carmex. I'll have to pick up some enzymes and L-glutamine.

KaitiUSA Enthusiast

Alot of Clinique is not gluten free. I had to throw my stuff out. I use Bare Escentuals because that whole line of makeup is gluten free.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



cgd Newbie
Alot of Clinique is not gluten free. I had to throw my stuff out. I use Bare Escentuals because that whole line of makeup is gluten free.

<{POST_SNAPBACK}>

Oops, I'd better change makeup brands then.

cgilsing Enthusiast

When I went gluten-free I felt better right afterwards too...but then relapsed off and on for a long time. They're right....it took me a long time to really get a strict gluten-free diet too. I remember going out to eat a week or so after I started trying to be gluten-free.. I thought it would be ok to eat the filling out of an egg roll as long as I didn't eat the outside breading.....I was sadly mistaken....sick within hours.... You will get there though! I just searched all over the house looking for this book that I have that lists all the hidden glutens on lables so I could recomend it......I can't find it but if I do I'll post it later....in the mean time beware of products listed with natural flavors, or spices on the lables. Sometimes they hide gluten under those names. If you call the company though they can usually clear it up for you! Oh and Kraft food will always lable their products with wheat, rye, barley....etc. So I eat a lot of Kraft stuff! Good luck! I hope you feel better soon!

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - xxnonamexx replied to xxnonamexx's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      4

      My journey is it gluten or fiber?

    2. - cristiana replied to sha1091a's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      Issues before diagnosis

    3. - chrisinpa commented on Scott Adams's article in Skin Problems and Celiac Disease
      2

      Celiac Disease and Skin Disorders: Exploring a Genetic Connection

    4. - knitty kitty replied to xxnonamexx's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      4

      My journey is it gluten or fiber?

    5. - trents replied to sha1091a's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      Issues before diagnosis

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      132,695
    • Most Online (within 30 mins)
      7,748

    Aanhmcbride
    Newest Member
    Aanhmcbride
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • xxnonamexx
      I read that as well but I saw the Certified Gluten free symbol that is the reason I ourchased it.
    • cristiana
      I agree, it so often overlooked! I live in the UK and I have often wondered why doctors are so reluctant to at least exclude it - my thoughts are perhaps the particular tests are expensive for the NHS, so therefore saved for people with 'obvious' symptoms.  I was diagnosed in 2013 and was told immediately that my parents, sibling and children should be checked.  My parents' GP to this day has not put forward my father for testing, and my mother was never tested in her lifetime, despite the fact that they both have some interesting symptoms/family history that reflect they might have coeliac disease (Dad - extreme bloating, and his Mum clearly had autoimmune issues, albeit undiagnosed as such; Mum - osteoporosis, anxiety).  I am now my father' legal guardian and suspecting my parents may have forgotten to ask their GP for a test (which is entirely possible!) I put it to his last GP that he ought to be tested.  He looked at Dad's blood results and purely because he was not anemic said he wasn't a coeliac.  Hopefully as the awareness of Coeliac Disease spreads among the general public, people will be able to advocate for themselves.  It is hard because in the UK the NHS is very stretched, but the fallout from not being diagnosed in a timely fashion will only cost the NHS more money. Interestingly, a complete aside, I met someone recently whose son was diagnosed (I think she said he was 8).  At a recent birthday party with 8 guests, 4 boys out of the 8 had received diagnosis of Coeliac Disease, which is an astounding statistic  As far as I know, though, they had all had obvious gastric symptoms leading to their NHS diagnosis.  In my own case I had  acute onset anxiety, hypnopompic hallucinations (vivid hallucinations upon waking),  odd liver function, anxiety, headaches, ulcers and low iron but it wasn't until the gastric symptoms hit me that a GP thought to do coeliac testing, and my numbers were through the roof.  As @trents says, by the grace of God I was diagnosed, and the diet has pretty much dealt with most of those symptoms.  I have much to be grateful for. Cristiana
    • knitty kitty
      @xxnonamexx, There's labeling on those Trubar gluten free high fiber protein bars that say: "Manufactured in a facility that also processes peanuts, milk, soy, fish, WHEAT, sesame, and other tree nuts." You may want to avoid products made in shared facilities.   If you are trying to add more fiber to your diet to ease constipation, considering eating more leafy green vegetables and cruciferous vegetables.  Not only are these high in fiber, they also are good sources of magnesium.  Many newly diagnosed are low in magnesium and B vitamins and suffer with constipation.  Thiamine Vitamin B1 and magnesium work together.  Thiamine in the form Benfotiamine has been shown to improve intestinal health.  Thiamine and magnesium are important to gastrointestinal health and function.  
    • trents
      Welcome to celiac.com @sha1091a! Your experience is a very common one. Celiac disease is one the most underdiagnosed and misdiagnosed medical conditions out there. The reasons are numerous. One key one is that its symptoms mimic so many other diseases. Another is ignorance on the part of the medical community with regard to the range of symptoms that celiac disease can produce. Clinicians often are only looking for classic GI symptoms and are unaware of the many other subsystems in the body that can be damaged before classic GI symptoms manifest, if ever they do. Many celiacs are of the "silent" variety and have few if any GI symptoms while all along, damage is being done to their bodies. In my case, the original symptoms were elevated liver enzymes which I endured for 13 years before I was diagnosed with celiac disease. By the grace of God my liver was not destroyed. It is common for the onset of the disease to happen 10 years before you ever get a diagnosis. Thankfully, that is slowly changing as there has developed more awareness on the part of both the medical community and the public in the past 20 years or so. Blessings!
    • knitty kitty
      @EndlessSummer, You said you had an allergy to trees.  People with Birch Allergy can react to green beans (in the legume family) and other vegetables, as well as some fruits.  Look into Oral Allergy Syndrome which can occur at a higher rate in Celiac Disease.   Switching to a low histamine diet for a while can give your body time to rid itself of the extra histamine the body makes with Celiac disease and histamine consumed in the diet.   Vitamin C and the eight B vitamins are needed to help the body clear histamine.   Have you been checked for nutritional deficiencies?
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.